@carolinecrayy: Replying to @sophia My experience with dysautonomia: 1️⃣ my symptoms, 2️⃣ how I got diagnosed, 3️⃣ my treatment plan #dysautonomia #dysautonomiaawareness #dysautonomiafighter #neuropathy

Caroline Cray
Caroline Cray
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Region: US
Thursday 11 July 2024 01:48:21 GMT
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leahsunshineleah
Leah Sunshine :
I went from D1 athlete to wheelchair with dysautonomia. Thank you for sharing! It’s a nightmare.
2024-07-12 00:28:58
442
cathedral.curse
☥𓂀☥ :
This may be silly but is dysautonomia not caused by POTS? Is it like a thing you can just get on its own?
2024-10-07 03:37:57
99
sarah.is.trying
sarah.is.trying :
Thanks for being so open about your story. As a fellow chronic illness girlie, honestly - hearing that a D1 athlete could be taken down by chronic illness makes me feel validated, if that makes sense
2024-07-11 02:22:32
3181
abbykoons2
Abigail :
But can we also talk about how you filmed this whole video and you aren’t even out of breath!! That’s awesome
2024-07-12 02:12:59
551
forte_e_poderosa
Forte e Poderosa :
I love hearing from other people who are successfully managing their dysautonomia. My kiddo went from being bedridden to being a camp counselor.
2024-07-11 02:33:09
1509
mamma.mia_5
mia marino :
i felt this. i wasnt a D1 athlete but i was dancing 6 days a week on a competitive team. 2021 i started developing symptoms of POTS and havent been able to dance to do a whole ton in 6 years
2026-06-09 02:54:00
59
bearysattic
Beary’s Attic :
I’m just amazed that you got a doctor to listen to you. It took 25 years and many different doctors for me to finally get diagnosed with dysautonomia
2025-12-04 00:57:47
166
idk.itswillow
Willow :
I have really bad POTS and it's definitely a difficult condition with constant exhaustion and feeling hungover 😭
2024-07-11 16:47:27
211
makenziespurgeon
Makenzie Spurgeon :
I have pots and I used to be a college athlete as well. The fact that you were able to get back to that level of shape absolutely blows my mind and gives me hope 😌
2024-09-27 06:11:58
229
drawerofwonders
Magaly Martin :
Same here! I have the trifecta (mcas, eds, pots). Lots of salt, water, compression socks (specially this one), resting, ivs and horizontal workouts help my pots ☺️
2024-09-06 03:04:35
5
makewaterexciting
WAVEX Water Bottles :
Thank you for sharing your journey. Stay Strong, Stay Hydrated, Keep Moving. 🙏
2025-12-15 00:55:49
11
khollyc
kristin :
I’m a home infusion rep and I call on offices that do IVIG/Hizentra. So interesting to see the drug work from the patient’s side.
2024-09-04 11:32:31
48
nicholesayshi
User1934885 :
Do you feel bad if you get up too quickly?
2024-07-11 13:46:13
71
chronically.izzi
chronically.izzi :
this is so validating for me 🥺 I’m still mourning the loss of my athletic career
2024-07-11 21:19:39
18
weewaweewo
🤠🫀🧜🏼‍♀️ :
You have come so far! Your positivity in light of all of these scary things is inspiring! I can’t wait to watch your journey
2024-07-11 02:44:06
111
sillyilz
Ileana Diaz :
Hey Caroline! I’m so grateful for you and your account. It is so insightful and helps my mother who is suffering from the same disorder whom is also located in the New England area.
2025-02-18 21:01:29
5
morganvalleydoodles
🐾Morgan Valley Doodles 🐾 :
That happened to my son. So sad. I’m so sorry
2024-07-11 02:10:07
29
rae_1951
raesims7🇺🇸😢 :
Did you ever just feel so done with the health issues and want to just stay in bed for days or did you have any depression? You’re such a rock star ⭐️
2024-07-11 03:03:58
41
sarahmorgan219
Sarah Morgan :
My 4.5yo was just diagnosed with/ a rare bone marrow failure disease - he’s getting treatment but something he’ll live with for the rest of his life. As a mom it’s been a lot for me to wrap my 1/2
2024-09-19 22:59:05
65
welcome2my.kitchen
chef CC :
I went through this… similar… going from athlete to being in a wheelchair is so humbling . We are so lucky we got our ability to walk back 🩵 some dont as well. Godbless🩷
2024-11-05 05:51:10
16
thepurchaseplanner
thepurchaseplanner :
Omg HI!!! I have POTS and omg it’s impossible to explain 😭😭😭 flare ups are the worst- but sometimes I feel very normal and cozy especially during the winter. My body temp doesn’t regulate and the heat makes me violently ill 🤝🤝🤝
2025-11-10 05:47:11
18
kristenpaige30
Kristen Paige :
The way Dysautonomia is completely different in animals is so crazy to me! I work with animals and Dysautonomia is like a 180 from what you’re experiencing.
2024-10-17 19:19:48
42
worfscalisthenicsprogram
mars ✨ :
This gives me hope that I’ll be able to heal one day and get back to my sport 🥲🫶🏻 thanks for sharing!!
2024-08-10 06:33:04
10
carolinemckenzie96
carolinemckenzie :
I was also diagnosed with dysautonomia in college! Thanks for sharing your story 💛
2024-09-18 05:21:58
5
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