@carolinecrayy: Replying to @sophia My experience with dysautonomia: 1️⃣ my symptoms, 2️⃣ how I got diagnosed, 3️⃣ my treatment plan #dysautonomia #dysautonomiaawareness #dysautonomiafighter #neuropathy
I went from D1 athlete to wheelchair with dysautonomia. Thank you for sharing! It’s a nightmare.
2024-07-12 00:28:58
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☥𓂀☥ :
This may be silly but is dysautonomia not caused by POTS? Is it like a thing you can just get on its own?
2024-10-07 03:37:57
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sarah.is.trying :
Thanks for being so open about your story. As a fellow chronic illness girlie, honestly - hearing that a D1 athlete could be taken down by chronic illness makes me feel validated, if that makes sense
2024-07-11 02:22:32
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Abigail :
But can we also talk about how you filmed this whole video and you aren’t even out of breath!! That’s awesome
2024-07-12 02:12:59
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Forte e Poderosa :
I love hearing from other people who are successfully managing their dysautonomia. My kiddo went from being bedridden to being a camp counselor.
2024-07-11 02:33:09
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mia marino :
i felt this. i wasnt a D1 athlete but i was dancing 6 days a week on a competitive team. 2021 i started developing symptoms of POTS and havent been able to dance to do a whole ton in 6 years
2026-06-09 02:54:00
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Beary’s Attic :
I’m just amazed that you got a doctor to listen to you. It took 25 years and many different doctors for me to finally get diagnosed with dysautonomia
2025-12-04 00:57:47
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Willow :
I have really bad POTS and it's definitely a difficult condition with constant exhaustion and feeling hungover 😭
2024-07-11 16:47:27
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Makenzie Spurgeon :
I have pots and I used to be a college athlete as well. The fact that you were able to get back to that level of shape absolutely blows my mind and gives me hope 😌
2024-09-27 06:11:58
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Magaly Martin :
Same here! I have the trifecta (mcas, eds, pots). Lots of salt, water, compression socks (specially this one), resting, ivs and horizontal workouts help my pots ☺️
2024-09-06 03:04:35
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WAVEX Water Bottles :
Thank you for sharing your journey. Stay Strong, Stay Hydrated, Keep Moving. 🙏
2025-12-15 00:55:49
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kristin :
I’m a home infusion rep and I call on offices that do IVIG/Hizentra. So interesting to see the drug work from the patient’s side.
2024-09-04 11:32:31
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User1934885 :
Do you feel bad if you get up too quickly?
2024-07-11 13:46:13
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chronically.izzi :
this is so validating for me 🥺 I’m still mourning the loss of my athletic career
2024-07-11 21:19:39
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🤠🫀🧜🏼♀️ :
You have come so far! Your positivity in light of all of these scary things is inspiring! I can’t wait to watch your journey
2024-07-11 02:44:06
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Ileana Diaz :
Hey Caroline! I’m so grateful for you and your account. It is so insightful and helps my mother who is suffering from the same disorder whom is also located in the New England area.
2025-02-18 21:01:29
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🐾Morgan Valley Doodles 🐾 :
That happened to my son. So sad. I’m so sorry
2024-07-11 02:10:07
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raesims7🇺🇸😢 :
Did you ever just feel so done with the health issues and want to just stay in bed for days or did you have any depression? You’re such a rock star ⭐️
2024-07-11 03:03:58
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Sarah Morgan :
My 4.5yo was just diagnosed with/ a rare bone marrow failure disease - he’s getting treatment but something he’ll live with for the rest of his life. As a mom it’s been a lot for me to wrap my 1/2
2024-09-19 22:59:05
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chef CC :
I went through this… similar… going from athlete to being in a wheelchair is so humbling . We are so lucky we got our ability to walk back 🩵 some dont as well. Godbless🩷
2024-11-05 05:51:10
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thepurchaseplanner :
Omg HI!!! I have POTS and omg it’s impossible to explain 😭😭😭 flare ups are the worst- but sometimes I feel very normal and cozy especially during the winter. My body temp doesn’t regulate and the heat makes me violently ill 🤝🤝🤝
2025-11-10 05:47:11
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Kristen Paige :
The way Dysautonomia is completely different in animals is so crazy to me! I work with animals and Dysautonomia is like a 180 from what you’re experiencing.
2024-10-17 19:19:48
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mars ✨ :
This gives me hope that I’ll be able to heal one day and get back to my sport 🥲🫶🏻 thanks for sharing!!
2024-08-10 06:33:04
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carolinemckenzie :
I was also diagnosed with dysautonomia in college! Thanks for sharing your story 💛
2024-09-18 05:21:58
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