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Thursday 11 July 2024 02:32:07 GMT

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JeriBerry888 :

Where do I get lotus root flower root and what does it taste like?😳

2024-07-12 17:30:50

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Nheldevicente :

Nice

2024-07-12 19:26:49

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user9162265269350 :

😂😂😂

2024-07-27 05:38:58

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Ladybelle :

❤️❤️❤️

2024-07-16 18:13:35

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THATS A WALKING 💼 RIGHT THERE BRUH

THATS A WALKING 💼 RIGHT THERE BRUH

10/10 HIGHLY recommend! And everything was vegan y'all!!! @Chef CK Vegan 🌱 did her big one! #Dallas #Vegan #Mealprep #DFW #DallasVegan #BlackOwned

10/10 HIGHLY recommend! And everything was vegan y'all!!! @Chef CK Vegan 🌱 did her big one! #Dallas #Vegan #Mealprep #DFW #DallasVegan #BlackOwned

#lifelatelyvlog#darkaesthetics#selflove#aestheticVlog #lifelately##blackgirltiktok#frankfurtammain#frankfurt #PositiveVibes#positivity#selfcaretiktok#motivationalquotes #motivationalmondav#mentalhealthmatters #spendingtimealone#lifeondnd#dump#2024moodboards #spendtimealone #chamberofreflection

#lifelatelyvlog#darkaesthetics#selflove#aestheticVlog #lifelately##blackgirltiktok#frankfurtammain#frankfurt #PositiveVibes#positivity#selfcaretiktok#motivationalquotes #motivationalmondav#mentalhealthmatters #spendingtimealone#lifeondnd#dump#2024moodboards #spendtimealone #chamberofreflection

💋 or 👋🏽 #kiss #spankk

💋 or 👋🏽 #kiss #spankk

I normally don’t post my kids but for rare disease day I would like to inspire others and remind anyone who struggles with a rare disease that you are beautiful. My vibrant first born was diagnosed 3 days after birth (positive new born screening then onto genetic testing). She was diagnosed with an inborn error of metabolism called MCADD. 1 in 50k are diagnosed and with the new born screening, more lives are being saved from this invisible disease. In short, she has no ability to tap into fat reserves for sustained energy and only relies on glucose for energy. Typically we use fat reserves through fasting cycles (sleep, illness like vomiting and diarrhea, etc). She does not make an enzyme to be able to tap into those supplies and thus not being able to fast. This requires her to eat very very frequently and sometimes be hospitalized with IV D10 (glucose and saline) to sustain her. This is because we as humans are only supplied with short immediate glucose intake which the body uses for immediate blood sugar delivery. (Do not get this confused with diabetes, vastly different). If my daughter does not replenish quickly, she can drop her sugars so drastically, it can cause her to go into hypoglycemic shock or even pass away. She also has a secondary disorder called L-carnitine deficiency because of the MCADD. Over a decade we have managed symptoms and taken precautionaries to keep her life bright. She is the strongest person I know and I’m so honored to be her mother. Ontop of that, honored to be a voice for her or any others that struggle with invisible diseases. We have countless of stories id be more than happy to share. Some good, some not so good. It was incredibly hard in her early development. I remember setting 7 alarms to breast feed her every 2 hours around the clock (3 yrs), praying to God she wouldn’t throw up her milk. Or that I didn’t sleep past my alarms. I was always fearful I would wake up and she be gone. I quit my job in 2014 to solely take care of her until she was allowed to fast longer and i became so educated in this to the point I should now be a Geneticist lol but I digress. Current day we are taking on the world little by little. Some days are hard but everything is manageable. She has 504 and IHP with school and emergency protocols letters/gudance for ER staff from her specialty team. She loves to spread awareness and educate others on MCADD and remind everyone that just because you can’t see it, doesn’t mean it’s not there. So with that, if anyone ever needs someone to talk to that is a special needs parent- I’m here. The biggest piece of advice for anyone in life, disorders or not… always follow your intuition and don’t be fearful of your body. Energy never lies. It’s here to protect you, wanting you in a happy equilibrium. You just have to listen and lean in to the exploration of it. #rarediseaseawareness #rarediseaseday #feb28 #mcadd #mcaddawareness #invisibledisease

I normally don’t post my kids but for rare disease day I would like to inspire others and remind anyone who struggles with a rare disease that you are beautiful. My vibrant first born was diagnosed 3 days after birth (positive new born screening then onto genetic testing). She was diagnosed with an inborn error of metabolism called MCADD. 1 in 50k are diagnosed and with the new born screening, more lives are being saved from this invisible disease. In short, she has no ability to tap into fat reserves for sustained energy and only relies on glucose for energy. Typically we use fat reserves through fasting cycles (sleep, illness like vomiting and diarrhea, etc). She does not make an enzyme to be able to tap into those supplies and thus not being able to fast. This requires her to eat very very frequently and sometimes be hospitalized with IV D10 (glucose and saline) to sustain her. This is because we as humans are only supplied with short immediate glucose intake which the body uses for immediate blood sugar delivery. (Do not get this confused with diabetes, vastly different). If my daughter does not replenish quickly, she can drop her sugars so drastically, it can cause her to go into hypoglycemic shock or even pass away. She also has a secondary disorder called L-carnitine deficiency because of the MCADD. Over a decade we have managed symptoms and taken precautionaries to keep her life bright. She is the strongest person I know and I’m so honored to be her mother. Ontop of that, honored to be a voice for her or any others that struggle with invisible diseases. We have countless of stories id be more than happy to share. Some good, some not so good. It was incredibly hard in her early development. I remember setting 7 alarms to breast feed her every 2 hours around the clock (3 yrs), praying to God she wouldn’t throw up her milk. Or that I didn’t sleep past my alarms. I was always fearful I would wake up and she be gone. I quit my job in 2014 to solely take care of her until she was allowed to fast longer and i became so educated in this to the point I should now be a Geneticist lol but I digress. Current day we are taking on the world little by little. Some days are hard but everything is manageable. She has 504 and IHP with school and emergency protocols letters/gudance for ER staff from her specialty team. She loves to spread awareness and educate others on MCADD and remind everyone that just because you can’t see it, doesn’t mean it’s not there. So with that, if anyone ever needs someone to talk to that is a special needs parent- I’m here. The biggest piece of advice for anyone in life, disorders or not… always follow your intuition and don’t be fearful of your body. Energy never lies. It’s here to protect you, wanting you in a happy equilibrium. You just have to listen and lean in to the exploration of it. #rarediseaseawareness #rarediseaseday #feb28 #mcadd #mcaddawareness #invisibledisease

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