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@._.f3: اكثر منشد تسمع له#الوليد_ال_عامر#شيلات #اكسبلورexplore #اكسبلور #tiktok #youtube #explore

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Friday 06 September 2024 21:24:26 GMT
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Our precious baby girl, Lebone, was diagnosed with Trisomy 18 (Edwards Syndrome) after birth. Trisomy 18, is a genetic disorder that brings challenges affecting various parts of the body and causes developmental delays/limitations. While it’s considered a “life-limiting” condition, we’ve chosen to embrace every moment of this journey knowing that God is at the centre. During pregnancy, we opted not to undergo genetic testing. For us, termination was never an option, and we wanted to cherish the journey without unnecessary worries. We firmly believe in the sanctity of life and that each child is crafted by a loving Creator with a purpose. Learning about Lebone’s diagnosis filled us with a lot fear. We were utterly heartbroken. The doctors painted a bleak picture, warning us not to expect much and preparing us for the worst. The possibility of losing our baby shook us to our core. Yet, Lebone has shown incredible strength. Despite spending 45 days in the NICU, she’s now home where she belongs. Her sisters adore her, and our hearts overflow with love for her. This journey has taught us to trust in the Lord’s plan, knowing that He has good intentions for us and for Lebone. In the midst of uncertainty, we’ve witnessed God’s guiding hand and find solace in the belief that He’s writing our story, and it will be beautiful. #trisomy18 #edwardssyndrome #trisomy18awareness
Our precious baby girl, Lebone, was diagnosed with Trisomy 18 (Edwards Syndrome) after birth. Trisomy 18, is a genetic disorder that brings challenges affecting various parts of the body and causes developmental delays/limitations. While it’s considered a “life-limiting” condition, we’ve chosen to embrace every moment of this journey knowing that God is at the centre. During pregnancy, we opted not to undergo genetic testing. For us, termination was never an option, and we wanted to cherish the journey without unnecessary worries. We firmly believe in the sanctity of life and that each child is crafted by a loving Creator with a purpose. Learning about Lebone’s diagnosis filled us with a lot fear. We were utterly heartbroken. The doctors painted a bleak picture, warning us not to expect much and preparing us for the worst. The possibility of losing our baby shook us to our core. Yet, Lebone has shown incredible strength. Despite spending 45 days in the NICU, she’s now home where she belongs. Her sisters adore her, and our hearts overflow with love for her. This journey has taught us to trust in the Lord’s plan, knowing that He has good intentions for us and for Lebone. In the midst of uncertainty, we’ve witnessed God’s guiding hand and find solace in the belief that He’s writing our story, and it will be beautiful. #trisomy18 #edwardssyndrome #trisomy18awareness
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