@moonlit_kit: I hope everyone is having a good day 🫶 to all my hypermobile or hEDS friends out there, you aren’t alone 🙌 if you’re new to hEDS and hypermobility and want to learn more, check out this video! @Kit 🌙✨ #chronicillness #chronicillnessawareness #chronicillnesstiktok #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabled #disabilitytiktok #disabilityawareness #disabledtiktok #disabilitypride #disabilityadvocate #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobile #connectivetissueissue #connectivetissuedisorder
any tips for people that stopped moving because they didn't know better and are trying to move again?
2024-06-22 02:40:51
33
Jessica :
I appreciate you so much! Thank you.
2024-06-24 19:21:01
1
Becca Beckery :
Yes!! I did photos of my joints bending, stretching my skin etc to show them because every time I have an appointment I end up in a flareup for days after
2024-08-25 12:17:27
0
The Rad Dog Groomer :
I so needed to hear this today ❤️thank you 🥰
2024-06-21 11:15:05
3
Lenthe schutten :
I can't even imagine having no pain!
2024-06-21 04:02:01
2
Barrett :
I can’t stop hyperextending my knees to get the good backwards crack 😭
2024-07-02 03:52:12
1
EtherealZebra :
Well depending age as u age u tend to ache some
2024-06-22 15:54:17
1
@sweetbutterfly420 :
that can't be real. I'm always in pain and dr.s don't care
2024-06-20 23:28:14
6
Mo🦎 :
I've had to unlearn this I've had chronic pain since the age of 10. growing pains I never grew out of lmao
2024-06-21 00:14:32
156
ᴀʟɪ🌻 :
cEDS here! same for us!
2024-06-22 01:37:19
2
Cal Blackthorn :
heyyy I have that shirt 😂
2024-06-21 04:07:53
1
Lauren :
And does anyone else have to constantly crack their joints
2024-06-21 11:17:22
0
bernadette’s :
I love your videos 💕
2024-09-05 10:54:42
0
Dean🖤🥯 :
remember: your toes and fingers shouldn't hurt all the time. use what tools you need
2024-06-21 12:33:51
3
Stevie and Layla :
Can we please use this/part of this as a sound? So elegantly put 🥰
2024-06-21 09:47:44
1
Jingle :
I really need to find a specialist to get tested for heds
2024-06-25 16:31:38
0
Fletcher😷 :
The number of times I’ve had drs or medical professionals tell me I don’t deserve a wheelchair basically because I’ll “decondition” well guess what’s really done that now? Not being able to go out!
2024-06-20 23:45:12
4
kai :
the recording party tricks can also come in handy when you injure something and suddenly can’t do it anymore! i hurt my hip somehow & now can’t put my palms on the floor, having that proof would’ve
2024-06-23 05:09:35
2
KeetCraft :
Getting past our own hitches about using aids is the worst. You gotta keep telling yourself, I DO need this! ❤️
2024-06-20 23:54:09
39
atlas :
what happens if I'm wrong and just make things worse trying to feel better?
2024-06-25 05:08:05
1
Jessica Sell :
I have heds I'm in Constant pain whether I'm moving or not
2024-06-21 02:55:02
1
Mai your manic pixie godmother :
I have mitochondrial myopathy. Mobility tools is the only way I can get activity in the short bursts I can manage.
2024-06-21 03:36:58
1
Sydney <3 :
I remember when I found out that most chronic pain ppl don’t have it everywhere and some don’t have it constantly. Mine is actually everywhere. Constantly.
2024-06-22 13:32:59
1
Kota :
me at my best friend: don't wear your braces like I do its not good for you
her: i.. can't walk as much anymore with out the brace
me: i... told you... not to wear them as much as me... it'll atrophy
2024-06-22 05:09:12
1
Michelle :
May I ask if you use any mobility aids as needed? I know I need mine at times and I can never decide what would be helpful for me
2024-06-21 14:53:25
2
To see more videos from user @moonlit_kit, please go to the Tikwm
homepage.