@raising.remi.on.o2: Getting ready for bed with our strong NEHI warrior 💪🏻👶🏻🫁and doctor mom👩🏻⚕️. Every night means prepping oxygen, G-tube supplies, and more. #NEHI #MedicalMom #NightRoutine #MomLife #RareDisease #DoctorMom #OxygenBaby #GtubeBaby #Gtube
If the gtube is not leaking, I would recommend not putting anything around it, just aquaphor
2024-10-23 04:01:40
0
Kelly Donley :
She is precious! You look like a great mom. Prayers for Remi!
2024-10-07 02:34:38
4
Education and Training. :
God bless baby and her amazing parents. In my prayers.
2026-09-05 07:34:36
0
Oxygen Mommy :
Precious sweet baby. And parents 🙏🏻❤️
2024-10-07 00:46:01
7
wildone027 :
Remi you are braver and have more courage than most adults I know
2024-10-08 20:21:17
4
Paqui :
Prayers 🙏🙏🙏
2025-12-19 02:21:07
0
70musicjunkieLisa :
Do you elevate her matress at all, l know as a severe asthmatic (no where close to what she has) it always makes it easier to breathe when torso is elevated 🥰
2025-04-11 22:45:31
0
Ang :
She is absolutely beautiful! I pray she overcomes this
2025-04-15 20:35:34
0
Nanaofdaffy :
May the Lord bless this little one with long, spiritual healthy life in Jesus name amen. 🙏🙏🙏🙏
2024-10-26 04:04:47
2
BigManny4 :
Stay Strong 💪 my friend ! 🙏🙏🙏❤️🩹
2024-10-23 08:11:13
0
Elle ✨ :
Resilient baby and parents! 🥰
2024-12-01 06:15:23
0
Krisyridgebackobsessed :
Is there a cure? She is absolutely beautiful ❤️
2024-10-17 04:14:35
1
Alabama :
Parents are so lucky to have such a beautiful daughter
2025-05-06 04:35:32
0
Jainne Groves :
I think she is the most beautiful child ive ever seen ,🌹🌹🌹so blessed with amazing parents 🌹🌹🌹feel better soon little one 🌹🌹🌹
2024-10-10 01:48:57
3
Oxygen Mommy :
😢😢😢 crying…
2024-10-09 03:03:31
1
Ruth Curran :
🙏🙏🙏
2025-11-25 22:58:09
1
showingthoughtmyeyes :
🙏🏻🙏🏻🙏🏻
2024-10-07 02:05:56
2
nathaliejourdain8 :
😂😂😂
2024-10-09 05:13:03
1
reesa_kay :
🥰🥰🥰💖🙏
2024-10-07 04:30:04
2
dyyv9vfobnnp :
😁😁😁
2024-10-09 04:48:00
1
user5231792307965 :
🙏🥰
2024-10-07 01:12:21
2
Cheryl :
😢😢😢
2025-12-11 03:07:18
0
Sunee Ruel :
😁
2026-01-09 03:59:31
0
Elaine Nkosi 🇿🇦 :
🤣
2025-09-07 12:21:36
0
Melinda Crutchfield :
🙏
2024-10-13 14:40:38
0
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