@microcatmachine: It’s ok to grieve the loss or lack of you. 🖤 I’ve had chronic illness for as long as I can remember, but things have been very different for me since 2020 when my health declined. #HealthDecline #ComplexIllness #HypermobileEhlersDanlosSyndrome
Just wondering if you don't mind sharing, did your decline start after having covid? My health has never been the same since
2024-06-13 15:08:41
37
SunnyH :
I felt this in my soul. nobody understands I mourn my old life.
2024-06-13 03:05:33
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Evyn :
it's even harder that when my health was good I wasn't doing anything, and now I actually want to do things and I can't 😞
2024-06-13 03:01:20
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Kathunni :
I was a marine biologist living my full dream life but I kept having to go to hospitals abroad. eventually I had to come back home. I grieve everyday. this was not the life I imagined.
2024-06-13 11:13:20
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Yur_goldenchild :
Same. I would have lived so differently and prioritized very different things had I known…
2024-06-13 03:18:49
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ForestFaerie🧚♀️🦓 :
my decline with hEDS & dysautonomia started in 2020 as well. Just got dxd last month. lost family and friends 💔
2024-06-13 03:02:54
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🦇Archy Strange🦇 :
I used to be an athlete... Now I can't even walk or stanf for a longer period. I get winded when I talk and I dislocate my fingers from opening a canned drink... I was in a rollerderby team & track
2024-06-13 06:32:46
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doggolove77 :
Thank you for sharing. Trying to sit with this as well but it is the most painful experience I’ve ever had. 😔💗
2024-06-13 02:52:19
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🦇🖤𝒷ℯ𝓁𝓁𝒶🖤🦇 :
i know how you feel, and i’m so sorry.. i was recently diagnosed with pots, and it has truly ruined my life. i mourn the loss of my old self everyday. stay strong, we’re here for you.🖤🖤
2024-06-13 13:23:06
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Sol :
Hey I appreciate you sharing this side and I’d love to see more of it. I find the toxic positivity from the chronically ill community and my own family crippling as I try to adjust to my body changing
2024-06-16 02:50:03
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Bree :
Same. I used to be an athlete, now I have no family support, multiple autoimmune diseases, a pacemaker, heart failure and more at just 29. Doctors call me fat yet my meds make me gain weight and I'm
2024-06-13 14:02:02
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Ris :
I mourn the old me too. I would've done so much more if I knew I had limited time to do it all. I'm sorry friend, I know it hurts.
2024-06-13 03:05:51
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Kaylee Halverson :
i relate to this too much
2024-06-13 02:52:20
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Tara 💙Bluey's Version🧡 :
I'm so sorry Allison... I feel this in my soul... your not alone in this. I will sit with you whenever you need it. Feel your feelings. it's ok to grieve. sending so much love girl. you have helped me
2024-06-13 05:14:07
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Theri (they/them) :
I feel this so hard 💔 I spent 30 years struggling through abuse, neglect, and poverty but now that I'm safe and stable the toll of it all came crashing down on my body. It's not fair to any of us 😞
2024-06-13 05:17:31
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☆Umbria☆ :
felt this I knew deep down after covid I was on a borrowed time but hoped I was in my dream job as a community carer then in 22 it all crashed I held on to my job said you need to rest you need to go
2024-06-17 07:02:48
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nova | they/them :
what hit hardest for me was my hands no longer accurately doing what i tried to when i wanted to draw. i’m so afraid i’ll never draw again, so now i don’t try. it’s a different kind of heartbreak. ❤️
2024-06-13 05:30:22
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meganspirowski :
Going through this now too. signed up for nursing school this fall but my health has declined so much this past month im not sure I'll be able to work or go to school. looking at wheelchairs now (1/2)
2024-06-14 14:33:14
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Caitie :
I mourn the old me too, the child I was. Im sometimes thankful it happened to me so young. To have years to dedicate to getting better but now 10 years later and Im 18 cleaning up the pieces. —
2024-06-13 05:12:26
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Sunshine :
i do too... I feel like I missed out a lot because mine started when I was 12
2024-06-13 12:38:17
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Leash :
Oh Allison you hit the nail on the head there. It’s so hard to see memories pop back up of our pre life and it’s so hard to wake up and realise your life may never be like that again and it’s a
2024-06-13 10:14:51
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nojohi :
this unlocked a lot of grief I've been bottling up and made me start sobbing.
2024-06-13 04:02:11
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Total Gut Health :
😢 I’m feeling this so hard at 39 with 3 children just realizing the EDS… been in pain for so long and everything got so bad the last few years. I have left everyone because no one can understand
2024-06-14 18:59:09
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Allisonbug :
I’m currently going through this. I’m also starting to acknowledge that I need to use mobility aids. I never imagined my health like this
2024-06-14 03:08:02
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The Therapy Pod :
Aghhh. Yes. This hit hard. 5 years of chronic pain for me now with EDS / osteoarthritis 🥺
2024-06-15 05:17:33
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