Lyss | Unaesthetic Working Mom
Region: US
Friday 12 July 2024 04:37:33 GMT
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aprillynnacey :
I mean a random person watching a house renovation show warned the husband to get checked and they found cancer.
2024-07-12 17:37:01
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Goddess Poppy :
I am genuinely curious what rare disease was suspected? Would you share why someone thought that? It might help others.
2024-07-12 06:03:26
375
Saving Veda :
I'm so sorry that they went about it in the wrong way. My daughter was actually diagnosed with Sanfilippo Syndrome because a parent shared their daughter with it. I hope your little one is OK
2024-07-12 20:01:17
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Hugo :
I mean, I know you're meaning well, but literally there was a family here who got to know his son had San Filippo early thanks to a comment so...
2024-07-13 11:44:57
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Sarah Burlingame :
As a mom I’d rather someone reach out and suggest something they notice and it help my child or not be true vs not knowing.
2024-07-12 18:38:13
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Rallying for Reagan :
I’m also a mama to a child with Sanfilippo Syndrome. I am so sorry that this happened. We started sharing about Sanfilippo Syndrome to bring awareness. We are finding people are so stuck in the 1/2
2024-07-13 04:37:20
5
Rebekah Ellis :
no. see something, say something!
2024-07-12 18:46:10
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Thereoncewasablonde :
Why would people think twice about it? And why are you NOT thankful??
2024-07-12 21:31:17
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Free 💙 :
These comments. A doctor must have agreed with the suggestion if tests were ordered. Geez
2024-07-12 15:23:18
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krystal :
I instantly thought San Filippo syndrome. And I learned all about it here on TikTok
2024-07-16 00:43:47
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thatwitchthatloveswinter🍉 :
San fillipo?
2024-07-12 11:35:42
64
Samantha Parker :
If the drs aren’t giving you a hard time I’m sure it’s a valid concern
2024-07-12 19:36:43
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hthees :
I instantly knewn it as san filippo
2024-07-13 02:50:25
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Fall-out-girl :
I hope you saw a geneticist for a full examination, counseling, and targeted testing rather than just testing. I hope the results are favorable. Adorable baby btw.
2024-07-12 10:12:20
280
Kiwi :
Yeah how DARE somebody try to help??? The AUDACITY!! i completely understand the need to be left in the dark
2024-07-13 10:33:45
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mohawkins :
I wish people had mentioned that my daughter looked sick as an infant. it was hard the to see the change when we were with her everyday, they only said it after 😞
2024-07-12 21:16:58
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