@moonlit_kit: It can be tough when you’re chronically ill and constantly receiving unsolicited advice. It can start to feel like the people around you don’t think you’re trying hard enough. For a lot of us, there is no mystery miracle cure all. We didn’t have a choice in this and it isn’t due to some personal or moral failings. It’s literally just bodies being whack sometimes and that’s okay 🫶 #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #chronicallyill #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #pots #potssyndrome #potsawareness #dysautonomia #dysautonomiaawareness #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
It makes me feel like they think I’m not trying hard enough to get better. When in reality their unsolicited advice is something I’ve already tried multiple times.
2024-11-05 02:52:24
272
Canadiamaple :
I got told to only eat organic blueberries or do coffee enemas for my thyroid cancer once… said no thanks i prefer my coffee orally (i was at work in retail)
2024-11-05 00:08:56
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Just Dani :
💯💯💯 It took forever for drs to figure out what was wrong because my test kept coming back normal. I've done a ton of research, the 3 main things that keep appearing are stress, 🪱, & mold. 🤷🏻♀️
2025-03-14 20:50:05
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Ashley Ann :
Even my immediate family question me. “Are you eating? Are you taking your meds? Drinking water? Vitamins?” LIKE YES AND IM STILL SICK!! It’s not a cold, it’s CHRONIC.
2024-11-05 08:16:37
185
𝘼𝙡𝙚𝙭🤠 :
you're probably gonna get annoyed with all my comments but thank you. thank you for validating me. I get this type of advice from my own mother. everything's my fault bc I eat junk and don't exercise.
2024-11-11 23:52:32
4
Doomsday Discotheque :
Makes it hard not to hope they know how it feels someday
2024-11-05 03:11:14
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Brenna Coleman :
I am having such a hard time right now..last few weeks just feel so hope/helpless. no one voluntarily checked on me today.. my dad did but I started the convo.. I am in so much pain I don't know how much more of this I can suffer through
2025-01-25 11:20:45
0
ghxstland🐷 :
My husband doesn’t understand why I get so upset when he tells me I “just need to change my lifestyle” like no honey, it’s not that easy. Please stop saying it every single day. It hurts
2024-11-05 16:23:31
20
🐦🔥DaletheZebracorn🦓 :
It hurts!
2024-11-05 11:24:31
1
Maddie 🎀🦓🧸 :
Clock itttt!!! I was a child prodigy metal drummer & straight A student w perfect attendance. Now I’m bedbound and my spinal cord made my autoimmune disorders become an issue.
2024-11-05 15:25:26
30
Emily Green :
I kept having these arguments eith my nan over my leg pain and tendon pings when I was younger
2024-11-05 00:08:53
1
Sammie 🇨🇦 :
I was literally a health and fitness coach, and a model and I was going to school and was eating extremely clean and workout 1-2 times a day (gym and power yoga) and then my fibro got extremely bad…
2024-11-19 02:02:55
2
Michelle.L.🇮🇪 :
I’ve been diagnosed with Chronic Pain Syndrome, they link it to post op issues but all my CPS research led me to HEDs and I have allll the signs and symptoms. Took me 20 years to get my diagnosis
2024-11-29 00:17:49
0
🐢 :
I like to tell them "oh (their advice) actually caused (a different medical issue on my list) and my doctor told me to never do that again" the look on their face is priceless 😂
2024-11-05 15:05:33
4
Abby Wilson 🎀 :
So true!
2024-11-08 14:10:45
0
spaghetti hoops :
this is literally so real, I've spent mt life doing everything "right" - eating healthy, no alcohol, no caffeine, no smoking or dr0gs, always get enough sleep, did lots of sports, perfect student /1
2024-11-06 00:29:37
6
cowboylikethemm :
Off topic but what does ”to a T” mean? 😅 I’ve heard it many times and think I get it but I don’t really know where it comes from…
2024-11-05 19:32:27
2
Evertato ྀིྀི :
And the fact is they say it so confidently,as if they live that reality. Thats what angers me about this. Thanks for sharing your story!
2024-11-05 16:37:21
1
Ren :
Yes! Like…yoga is not going to make my connective tissue function better. Drinking water will not make my joints suddenly fall in line.
2024-11-05 13:47:43
38
Melk :
As someone with chronic illness, I feel this a lot. Humanity wants to internally think that people get sick/suffer because of something they did wrong in order to make them feel in control and not…
2024-11-05 15:45:58
6
JudeBarton🆘 :
I was a multi sport athlete as a teen. Was diagnosed with inappropriate sinus tachycardia in my 20’s. Guess who cant safely work out anymore
2024-11-05 06:07:17
12
Elliot :
I got told the other day that I should just " feel my body" and not worry when my heart rate lowers???
And like, I tend to faint whenever it happens so I'm pretty sure I should worry about it??
2024-11-05 15:05:22
0
Carly Julia :
I actually did all 9f those things for a while and made myself worse with increased subluxations and low salt intake 😂
2024-11-05 03:48:24
9
SirenofShmeh :
You are so so so supported. Thank you for self advocating and being unappologeticly you. You constantly inspire me. Every Day.
2024-11-05 07:16:19
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