@carolinecrayy: Replying to @sophia My experience with dysautonomia: 1️⃣ my symptoms, 2️⃣ how I got diagnosed, 3️⃣ my treatment plan #dysautonomia #dysautonomiaawareness #dysautonomiafighter #neuropathy

Caroline Cray

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Thursday 11 July 2024 01:48:21 GMT

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Comments

juliettelittlewood :

thank you for sharing!!!! I developed dysautonomia 1.5 years ago and have been struggling with it ever since. it's great to hear you talk about it

2024-07-11 06:39:19

28

mia_marino11 :

i felt this. i wasnt a D1 athlete but i was dancing 6 days a week on a competitive team. 2021 i started developing symptoms of POTS and havent been able to dance to do a whole ton in 6 years

2026-06-09 02:54:00

24

Beary’s Attic :

I’m just amazed that you got a doctor to listen to you. It took 25 years and many different doctors for me to finally get diagnosed with dysautonomia

2025-12-04 00:57:47

151

Forte e Poderosa :

I love hearing from other people who are successfully managing their dysautonomia. My kiddo went from being bedridden to being a camp counselor.

2024-07-11 02:33:09

1390

sarah.is.trying :

Thanks for being so open about your story. As a fellow chronic illness girlie, honestly - hearing that a D1 athlete could be taken down by chronic illness makes me feel validated, if that makes sense

2024-07-11 02:22:32

2854

Abigail :

But can we also talk about how you filmed this whole video and you aren’t even out of breath!! That’s awesome

2024-07-12 02:12:59

527

Leah Sunshine :

I went from D1 athlete to wheelchair with dysautonomia. Thank you for sharing! It’s a nightmare.

2024-07-12 00:28:58

420

Willow :

I have really bad POTS and it's definitely a difficult condition with constant exhaustion and feeling hungover 😭

2024-07-11 16:47:27

200

thepurchaseplanner :

Omg HI!!! I have POTS and omg it’s impossible to explain 😭😭😭 flare ups are the worst- but sometimes I feel very normal and cozy especially during the winter. My body temp doesn’t regulate and the heat makes me violently ill 🤝🤝🤝

2025-11-10 05:47:11

17

WAVEX Water Bottles :

Thank you for sharing your journey. Stay Strong, Stay Hydrated, Keep Moving. 🙏

2025-12-15 00:55:49

9

🤠🫀🧜🏼‍♀️ :

You have come so far! Your positivity in light of all of these scary things is inspiring! I can’t wait to watch your journey

2024-07-11 02:44:06

109

Sarah Morgan :

My 4.5yo was just diagnosed with/ a rare bone marrow failure disease - he’s getting treatment but something he’ll live with for the rest of his life. As a mom it’s been a lot for me to wrap my 1/2

2024-09-19 22:59:05

64

🐾Morgan Valley Doodles 🐾 :

That happened to my son. So sad. I’m so sorry

2024-07-11 02:10:07

29

chef CC :

I went through this… similar… going from athlete to being in a wheelchair is so humbling . We are so lucky we got our ability to walk back 🩵 some dont as well. Godbless🩷

2024-11-05 05:51:10

15

chronically.izzi :

this is so validating for me 🥺 I’m still mourning the loss of my athletic career

2024-07-11 21:19:39

17

raesims7🇺🇸😢 :

Did you ever just feel so done with the health issues and want to just stay in bed for days or did you have any depression? You’re such a rock star ⭐️

2024-07-11 03:03:58

41

Makenzie Spurgeon :

I have pots and I used to be a college athlete as well. The fact that you were able to get back to that level of shape absolutely blows my mind and gives me hope 😌

2024-09-27 06:11:58

216

kristin :

I’m a home infusion rep and I call on offices that do IVIG/Hizentra. So interesting to see the drug work from the patient’s side.

2024-09-04 11:32:31

47

Areej :

You’re so positive despite all this. Love your energy ♥️

2025-02-25 10:15:25

7

mars ✨ :

This gives me hope that I’ll be able to heal one day and get back to my sport 🥲🫶🏻 thanks for sharing!!

2024-08-10 06:33:04

8

☥𓂀☥ :

This may be silly but is dysautonomia not caused by POTS? Is it like a thing you can just get on its own?

2024-10-07 03:37:57

94

Tay Chavez | Teacher :

I have pots & during the heat, mine is not under control 😅😅

2024-07-21 03:20:39

6

User1934885 :

Do you feel bad if you get up too quickly?

2024-07-11 13:46:13

54

Karolina :

So this donor antibodies - do they come from plasma donations? :)

2024-07-13 15:25:47

6

Kristen Paige :

The way Dysautonomia is completely different in animals is so crazy to me! I work with animals and Dysautonomia is like a 180 from what you’re experiencing.

2024-10-17 19:19:48

35

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