@ellianas_journey: Enrolling my newborn baby into hospice care is NOT the way i imagined things would go after her birth. I will make sure the time she has here on this earth are full of love. #cureEb #EBawareness #butterflychildren

ellianarose6
ellianarose6
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Region: US
Wednesday 02 October 2024 19:14:25 GMT
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badazzmamaof4
💜Úr ñx† M阮åkê 💜 :
my baby was on hospice when leaving the hospital made it 9 days. 💜💜💜
2024-10-04 05:55:29
309
thaternurse
ThatERnurse :
I know people who are on their 30s currently with this and thriving.
2024-10-04 02:58:35
40
na181071
rodelwilliams6 :
What is eb?
2024-10-03 21:02:07
9
katie_momof4
Katelin :
I so wish there was better research/treatment for these beautiful babies 💔 Praying for comfort and the advancement of of treatment towards a cure❤️
2024-10-04 13:29:28
248
sassrivs
Winston's World :
EB is so terrible. I'm so sorry you have to go through this. She will only ever know love🥰 I've had patients with EB. Strongest tiny humans I've ever know 🥰💜
2024-10-04 03:19:58
16
delskel
Askel :
All she has ever known is love. No cruelty.
2024-10-04 20:57:07
215
stephanie_casados
Stephanie Casados :
No, they shouldn't my daughter came home from hospice, and its been so hard not knowing what to expect. Prayers your way ❤️🙏
2024-10-04 03:43:54
39
smichele0507
S Michele :
I teach a 7th grader with EB. I pray your sweet one has many more wonderful days and years to come. ♥️
2024-10-05 22:40:30
3
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