@thistrippyhippie: raising awareness of a type of seizure i have i dont talk about much💗these seizures are the least problematic for me, this was filmed months ago, when for some reason, i was having 20+ of these big myoclonic seizures a day🧠thankfully, they calmed down, i have these maybe 3 times a week now, mostly in my left foot/left side. they would happen in clusters, so when one happened, i knew i could catch multiple more on video. also fun fact: this showed up on my 1st ever EEG in 2018😅 #autoimmuneepilepsy #myoclonicseizure #seizureawareness #autoimmuneencephalitis #braininflammation #awareness #seizurewarrior #bartonella

thistrippyhippie
thistrippyhippie
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Monday 15 July 2024 21:59:04 GMT
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yasminereda563
ow :
how can you differentiate myclonic seizures from motor tics?
2024-07-15 23:31:13
172
cottage.capricorn
Maj 🦖 :
I also have myoclonic seizures. I’m so sorry Evie they are more of nuisance than anything 🫂
2024-07-15 22:06:19
224
courtneylynni8
☠️💜PuNkLuSh💜☠️ :
I twitch constantly, could that mean I am having lol seizures? jw. love your page and who you are!! have educated me so much. ty. ❤️❤️❤️
2024-07-23 01:45:43
0
clarissaswymer
Clarissa :
This is what happens to me but the nurse practitioner at the neurologist said it’s just stress and anxiety
2024-08-14 21:29:30
1
hollyannmaria
Holly Ann Maria🌻 :
I actually have these a lot and never realised they had a name, I have like 2/3 at a time and then it goes away for a while it’s weird xxx
2024-07-15 22:37:03
8
mypanslife
kam🐼🌿♡ :
Do you get an aura before myoclonic seizures? 💚
2024-07-15 22:57:16
43
unitatoo_o420
Jaiden Maria Sanchez :
whoa. ok so ik you probably get asked questions a lot. I've asked my neurologist a MILLION times about it but they always avoid or just forget about it.
2024-07-21 06:45:44
2
elizabethinautum
elizabethinautum :
Where did you get those overalls? ❤️
2024-09-18 21:07:22
0
hlwatson61
🌻~Hallie61~🌻 :
I have (JME= juvenile myoclonic epilepsy) and have a family that doesn’t really pay attention to me so in the mornings as I would try brushing my hair I would throw it out of nowhere so frustrating..
2024-07-24 03:55:39
8
user371639561
ᝯׁhׁׅ֮ꫀׁׅܻᥣׁׅ֪꯱ׁׅ֒ꫀׁׅܻɑׁׅ֮ :
I know this video is old, but I had gotten diagnosed with epilepsy 5 years ago. I lived with symptoms my entire life, including these. Your videos have been so incredibly helpful with identifying seizures. I usually have myoclonic jerks right before big seizures, these are more annoying than anything. Thank you so much for sharing 💗
2025-06-16 05:20:04
1
tashabetweenthechapters
Natasha Louise Deane :
You're so pretty
2024-07-16 16:32:26
5
ashleyinsanity
Jewel :
My dad has epilepsy and had myoclonic jerks a lot when I was little. We would give him sippy cups when it was bad. He actually dropped me when I was a baby due to a strong one. 😅
2024-07-16 04:35:58
6
kentuckybeebaw72
kentuckybeebaw72 :
my daughter who is 25 now started having myoclonic perks at 12. some were mild, most were rough. they always lead into a tonic clonic. prayers for you sweet lady ❤️
2024-07-16 00:27:30
4
_mixalhsm1ltos_
🖤🖤Mixalhsm1ltos🖤🖤 :
i have tremors ... hands ... legs.... and head .... I also have migraines.
2025-08-16 20:37:12
1
han_shine_
sara :
How do you know whether it's a tic or a myoclonic seizure?
2025-04-11 12:29:46
0
chronically_me0
hailey :
they give me such a big shock when they happen to me, sometimes when it’s a bad one i get that falling feeling like in a dream and it terrifies me in the moment
2024-07-16 00:01:26
47
mentallyunstitched
mentallyunstitched :
You are amazing 🥰❤️keep raising awareness
2024-07-16 07:29:07
9
robbiethebee
𝘣𝘦𝘦 ᖭི༏ᖫྀ :
you are such a freaking fighter evie.
2024-07-15 22:07:01
57
quinnofbritain
QuinnofBritain :
Sometimes I wonder if I should like these because I’m saying they’re good but it means I support you going through it
2024-07-20 04:30:08
7
twentytoseven
twentytoseven :
Yesterday's myoclonic seizure had me throwing an entire pot of boiling coffee all over my stomach and legs 😭 mine usually come in clusters too
2025-05-04 17:24:26
0
plt_blogtv
LIMPOPOTV📺❤️🌚 :
Stay strong 💪❤️
2024-07-15 22:13:16
0
cindy66374
Cindy :
my little one has these hes not verbal they cluster alot do they hurt?
2025-03-20 16:56:12
0
mariachristinacordero
Maria Christina Cord :
My doctor said after taking my meds I’ll shown signs of Tourette’s and I get embarrassed but u make everything better
2024-07-18 21:06:28
17
juliecsnow64
JCSnow64 :
Thank you for willingness to share what you go through. My heart hurts for you. Send you so much love
2024-07-16 16:37:43
7
willig42
Willig :
but you look beautiful though
2024-07-16 03:34:23
0
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