Zara Beth
Region: GB
Sunday 14 April 2024 16:37:35 GMT
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korynne :
thank you so much. i just got diagnosed yesterday 😭💗
2024-04-14 19:54:27
12
EDOC :
With my child drs were adamant that he had adamant he had fnd and we should basically go home and wait for him to get better. we fought for ivig as I believed his immune system was attacking his brain
2024-05-17 06:51:08
23
Anna Mitchell :
Same. I have sphincter of oddi dysfunction and it’s rare for a doctor to to know what it is!!!
2024-06-25 23:13:56
15
LaSaundra's Hand🦋 :
it is difficult. Physical Therapist, now disabled because of spinal cord injury.
2024-05-19 01:10:52
17
Ayden Parker :
I just got diagnosed with FND and have been overwhelmed. Thank you so much for talking about it. 💜
2024-04-30 22:53:48
14
Wesley Oelke :
Thank you!!!👏👏 say it louder!!!
2024-04-26 06:25:21
18
Justa dude :
no literally I say I have marfan syndrome and bettathalsymia trait and they're like "what's that and how do you spell it" like gorl aren't you the doctor like 😭
2024-04-30 08:11:17
15
🐝 🐝 🐝 :
yep! I have chiari malformation, so so many drs and professionals in hospitals have no idea what it is, my own GP had me in 2ce to ask!!
2024-05-18 17:09:47
15
layla in wonderland :
relatable 💜
2024-04-17 22:26:59
15
Chloe 🖤☁️ :
I have a rare form of muscular dystrophy i feel this xx
2024-06-04 08:49:08
8
Julian Walters🇬🇧 :
omg yeah, been there. I've written a fact sheet to give to the new docs,specialists. reduces effort and helps remembering key points.😊
2024-04-17 17:08:59
6
Russ3llMyJimmi3s :
I'm a med student and I find your videos very helpful! a lot of docs struggle with functional conditions because there's often varied presentations and guidelines for nonspecialists aren't very clear
2024-04-19 11:27:56
14
Iconiccreative 🇬🇧 :
I have a very rare genetic syndrome. Almost every medical appointment I have to tell the doctor about it
2024-06-19 18:37:08
14
#fndprincesswarrior :
I’m going threw the same thing at the moment only person I have spoke to who I didn’t have to educate was the neurologist more awareness is needed for FND
2024-05-24 06:52:59
15
Olivia :
Yes! This is so true! So few doctors know about my conditions. It’s so draining having to explain over and over again, only for them to still not understand 😥
2024-06-20 20:16:05
15
Neil :
It is difficult to communicate with someone about your condition unless they have some experience. I suffer from Meniers (vertigo), I could be mistaken as being drunk, I'm not..
2024-05-18 09:33:20
15
Amy gibbons x :
I agree I’ve been throught the same thing, everyone is to strong that goes through chronic illness 🥰
2024-04-20 12:07:25
15
tigerlily2905 :
I got diagnosed with FND recently and they referred me to psychology which made me really angry please can you do some more videos on if you had any referrals and what to ask for for my appointments x
2024-04-15 15:27:18
8
Poodles71 :
I have this too and agree xx
2024-04-18 14:03:31
7
kim :
my gp said he had only meet one other person with this but did not no much about it 🙄
2024-04-15 07:10:35
13
Elizabeth Lawson :
A doctor asked me why I need to have anti virals I said because my kidneys are failing and he snapped at me and how do you know your kidneys are failing and I was like 🥺 because I have kidney disease
2024-04-17 22:40:12
7
ash :
very off topic but your eyeliner is so perfect! 😽
2024-04-25 17:53:09
8
Sophie_16a :
rfnd and tourette's common comorbidities I think I see lots of people who have both but that might just be coincidence and the people I follow
2024-04-14 22:42:09
6
LLRP :
It’s very annoying every doctor and nurse asks what’s up after you have explained it to 5 people already so I just hand them a notebook with everything in and say there
2024-04-14 16:42:11
9
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