lilly downs
Region: US
Thursday 11 July 2024 23:05:40 GMT
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peyton :
I’ve had POTS and a consistent migrane for going on 6 years and you described everything perfectly! I have a hard time putting into words what it’s like living with pain everyday, but you nailed it❤️
2024-07-12 03:31:14
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Jamesen Birdsell :
I love your videos. I just curious I know your graduation in 2022, are you going to school or anything?
2024-07-12 00:56:46
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molly kelly :
fatigue is sooo frustrating! i’m so glad your open about that because that is one of the hardest things for me to deal with and admit to people! they don’t get that it’s more than “just being tired”
2024-07-12 01:35:03
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hannah :
you are so strong! what has helped you improving your nausea? right now its so bad for me i need tips!
2024-07-12 01:26:20
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Danica;)_Jimenez :
what type of dressing do you use for your central line? I also have one and I’ve been having bad reactions to different tapes and we just having found the right one
2024-07-12 02:32:28
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Hailie :
You are a light in this world. Genuinely. You make me feel less alone and help shift my perspective on life and it makes a difference. You make it look easy but we can’t forget what people go daily.
2024-07-12 13:01:27
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Honey :
Why was the nausea worse before?
2024-07-12 07:11:27
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💐rachel | disabled advocate :
"I wish my body was able to keep up with my mind"!!! This entire video I relate to tons💓 so validating
2024-07-13 05:52:07
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the.elise.diaries :
You explained this super well, I admire your vulnerability and openness. Thanks for sharing your videos I enjoy watching them
2024-07-12 03:48:47
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Poppy&Kaylee :
So proud of you for always sharing and educating us! Despite your pain you still shine🧡
2024-07-12 02:29:52
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jo :
you explained this so so well the fatigue after a long day is insane and having to rest a whole other day is mentally exhausting! love you lils!
2024-07-12 02:27:31
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rachelanne787 :
Have you tried acupuncture?
2024-07-12 02:02:23
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Oscar Liskish :
I’m curious as how much out of pocket you have to pay for all the meds and supplies, I work in the medical field and I know it can rank up pretty fast, just curious that’s all…
2024-08-06 05:06:18
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A :
As a person who has recently used to get gastrointestinal diseases, I find some pockets of peace when ever I see your everyday life, you give me hope and energy. Will pray for both of us ❤️🩹
2024-07-12 06:03:52
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Emily :
I love seeing others post improvements in the CI community!! Nobody should ever be afraid to say they’re doing better. Since my last surgery, I’ve also been able to enjoy bites of food again too 💗
2024-07-15 20:30:27
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jennyb :
You’re so strong! Not to mention positive!!! Have you tried acupuncture,? From someone who has lived with chronic pain since 16 it’s truly beneficial.❤️
2024-07-13 02:11:34
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Sarah :
So happy you’re feeling better! What has helped you the most with lessening nausea? A certain medication or just time?
2024-07-12 01:22:44
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Brad Swiftney :
Love the transparency always! You’re not only educating so many people & raising awareness on SM, but also helping others not feel alone & validated on their tough CI journey thru your honesty 🙏🙌🫶
2024-07-12 04:01:49
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Mandy :
Hearing this makes me hopeful that I can get to this stage bc I have a feeding tube too but I can’t eat anything bc my nausea is absolutely horrible and it causes me to be home 24/7
2024-07-12 01:49:47
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Amy :
Thank you for sharing this. Hearing stories/information like this gives me hope.
2024-07-12 00:54:32
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Stella Payne :
You say it so perfectly❤️
2024-07-12 03:52:51
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Amy :
This is SO well said! 👏🏼
2024-07-14 00:41:09
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tay :
you’re amazing lil always so proud of you🫶🏼
2024-07-12 12:07:41
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jade ;) (Taylor's Version) :
Body not keeping up your mind is such mental torture. I'm so so proud of you Lilly
2024-07-13 05:09:11
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Emma Grande :
Are you comfortable sharing your experience with IVIG?
2024-07-12 04:09:19
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