Kirsten🏳️🌈
Region: US
Saturday 17 August 2024 22:24:26 GMT
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JennWHATSgoingON?! :
Literally…we think we are cured until we aren’t
2024-08-17 22:35:54
162
Chronically Me :
The unpredictability is the literal worst thing about having POTS for me!
2024-08-17 23:21:44
73
phoenix 🦄💗✨ :
the unpredictability is making it so hard to get diagnosed for me 🥲
2024-09-09 22:59:27
0
Lise <3 :
me yesterday vs today
2024-08-20 22:23:38
0
🦋elsa🦋 :
my bf and i going to the zoo later so we made sure i got enough rest and then being there for maybe 45 minutes before i was so flared and crying that the employees and random people were asking if-
2024-08-19 15:57:42
0
Jennah Joan :
I feel this so much. I spent an entire weekend walking around DC, was feeling great, then like two days later I couldn't even walk up my steps.
2024-08-19 02:40:05
3
Tara Chandler :
I already am a full time wheelchair user (from birth) my late 30’s decided “ooo POTS would be fun to add on top of everything else! Transferring too quickly will make my bp drop to the 60s
2024-08-18 18:56:39
6
kiwi 🥝 :
the sobbing while saying you love having pots is so real😭
2024-08-17 23:37:50
5
CIRALFOX :
I went to the gap store for 20mins and almost fainted in the store. 🙄
2024-08-17 23:19:30
7
louephia :
Some days I can workout and my heart rate is stable and then sometimes I turn in bed and almost faint
2024-08-18 10:53:16
2
person 42813 :
I have been dizzy for days and migraines on and off. meclizine doesn't help the dizziness at all. it's rare the migraine Rx will even help.
2024-08-18 00:14:15
1
Terrell :
that sucks 😞 I'm glad you at least got to enjoy yourself without it for 1 day❤️
2024-10-27 11:22:44
0
Kristina :
So on point 😬
2024-09-04 19:30:51
0
alena :
POTS is a fickle bitch smh
2024-08-21 19:13:13
0
🖤𝓩𝓸𝓮𝔂🖤 :
I love how one day I’m fine and then next NOPE
2024-08-20 22:25:32
0
user3910374111408 :
this is sooooo accurate...I'm gonna start sending this to people when they ask how I'm doing 😂
2024-08-21 18:59:33
0
d20z00 :
were you dehydrated when the head throbbing was happening? asking only because I usually overdo it the day before and don't keep up on the water I need and then have a flare when I try to do things
2024-08-28 20:04:56
0
Juliane :
Everyday a surprise 😣
2024-08-19 14:53:55
0
Brianna Byrne :
I'm on day 4 no tachycardia episodes and no flare ups. currently waiting for the other shoe to drop.. 😢
2024-08-20 22:31:16
0
HealingJourney :
I’m 40 and I would love to tell I this getting easier or better but yep still happens even trying to take it easy the days before
2024-08-20 12:49:59
0
Tiffany :
Right?! It's so hard to know when it's too much. It's such a delayed response sometimes. I just want to be normal but I have to be cautious and it's hard!
2024-08-19 23:44:45
0
Steph :
Yesterday I was totally fine! This morning I woke up fully weak and unfunctional. Whole day ruined.
2024-08-20 23:21:41
0
karington95 :
felt. earlier this week I had a couple days where I felt fine. today has me back in bed 🙃
2024-08-18 18:06:57
0
QueenBeeLife :
The splitting headaches are killing me lately. I used to never get headaches. Now it’s constant!!! What is that about?!?!!
2024-08-18 22:49:21
0
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