@alexandrawideeyes: “On a scale from 1-10…” #chronicillness #spoonie #chronicpain #potsawareness #potsie #ehlersdanlos #heds #zebra #spoonielife #spooniehumor #spooniesoftiktok #chronicillnessawareness #doctors #jointpain #mcas #mastcellactivationsyndrome #chronicfatigue

Alexandra Kopko (She/Her)
Alexandra Kopko (She/Her)
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Region: US
Thursday 11 July 2024 23:47:04 GMT
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bribologna
Bri :
did you copy that other girl??
2024-07-23 15:59:09
1131
monroe213swife
Louise :
I have fibromyalgia and I know exactly what you mean. No one believes me ever.
2024-07-12 11:44:04
11744
the_life_of_livy
Livy :
Oh my gosh so relatable. Yesssss why is it like this?!!
2024-11-13 17:54:19
1
authorash
AuthorAsh & WriterSyndicateSys :
That’s why I ask do they mean the chronic pain scale or the acute pain scale. And then go from there.
2024-07-12 07:01:17
1418
shy123.heather
Heather :
They just don't believe it. Ever.
2024-07-12 05:48:06
37816
darkmoondawn
🌛Dawn🌜 :
I have fibromyalgia and chronic fatigue syndrome and no one ever believes I’m in the pain I’m actually in. I get a old I’m “just lazy” 😑
2024-07-12 22:07:57
1837
fejj_xxv
🩷 The Jeff-inator 🏳️‍🌈 :
"and you have a medical degree?" This is the most accurate response.
2024-07-12 05:40:00
24858
melissah4272
Melissa Harmon :
When you live with pain everyday, it just becomes the norm. I'll worry when I don't feel anymore pain.
2024-07-12 18:58:30
2238
jedikelly82
JediKelly82 :
As someone who suffers from chronic pain and has to deal with Veterans Healthcare, the struggle is real. Though for me it was weight instead of anxiety
2024-10-02 22:29:11
0
catfishoutofwater
Catfish Out of Water :
I had a doctor tell me that, if I was in that much pain, I'd be in the hospital... What do you think that we're doing... RIGHT NOW? 🤦‍♀️
2024-07-12 13:50:06
12181
kari_nc
Kari Case :
I tell people that if I’m whining, it’s bad.
2024-07-12 13:54:36
2776
junedsilver
June D. Silver :
my favourite was ✨it's just in ur head✨ 7 surgeries later they figured it was, in fact, not in my head
2024-07-14 01:18:08
1227
nessa_230
NESSA_230 :
Fibromyalgia, and yes it’s the worst how they always think you want pain meds.
2024-07-12 19:22:49
721
mikkielynn
🫧Mikki🫧 :
I also love it when you discover a new "worst" and have to reevaluate your whole system.
2024-07-12 06:05:26
1882
mamasissiesays
Casey :
“Youuuuu have a medical degree?” Sooooo real 😭
2024-07-13 00:39:33
9301
manda_panda_bear3
PANDA :
I don’t have chronic illness. But I had chronic migraines. I had blurred vision, nausea which I sometimes vomited. Light sensitivity. My dr said it’s prob allergies & told me to take Claritin.🤦🏼‍♀️
2024-07-21 12:50:45
27
toomanycatssendhelp
Laura :
Throwing up and sweating and shaking from pain alone... this is almost every medical provider. Endo and EDS. This was painful to watch. Great job! 😆
2024-07-12 02:40:47
2401
sylviaburton265
sylvia burton265 :
omg yes I have fibromyalgia Doctors gaslighted all the time it's like they don't know a damn thing about chronic pain 😭🫂😮‍💨
2024-07-12 17:36:40
153
blonde_panda
Abi Acuña :
This is so true... 🥺 At this point, I have not been able to get a clear diagnosis, because this happens every time I go to the doctor, they attribute it to "possibly it is anxiety" +
2024-09-29 15:23:44
0
miss_black_cat
🪴 Miss_Black_Cat 🦥 :
I hate the 1-10 pain scale. Found a chronic pain scale that goes 1-14+ that makes so much more sense. I printed it out, laminated two copies and gave to my dr and nurse. Now I can communicate w them😅
2024-07-16 10:13:51
360
doomscroll90004
Doomscroll9000 :
I start my day with 6 ibprophan. At 6am when i wake up. And take another 6 on my break at work around 11:30am. And then...like 4 before bed. 🤕 For a normal day...
2024-10-04 16:36:23
0
jenseen.priv
jenseen.priv :
I have had a headache since 2019 no oke believes me when its at a 4 until its at 9 and i cant Go anywhere with lights on
2024-10-25 20:39:38
2
an_freya
Andy Freya :
Dysautonomia, I am always tired and sometimes I get really dizzy and I have feinted a few times. A lot of people had told I am only lazy, exaggerating and “we are all tired sometimes” 😒💢
2024-07-13 00:20:29
37
phoenixfyrefae
Phoenix :
my usual pain is 3-5, when I actually show pain it's cuz it's too bad to function and I am in a ball shaking and crying. I take Advil a lot.... I don't want pain meds. I want answers.
2024-07-12 04:36:50
1161
nightmare_wolf240
Dani :
I’ve never been diagnosed with anything, but this is my daily life, whenever I’ve told my parents about my pain and always being in pain, they have always said it’s cause I have a low pain tolerance
2024-10-29 11:50:05
0
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