@lovecharnia: Deep in the middls of a POTS flare Convulsive Syncope can be mistaken for Seizures, which complicates how long it takes to get diagnosed. I was coming out of one episode and had this second one right after it #potssyndrome #potsawareness #convulsivesyncope #potsie #dysautonomia #POTS
I get convulsive PRE-syncope where I’m fully conscious during. I have fainted before and it’s horrible but I almost prefer syncope over pre-syncope..😭
2025-02-23 07:33:25
224
Sydney💗 :
You can have more than one form of dysautonomia.could have pots and vasovagul syncope or orthostatic hypotension. I have those 2. Got diagnosed from a TTT. Can’t see this being from pots.
2025-01-15 06:02:44
5
NancyLovesAfricans <3 :
Wait this is what happens to me! I have POTS but didn’t know it was related. Thanks for sharing it means a lot to see Black folks sharing their experiences with POTS (ignore my username and profile photo lmao). Wishing you healing <3
2025-07-18 23:43:15
10
Aerial :
Have you had testing that ruled out seizures as well? I have both and take medication for my seizures that help so much now.
2024-11-09 19:22:39
16
caitlyn :
i told my dr i straight up felt like i was going into seizures while i was fainting and he told me i was crazy. This makes me feel so much better that i am not delusional 😭😥 Im so sorry! this absolutely is awful!
2025-06-17 13:17:15
42
marthanicole6 :
Thank you so much for posting this. This can be so frustrating! This can happen at anytime. I usually feel lightheaded or sleepy before it starts.
2025-01-06 19:37:25
11
Genesis :
Does this ever happen to u in public like a grocery store
2024-11-09 21:54:02
22
kate :
Question so I got diagnosed with pots and when I stand up my head with start shaking for a good 10 seconds is that this ??
2025-11-18 18:57:27
1
njc3 :
Thank you for sharing! I have similar episodes but I never linked it to my POTS
2024-12-14 05:40:01
9
Freeze210 :
have you ever had one of these syncople episodes last a few hours? I don't know enough about pots and trying to find answers.
2024-12-13 05:42:25
2
Nick E. Smith :
Glad you are ok and managing
2024-11-23 03:41:44
1
sarahbow7272 :
These are so scary! I'm sorry you are going through this.
2025-05-08 19:46:20
0
Bri :
How long does it take you to come back?
2025-05-15 01:34:17
0
It’s me DJ. Linchi :
Girly I hate this episodes they no joke to deal w I get them everyday
2025-01-27 01:37:43
2
lismimina :
Girl, I am dying so hard 😭😂 because this is so me and I thought I was losing my mind and all of this was not real. I am so sorry you have to go through this is so draining and debilitating. It is so hard for others to understand too. I have all those symptoms, but with a little pianist tapping too for flavor. 😂
2025-05-17 19:21:41
19
Mickayla 🦁👑 :
I literally just want a group hug. because like the fact we go through this daily. girl we all need a hug. 🥺😭
2025-11-18 16:57:50
1
FireKrackerGirl | Disciple ✝️ :
Love our familys that watch over us 🥺
2025-05-29 08:17:14
0
Thisoneguyinaz :
This makes so much more sense. 💚
2025-06-19 01:40:08
0
Legacy aka Rhedd :
OK so the more I learn the more I think I have it 😭
2026-02-22 05:23:44
0
Caitlyn :
I fainted last night in my kitchen. thank God my husband was there. ❤❤ I hope you feel better
2025-10-21 12:01:40
0
stephanie :
do you get a deja vu feeling?
2026-08-16 21:38:38
0
💪🏾StrongThinker🧡I Am :
Is that what I’ve been having 😳😳
2025-06-25 16:01:59
0
Thelawofmurphy :
had these for years, stopped taking birth control and they STOPPED...
2026-04-17 06:47:53
0
To see more videos from user @lovecharnia, please go to the Tikwm
homepage.