@magnificent.magnolia: You guys have been asking for an update. Mri results are in. Scattered punctate nonspecific T2-FLAIR hyperintensities in the cerebral hemispheric white matter, predominantly distributed in the frontal and parietal lobe subcortical and deep white matter. Neuro said she doesnt know why she has this, that she doesnt see it often in children. Ive been trying to research but i dont find much about it in kids. If you have knowledge about this please message me. We are waiting for genetic testing to come back and if that doesnt show anything we will do further genetic testing. Seems like the neurologist thinks the answer will be shown in her genetics. I wish they would just do a bunch of genetic testing at once instead of doing small portions at a time. Please keep sending prayers. #specialneedschildren #genetictesting #genetics #mri #neurology #raredisease #brainscan #specialneedsparenting #momtok
I’ve just come across this post in the search bar ! Did you ever get any answers ? My son has just been found to have an oval shaped white matter abnormality which is hyperintense! He is 2
2025-07-31 14:32:15
1
Ellie_grace_gymnast :
I have chronic ischemic white matter changes in both cerebral hemispheres when I had a MRI at age 2 for my hypotonia my neurologist ordered
2024-05-14 22:53:32
1
Baby🐣 :
pls tag me too next results..my sons also develop ye blinking ..i'm scare..😢
2024-05-22 12:41:38
2
Superkrissy :
I need to add.. has she ever been bitten by a tick? Have they ruled out lymes disease?
2024-05-22 21:07:31
0
Courtney :
I had that on my first brain scan which was looking for a pit. Adenona tumour. Found the adenoma + that. Next scan diagnosed thalamic glioma tumour in left thalamus. 😅
2024-05-19 05:24:45
4
Humairah Wonderer :
my baby has cross eye strabismus and routine mri check shows her eyes are weirdly normal bu she has this white matter. Shes hitting milestones all normal. Im sooo worried though. Any updates?
2025-02-27 01:41:41
0
KAD_53 :
Have them check her for ALD, I am close to a family that this happened to their grandson around age 7 or 8.
2025-04-11 05:37:39
0
amandamajz55 :
Mine shows that too. All my genetic tests were negative. I’ll be following ♥️
2025-01-30 23:08:27
7
○Gina○ :
she's so precious ❤️sending prayers 🥺 I hope everything turns out just fine!
2024-05-14 01:03:22
1
AngelTheMenace :
My baby she is 3 was just dx with this. She was 10 weeks early. 3 pounds. She does the same thing as your babygirl. The hands and wit her mouth to show excitement. Do you have an update?
2024-09-18 08:05:07
0
Maryn :
I have the same thing, we aren’t sure why. We think it is from a severe concussion but I am 17 so I shouldn’t have them and I also have many odd neuro symptoms
2024-07-11 04:44:05
0
𝙹𝚞𝚕𝚒𝚊 𝙶𝚞𝚕𝚒𝚊 :
Holding space for you and Miss Maggie in my heart ♥️I hope you get some definitive answers soon.
2024-05-14 05:41:50
1
Tigrlily10 :
I'll continue to pray. After you receive your results I'll be happy to scour the internet and the books with you
2024-05-14 05:04:00
1
Loon.Lake.Labradors🐾❤️🐾 :
She’s in good hands with you advocating for her!💕
2024-05-14 03:53:11
1
My Fur babies 🩷💙 :
sending prayers for your sweet baby girl, my baby girl is too 😪😪😪🙏🙏🙏🙏
2024-05-14 00:14:05
1
One Pound Baby Mom :
Medical mom here 🥺 it’s hard , praying 🙏🏼
2024-05-14 01:44:18
1
Christine7✨ :
Praying for your baby girl mama
2024-05-14 00:08:58
1
JANA✨ :
Prayers 💕🙏🏻
2024-05-14 00:50:31
2
MidWestMooM :
Praying for your baby girl
2024-05-13 23:35:49
1
ERIN | ✨Joy with My Boy✨ :
Praying for you and this beautiful soul! ✨
2024-05-14 16:57:19
3
Katie Holmes :
Oh mama sending love and prayers. She is so precious!!!❤️🙏🏻
2024-05-14 04:05:53
0
Jordan || Twin Mom + 1 :
I'm so sorry friend, I can't imagine how frustrating this all is. Hoping for more concrete answers soon!!
2024-05-14 04:12:36
4
Irma_SAH_Mimi :
Sending prayers 🦋
2024-05-14 00:48:53
1
lillyhopewalsh :
She is adorable 🙏 praying hard for you momma and Maggie ❤️🙏
2024-05-14 11:41:58
1
Court | Motherhood & Lifestyle :
Your baby is on my prayer list. Asking all my friends to send up prayers for your sweet girl! 🤍🕊️
2024-05-14 14:38:08
1
To see more videos from user @magnificent.magnolia, please go to the Tikwm
homepage.