Dr Ahmed
Region: GB
Wednesday 31 July 2024 12:48:56 GMT
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Natasha Via87 :
I live in the US and have fibromyalgia. The problem is having doctors believe you. Thank you for your information
2024-08-01 00:42:37
3030
carmel_estelle_ :
Or there is being told you have it and left to rot which is what’s happened to me 😐
2024-07-31 13:35:03
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💜Louise💜 :
Doctors actually acknowledging it exists is an achievement regardless of possible treatments for it in my opinion
2024-07-31 17:14:40
2102
Claire Louise Crawfo :
Well fibromyalgia is linked with Hashi motos disease which is an autoimmune issue. So this makes sense!
2024-07-31 22:03:53
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Amena Meraki :
I've always treated my Fibromyalgia as an autoimmune disease whether my doctor's did or not - It makes sense. I think it will be years before any effective treatments are adopted.
2024-08-02 23:29:08
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Wren ✨They/Them✨ :
I have both fibromyalgia and hypermobile ehlers danlos syndrome. It’s hell. It took me moving 2,000 miles away to be believed and get treatment for my pain.
2024-08-01 19:31:58
493
DeeDee Angel :
It’s 1 of the worst things to be diagnosed with. As most drs will not investigate new symptoms & will automatically say it’s down to the fibromyalgia. This is what a pain management nurse told me. Pregabalin & gabapentin do NOT help. They don’t stop pain. They numb the mind & act more as a sedation, causing more side effects & symptoms.
2024-08-01 15:14:03
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rachelsmoak :
the issue I've had for years is getting friends,family, doctors, and the federal government to understand that my fibromyalgia is a disability and I'm not capable of working a "normal" job
2024-08-01 22:10:10
330
sandee b :
my life has been totally ruined by fibromyalgia for 20yrs. what id give for cure...x
2024-07-31 21:16:20
323
carleenaronamaria :
I’ve always suspected autoimmune. I eagerly await new treatments, unfortunately I don’t think I’ll see it in my life. Diagnosed in ‘94, no one believed it real back then
2024-08-01 00:49:36
314
clareelizabethhod :
Those of us that suffered already knew this. X
2024-07-31 20:34:25
253
Karen Hutt Pet Portraits :
I feel very sorry for the mice, being a sufferer myself
2024-07-31 16:15:56
195
siobann walshe :
if u have one auto immune you tend to have others as well
2024-07-31 13:04:48
185
7766 :
I was diagnosed with adhd at 51 have fibromyalgia very highly correlated in adhd >45%
2024-07-31 13:23:12
165
MrsTJEd :
GP told me it was “dustbin diagnosis” and rheumatologist gave me a leaflet. Spent 20 years of my life in constant pain, with very little quality of life.
2024-07-31 13:31:44
139
Jude Bird :
I just wish I could get a definite diagnosis as it’s just a ‘maybe you have fibromyalgia’.
2024-07-31 14:01:53
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Hippy_memaw :
I'd like to see a study of fibro and Hypermobility EDS crossover. So tired of being treated like a crazy person
2024-08-01 14:08:05
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Gabriel :
Waited months for my pain clinic appointment suffered with severe pain for years now lost my job… was given a website link from the pain clinic that’s it 😭
2024-07-31 13:40:58
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Jen :
I’ve had fibromyalgia for 15 years. I have explained 1000 times that cold and heat can set off an attack of pain yet people tell me to treat with cold and heat… it’s so frustrating!
2024-08-02 16:55:18
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Neurospicy_dushnila :
Wasn’t fibromyalgia connected to MCAS? Cuz it seems like sensitive/neurodivergent nervous system can trigger MCAS and fibromyalgia as result.
2024-08-02 21:40:58
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Ezrora :
me 🧍🏻♀️who always suspected it was auto immune that could possibly by triggered as a result of an injury or some sort of trauma or other illness. but I'm just a girl with no proof
2024-08-01 17:48:08
70
SPG11 Momma :
I just want my life back and not to be treated like I’m insane
2024-07-31 21:01:01
70
🪴Sarah butterflys🦥 :
I was told by my doctors at hospital that it due to past trauma💕
2024-07-31 12:52:38
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MadMummaZo :
I was diagnosed in 2018, I’ve got worse with even a short walk being too much I’m in agony after. My symptoms make me think it could be MS but the Dr won’t do anything.
2024-07-31 15:26:58
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