Hadley
Region: US
Saturday 01 June 2024 18:16:09 GMT
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𝔅𝔢𝔱𝔥💖💄🌙🦇 :
I dont bother stopping for adults now. If they don’t see me that’s their issue it’s not like I’m small, I’m a huge moving object lol 😅
2024-06-02 14:39:17
4
Arlo :
why do some rides make you take off the braces?
2024-06-01 19:52:27
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rhiannonᖭི༏ᖫྀ :
it is genuinely so nice to see a disabled theme park enthusiast! I am one too and when I got Ill it felt like I’d never enjoy rollercoasters again. truly gives me hope. thank you🫶
2024-06-01 21:22:27
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Kris :
Great ideas for staying cool(er)! Glad the roller coasters were fun!🎢
2024-06-01 21:30:46
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Charlie :
at least i’m trying is so real 😭
2024-06-01 20:39:52
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🫶Charlie brown 🫶 :
Here following personalised tapes what printer is best we’re looking to make some for my little girl she is 2 we are uk based xx
2024-06-13 11:49:08
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Meghan Hickok :
do you do any of the ones that go in loops if you do how do you seem to handle them with symptoms ?
2024-06-05 22:02:04
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Couch on wheels :
felt, we do cedar point a lot. admittedly won't work as well for you, but we get the drink passes and load up on powerade with our own insolated water bottles
2024-06-05 23:51:15
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silkcells :
I have hEDS trifecta & co, but how would I go about looking into mito dysfunction? What specialist would help with that??
2024-06-01 20:12:27
4
volcano__witch :
Useful! If only I could remember my dang electrolytes.
2024-06-05 10:05:14
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pasttenseofdraw.mp3 :
I’m sooo afraid of going on rollercoasters now because I’m afraid I’ll fuck up my neck ☹️but the risk probably isn’t actually that big, if u rly like rollercoasters I’m sure it’s worth it!
2024-06-01 18:26:48
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Hadley :
not pictured: the iv fluids i ran before + after - it isn’t safe to dis/reconnect often for rides!
2024-06-01 18:22:00
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Megg🇵🇸 :
Have you tried Limon7? It’s a Mexican salt candy that’s flavored. Might look a little less weird carrying it around
2024-06-01 21:07:03
4
sydney🎀 :
Pedialyte through your feeding tube is genius
2024-06-01 20:11:18
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Brittany :
Im so jealous that you can ride roller coasters while having hEDS & POTS? I can’t even handle car rides 😭
2024-06-07 20:07:36
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Katelyn & Russell |-/ :
Hey! I’m about 20 mins from Carowinds!
2025-08-01 19:53:42
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Zara Beth :
this is so helpful!!!
2024-06-03 18:31:24
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silkcells :
So question, I’ve always been under the impression that mito dysfunction is really severe, but I’ve wondered for a while if it’s possible I have a less severe form that cause damage over time-
2024-06-01 20:12:00
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