@magnificent.magnolia: You guys have been asking for an update. Mri results are in. Scattered punctate nonspecific T2-FLAIR hyperintensities in the cerebral hemispheric white matter, predominantly distributed in the frontal and parietal lobe subcortical and deep white matter. Neuro said she doesnt know why she has this, that she doesnt see it often in children. Ive been trying to research but i dont find much about it in kids. If you have knowledge about this please message me. We are waiting for genetic testing to come back and if that doesnt show anything we will do further genetic testing. Seems like the neurologist thinks the answer will be shown in her genetics. I wish they would just do a bunch of genetic testing at once instead of doing small portions at a time. Please keep sending prayers. #specialneedschildren #genetictesting #genetics #mri #neurology #raredisease #brainscan #specialneedsparenting #momtok

Magnificent.Magnolia
Magnificent.Magnolia
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Monday 13 May 2024 23:10:19 GMT
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michellehubbuck
Michelle :
I’ve just come across this post in the search bar ! Did you ever get any answers ? My son has just been found to have an oval shaped white matter abnormality which is hyperintense! He is 2
2025-07-31 14:32:15
1
the_driver_era_gymnast
Ellie_grace_gymnast :
I have chronic ischemic white matter changes in both cerebral hemispheres when I had a MRI at age 2 for my hypotonia my neurologist ordered
2024-05-14 22:53:32
1
doraemon_20020
Baby🐣 :
pls tag me too next results..my sons also develop ye blinking ..i'm scare..😢
2024-05-22 12:41:38
2
superkrissy3
Superkrissy :
I need to add.. has she ever been bitten by a tick? Have they ruled out lymes disease?
2024-05-22 21:07:31
0
courtneygiersch
Courtney :
I had that on my first brain scan which was looking for a pit. Adenona tumour. Found the adenoma + that. Next scan diagnosed thalamic glioma tumour in left thalamus. 😅
2024-05-19 05:24:45
4
humairahwonderer
Humairah Wonderer :
my baby has cross eye strabismus and routine mri check shows her eyes are weirdly normal bu she has this white matter. Shes hitting milestones all normal. Im sooo worried though. Any updates?
2025-02-27 01:41:41
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kad_095
KAD_53 :
Have them check her for ALD, I am close to a family that this happened to their grandson around age 7 or 8.
2025-04-11 05:37:39
0
amandamajz55
amandamajz55 :
Mine shows that too. All my genetic tests were negative. I’ll be following ♥️
2025-01-30 23:08:27
7
hiemomma
○Gina○ :
she's so precious ❤️sending prayers 🥺 I hope everything turns out just fine!
2024-05-14 01:03:22
1
angelthemenace
AngelTheMenace :
My baby she is 3 was just dx with this. She was 10 weeks early. 3 pounds. She does the same thing as your babygirl. The hands and wit her mouth to show excitement. Do you have an update?
2024-09-18 08:05:07
0
flipping_into_psychology
Maryn :
I have the same thing, we aren’t sure why. We think it is from a severe concussion but I am 17 so I shouldn’t have them and I also have many odd neuro symptoms
2024-07-11 04:44:05
0
justjuliaxox
𝙹𝚞𝚕𝚒𝚊 𝙶𝚞𝚕𝚒𝚊 :
Holding space for you and Miss Maggie in my heart ♥️I hope you get some definitive answers soon.
2024-05-14 05:41:50
1
tigrlily10
Tigrlily10 :
I'll continue to pray. After you receive your results I'll be happy to scour the internet and the books with you
2024-05-14 05:04:00
1
loonlakelabradors
Loon.Lake.Labradors🐾❤️🐾 :
She’s in good hands with you advocating for her!💕
2024-05-14 03:53:11
1
marshaandb
My Fur babies 🩷💙 :
sending prayers for your sweet baby girl, my baby girl is too 😪😪😪🙏🙏🙏🙏
2024-05-14 00:14:05
1
audrifinnegan
One Pound Baby Mom :
Medical mom here 🥺 it’s hard , praying 🙏🏼
2024-05-14 01:44:18
1
tinejenkins7
Christine7✨ :
Praying for your baby girl mama
2024-05-14 00:08:58
1
janaleann22
JANA✨ :
Prayers 💕🙏🏻
2024-05-14 00:50:31
2
midwestmoom
MidWestMooM :
Praying for your baby girl
2024-05-13 23:35:49
1
erinbe.chasingb
ERIN | ✨Joy with My Boy✨ :
Praying for you and this beautiful soul! ✨
2024-05-14 16:57:19
3
katieaholmes
Katie Holmes :
Oh mama sending love and prayers. She is so precious!!!❤️🙏🏻
2024-05-14 04:05:53
0
jordandepascale
Jordan || Twin Mom + 1 :
I'm so sorry friend, I can't imagine how frustrating this all is. Hoping for more concrete answers soon!!
2024-05-14 04:12:36
4
irma_sah_mimi
Irma_SAH_Mimi :
Sending prayers 🦋
2024-05-14 00:48:53
1
lillyhopewalsh
lillyhopewalsh :
She is adorable 🙏 praying hard for you momma and Maggie ❤️🙏
2024-05-14 11:41:58
1
courtt.simm9
Court | Motherhood & Lifestyle :
Your baby is on my prayer list. Asking all my friends to send up prayers for your sweet girl! 🤍🕊️
2024-05-14 14:38:08
1
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