@getburly: 🗣️🗣️🗣️ #truestory

GetBurly
GetBurly
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Region: US
Tuesday 10 September 2024 13:42:45 GMT
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julieg555
julieg555 :
In CO you can’t get on the waitlist until the kiddo is 14. It artificially shrinks the waitlist.
2024-09-23 03:26:26
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rosanellymendez
Rosa Nelly :
My son was on the waitlist for feeding therapy for 2 years. Finally getting the therapy next week.
2024-09-10 17:11:41
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gretelroxystar
Raising Sydney :
And most group homes and inpatient center in red states are HORRIBLE. Low pay and very high turnover around rate causes abuse and neglect. Especially if it’s a for profit center or “home”
2024-09-10 15:01:06
5
sevenseis7
Seven :
My son was put on the waiting list for two years I just got the call yesterday to get his first appointment to get the evaluation. It took 4 years to get my youngest diagnosed this year in July
2024-09-10 14:15:48
4
karissa2012
Karissa 🛸 :
My non verbal son’s insurance has denied each claim from occupational and speech therapy and said it was because we used all of our therapy up for the year. 🤦🏼‍♀️they’ve never paid for any session
2024-09-10 14:03:44
4
boymamabearx3
Jenn :
Oh and then when you want to get certain services they require a new diagnosis from one of their approved phycologists. We’re like number 800 on waiting list for idd waiver in wv
2024-09-10 13:46:58
4
viccttoorriiaaaa___
Victoria :
You’re doing amazing and they can all f off:)
2024-09-10 13:46:52
4
running4robbie
Running4Robbie :
It’s sad and it’s true. Waitlists are years long for services but if you want a pew pew - cash & carry
2024-09-10 21:05:04
2
jennifersmith2454
jennifer smith245 :
for my son it took 2 years for a diagnosis, then early intervention started March 2020 so he had no in person speech until school and that was only 15 min a week. its insane
2024-09-10 20:40:20
2
fallenalice18
Alice18 :
The services also are entry-level positions most of the time for things like ABA therapy so you’re getting a 20-year-old who has no idea about your child running these programs with them.
2024-09-10 15:18:49
2
lovelivesave
Mandy - Couponing Coach :
We have been waiting 4 years now… still no diagnosis
2024-09-10 15:02:32
2
sabrenmhl
Sabren :
I don’t know why more young doctors aren’t moving into the field! We live in a huge city and we have like 1 developmental pediatrician and he’s ancient and out dated with his methods
2024-09-10 14:52:18
2
emmiemommabear
Emmymommabear :
Curious question. Since it’s a 15 year waitlist what age do you begin that process? Like when they’re 10? It must be so hard
2024-09-10 14:47:50
2
keelyshaaay
Keely ❤️‍🔥 :
😭 it’s so ass backwards
2024-09-10 14:36:08
2
ica_mon7
Monica C. :
We got the call in July for them to have the initial meeting. They said they'll reach out to us in 2 months for the secondary setup for eval. Mind you I placed him on the list back in October
2024-09-10 14:32:50
2
bnhogan17
Brittney :
It’s so fun, a real blasty blast!
2024-09-10 14:17:47
2
gabriellemconnelly
Gabrielle Connelly :
Never tired 😭
2024-09-10 14:00:08
2
iamsam_3
iamsam :
The most frustrating waiting game! Took 2.5 years to get my boys their diagnosis and into aba. And the whole time you have guilt like you’re not doing enough but literally all you can do is wait
2024-09-10 13:57:37
2
bubbajennyscottwill
Jenny, Scott, Will, and Bubba :
Thank you! Will was diagnosed at 13! No aba for his PICA! Just got into the children’s program at 17 years of age! Just in time to get gardenship ughhhhhh I feeeeeeeeeel you!
2024-09-10 13:50:52
2
skylarsvoice22
Brooke :
My son was 4 before he got diagnosed because of Covid backlog . Luckily I advocated early before his diagnosis to get speech and OT instead of waiting for his diagnosis
2024-09-10 20:25:16
1
as_told_by_a_ginger
Kensea :
@DeeziMarie this is what i was screaming and crying about 😭 its so fucked up
2024-09-10 19:20:58
1
elledw1020
elle :
People have no idea. The supports aren’t available like people think they are
2024-09-10 14:39:42
1
kaylabee1995
Kayla Weissler :
Yes maam 👏🏼 keep telling them. They can fuck right off 👋👋
2024-09-10 14:27:22
1
arauraallen0608
💜✨MommaLynn✨💜 :
I looove you!! But I gotta go bc I'm on the way to pick up Zahra at school bc she won't stop hitting herself. What's wrong you say, who knows, it's guessing time. So much fun!!
2024-09-10 14:01:21
1
crystaleeheath
Crystal Heath :
Love you Boo you are doing the best with what you are given for help 🥰 please continue to call out and educate these people
2024-09-10 13:52:14
1
serena.haller
Serena Haller :
Slayy mama! My sister is disabled and we just now started getting government assistance for her…. She’s 21. 💀
2024-09-10 13:48:43
1
a.mills1641
Raising Kane F.O.E :
LOUDER FOR THE PEOPLE IN THE BACK 👏👏👏
2024-09-10 13:48:14
1
sharons546
sharons :
I work at SafeHaven farms in Middletown Ohio
2024-10-18 02:01:04
0
believe_28strong
Bri :
👏👏👏👏👏👏👏👏
2024-10-06 00:59:10
0
ktlawbender
Just Katie :
Get on the waitlist for social security disability too. That wait list is 10+ years as well. Especially if you have a child that will not be able to live on their own or work.
2024-09-20 02:04:41
0
queseraserasara
QueSeraSera :
after waiting 18 months for an appt with a developmental pediatrician I got a phone call 2 weeks before the appt telling me they reviewed my daughters intake paperwork and she "isn't a good fit" 1/2
2024-09-12 23:45:18
0
lorna41377
Lorna Cotto845 :
Facts!!!
2024-09-12 21:49:35
0
_kittycat_65
_KittyCat_65 :
Heavvvyyy on the last line 😅👏🏼🙏🏼
2024-09-12 19:15:53
0
mrshermance
Andrea Hermance :
Preach it!! As a mom with an autistic son AND an elementary teacher, I tell parents ALL THE TIME to call NOW for appointments even if they aren’t sure about the process yet or it’s impossible
2024-09-12 03:03:03
0
sarashay5
💙Sarashay💙🇵🇸 :
I feel so blessed to live in Colorado. I get paid to be my autistic son’s caregiver (took 3 months). I have never waited more than 3 months for any evaluation or appointment for anything and 100%…
2024-09-12 01:17:49
0
shannonlenox
Shannon Lenox :
Texas Children in Houston just laid off over 1400 therapists!!! My granddaughter lost all of her therapy, OT and PT. People who don’t have a disabled children have no clue what we go through.
2024-09-12 00:23:13
0
ivansmama2817
IvansMama2817 :
Here in California we have the Regional Center System that helps with a lot of this issues you are dealing with. Might be worth considering a move?
2024-09-11 23:25:21
0
chelsea_medicalmom
Chelsea 🩷 :
For Down syndrome assistance they told me 15 years for medical assistance voucher and 18 years for living assistance after 18 so I needed to apply at birth so maybe he could get assistance
2024-09-11 21:19:03
0
biancamartinez175
Bianca Martinez :
I wish the make things like that easier for the children and families so sad to hear that definitely comparing to gun which sadly true but still sad
2024-09-11 12:19:23
0
brandichristian1
Brandi Christian :
i love you. so true and Rae 🥰🥰 I am a sped teacher and it is awful what the parents go thru. I do what I can to help
2024-09-11 11:44:38
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bee.u.be.free
🌟BE.U.BE.FREE🌟 :
🥰🥰🥰
2024-09-11 11:25:44
0
raeannraeann
abc82278 :
Can we just take a moment to appreciate how you ended the video ❤️I honestly love it.
2024-09-11 07:52:23
0
spicyspaghettiyo
Lou. :
And don’t forget (at least where I live) you need both a medical AND educational diagnosis
2024-09-11 03:12:21
0
erinlkennedy
Erin Barnes :
My son is almost 11 and we’ve been on 10 different waiting lists for ABA therapy for 6 years now!
2024-09-11 02:21:20
0
pattyrollins817
pattiecakes3 :
I MISS SENDING STADLER
2024-09-11 01:25:25
0
mo_brown21
Morgan :
I hope you know how many people love you and your family!!!! I am so sorry there are so many 🍆 out here in 2024. I'm also so sorry that doctors and insurance suck 🍆 also!!!!!!
2024-09-11 01:18:19
0
sarahmacwright
Sarah :
Say it louder for the people in the back!!! 👏👏👏
2024-09-11 00:29:18
0
bianchi338
bianchi338 :
Omfg 🤬 the struggle we face everyday!! & yes you are right something should be done! Love you getburly you are the one who gets me thru the rough days
2024-09-10 23:55:14
0
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