Antonia
Region: US
Saturday 26 October 2024 21:59:17 GMT
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Bets :
WAIT I HAVE THIS but I over hydrate cause of my POTS so
2024-10-27 01:39:05
1
Ken :
I call it peg leg when my whole leg goes numb due to my pots lol
2024-10-27 05:45:08
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Linds :
I get 'the tinglies' when an MCAS reaction is starting in my gut 😅😭
2024-10-26 22:58:32
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hauntedpoptart :
I have a specific symptom combo that I refer to as feeling “barftacular”
2024-10-26 22:50:23
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Emily Carrigan :
idk if this counts, but my heds here, and i call my leg cracking in the morning as a gravel driveway 😂
2024-10-26 22:45:29
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Abigayle :
I’ve always called this capri sun 😂😂😂 it feels like liquid sloshing in a bag so my brain latches onto capri sun when I was like 7
2024-10-27 02:57:57
2
Magick Mom :
I was diagnosed with hEDS initially in ‘03, so my PT & I had very few answers when we began. We ended up w a whole new language for the weird things my body did- mostly onomatopoeia. 😂
2024-10-26 23:20:25
2
Jo ✨ :
I really need to start naming my symptoms something fun. It would make them so much more bearable.
2024-10-26 23:10:20
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brittanywikkimson :
visit@Dr Ekpen
2024-10-31 10:23:19
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brittanywikkimson :
contact@Dr Ekpen
2024-10-31 10:23:09
1
orangejuice123 :
That hairstyle look so cute! ☺️Have you still used te cpap machine at night?
2024-10-28 21:47:34
1
Charissa :
Haha my friend and I made a list to describe all the different types of fatigue we experience 🤣🤣
2024-10-27 05:44:53
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Bekka Luiten :
I don’t have EDS (but I do have other random stuff) and I know EXACTLY what she is talking about 😂
2024-10-27 03:27:28
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morgan went where :
heyyyy gerd girlie here & i absolutely have slushy gut. i knew exactly what you meant before you described it.
2024-10-26 23:11:12
1
Maux :
… I did experience slushy gut when I was extremely underweight and having trouble eating enough. I had C. diff around then, but I wouldn’t jump to that conclusion
2024-10-26 23:04:22
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Brandmanager_Eirlina :
@Antonia Hey! It looks like I can’t send you a message. Could you drop me a quick text? I’ve got an exciting opportunity that I’m sure you’ll love! 💬
2024-11-13 11:13:57
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