@jays.rett.journey: Due to her current concerns, an Urgent MRI is needed but of course.. some sort of battle always pops up. Valley Childrens Hospital is scheduling urgent MRIs until August 2025, and Stanford is scheduling until March 2025! We are praying for a cancellation to pop up soon😢 We need answers. Good answers.. but to wait this long is auch a heavy weight. Now to fight some more .. 💔 #rettsyndrome #findinganswers #diagnosisjourney #jaysrettjourney #mri #valleychildrenshospital #stanfordhospital #parentsoftiktok #medicalfield #concerns #neurology #epilepsy #seizures #sudep #dystonia #harlequinsyndrome #heartbreak #battle #medicalparents #ditlwithrett #ditl #specialneeds #disabilitytiktok #trendingsound

Jay’s RETTy for a cure
Jay’s RETTy for a cure
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Region: US
Tuesday 05 November 2024 03:10:51 GMT
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bseizurefree
bseizurefree :
Can you possibly bring her to the hospital when she has a flair up to see if they can do one there? 😔 poor kiddo
2024-11-05 03:40:31
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sydneyinscrubs
Syd 🩺🤍 :
AUGUST 2025?!
2024-11-05 18:55:29
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christyheimsathdebruin
Christy Heimsath DeB :
Girl see if there are any openings in Dallas and come stay with us. Multiple children’s hospitals.
2024-11-06 01:49:08
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cherylbankstonhanratty
Epilepticgingerprincess :
Oh mama I’m so sorry 🥺
2024-11-05 22:57:51
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ambersspectrumsquad
Amber :
Love her smile
2024-11-06 04:05:15
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fortheloveofautism22
@For the love of autism :
Could you take her to the ER? Or children’s hospital ER?
2024-11-05 14:22:44
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sims_wife0903
💞Tasha.HSims💞 :
Sending the most sincerest prayers for answers for Princess Jay💜💕💜 and strength for you guys as well
2024-11-05 05:46:42
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joansilvio
Joan Silvio :
🥰🥰
2024-11-05 09:05:00
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momadventures222
Caryssa n mom(Kelly) :
Where do you live? State? Maybe we can all share your post and get someone to help get her in..... I am in agreement with No more yuck from Retts! Blood of Jesus was shed for her healing and all who
2024-11-05 05:21:30
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linseythb
Linsey 🐝 :
It’s crazy how something “urgent” is being scheduled 9 months away. Something is broken there!!! Hoping there is a cancellation and you can get Jay in sooner rather than later. Prayers for her
2024-11-05 04:00:05
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anitat1
Anita🦋💐 :
😊😊😊
2024-12-06 07:15:17
0
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