ellianarose6
Region: US
Sunday 06 October 2024 19:51:19 GMT
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Judy0677 :
My son passed away from this. He was 4 and half months old. 2003
2025-04-08 21:06:43
380
MatataPotatOE :
My youngest daughter passed away from this. She was only 5 months old.
2025-04-03 05:29:32
602
Annistyn thoms :
I hate the fact that people can die so young and it breaks my heart for everyone who has lost a young one
2025-04-07 06:02:31
75
Kayla Singer :
Did you get genetic testing? Was this disease tested for when you were pregnant?
2025-02-21 03:47:01
41
Dee :
This makes me so angry….that a teeny baby has to suffer like this. You’re amazing. Love and prayers.
2025-02-12 21:43:25
604
Bree ❤️ :
I’m a nicu nurse and I had twins that had this. They had the simplex version and we used aquaphor on their skin when touching them. I will be praying for your family and daughter ❤️🩹
2024-10-10 02:26:01
167
inhonorofchappy :
My friends son has this. They moved from Utah to Colorado for better services. He is doing really well.
2024-10-07 06:59:09
228
ritabaxter4 :
I am so sorry for your loss!! I had never heard of this disease. Thank you for sharing, & getting the word out there for people to learn, & maybe find a cure someday.Thought& prayers ❤️🩹
2025-04-09 02:40:00
30
bien.xingona :
I was about to comment that sounds extremely painful, then you confirmed it and my heart broke, I’m so sorry she’s having to endure that 🥺💔
2024-10-08 02:25:59
497
Mary :
Nurse here, I’ve never heard of it. It sounds excruciatingly painful. Prayers to your family 🙏🏼🫶
2024-10-08 06:50:04
73
charmaine♐ :
Because of you and Elliana, I was made aware of EB. I am from the Philippines. My prayers and thoughts go out to your family. Elliana had the best family and life with you. ❤️
2025-04-09 13:33:37
65
Loserboi :
Thank you for taking time out of your busy day to educate us and I’m sorry about your precious baby 🫶🏼
2024-10-09 17:04:16
65
marissa1022 :
I would take her pain in a second 🥺 this is so not fair. Poor baby 😩
2025-03-15 00:00:56
38
Lilibet :
I will share your daughter’s plight with others. I am truly sorry that this has happened to your family.
2024-10-06 22:56:54
35
Tiffany warren :
Thank you for the explanation and the education on this disease
2025-04-01 06:29:12
63
Karely🦋🍀 :
Dios tiene la última palabra 🙏❤️✨
2025-02-07 05:59:23
15
inz :
😞 I’m so sorry, Ellie is so beautiful and precious.
2025-04-07 12:40:43
0
Gal :
God bless her 🙏
2024-12-25 20:59:52
6
🦋F :
قادر الله يشفيها ويعافيها لكك. يارب. 😭🥺
2025-01-26 01:52:51
5
Mom2some :
what do they allow her for pain? please don't tell me they said 'sugar water' or i will cry (some more)
2025-04-06 15:14:00
8
Nena :
No existe nada imposible para Dios, y Elli va a ser sana, Dios lo hará en el nombre de su hijo Jesucristo Amén Amén y Amén 🙏🙏🙏
2025-03-08 18:13:08
6
The Financial Informant :
poor baby thanks for sharing
2024-10-09 21:31:06
5
Meg D🇺🇸 :
i just ran across you today, i have never heard of this, i have scrolled a ton of your videos and she is just precious🥰 my heart hurts for her and your fam🥺 🙏
2025-02-08 18:06:59
7
🌹 Rose :
So sorry, she is so precious. You guys are such great parents. Your other daughter seems so aware of the fact that Elianarose is sick. Thank you for sharing. Prayers your way.❤️🙏🙏🙏
2024-11-11 12:32:55
6
Aunt Zelle :
My heart goes out to you and your husband. I pray that she does not suffer. I’m sure she benefits from all the
2024-11-11 17:31:04
10
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