chronicallyillandhot
Region: US
Thursday 14 November 2024 17:49:06 GMT
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Lillian Mae :
Remote jobs are the way to go!
2024-11-15 21:58:38
26
Katie_Joy_13 :
great question queen, a lot of us simply don’t 🤪
2024-11-14 21:53:15
498
lemmmonhed :
beta blockers changed my life, i still have flare ups but they are much more manageable
2024-11-15 20:50:35
72
Abby 🤍 :
Tbh I make myself so anxious before work that I just run off adrenaline and crash once I get home. I only work and lay in bed so don’t take my advice 😭
2024-11-15 13:31:58
330
Virginiasage :
I got a remote job😂
2024-11-14 19:40:56
7
Jasmine🫡 :
Lots and lots and LOTS of salt & electrolytes. Some days aren’t bad, other days I have to sit down frequently. But electrolytes are soooo important!! And get up super slow.
2024-11-15 01:36:59
103
Mads💋 | First Time Mom <3 :
i was forced to get a very low stress job and got lucky that my boss is very understanding and such a kind lady. honestly there is not a lot you can do besides salt and electrolytes and sitting down
2024-11-15 18:18:18
20
𝔞𝔲𝔡𝔯𝔦𝔞𝔫𝔞𝔟𝔞𝔫𝔞𝔫𝔞 :
the fatigue is next level. especially in heat omg. I'll lay on my heating pad to help with my DDD and pelvic issues and I literally cannot stay conscious
2024-11-15 02:16:48
48
JoJo Sasala :
Im a vet tech and i am SUFFERING, my flares are honestly just bad all the time
2024-11-15 02:30:35
10
sadie :
honestly, the type of job helps. i finally have a receptionist job that is low stress and can sit majority of my day :/
2024-11-16 13:05:03
1
Memaw2021 :
Some can’t. I’m fortunate to be well managed but I wasn’t always. POTS management isn’t just one strategy. It’s a lot of little things done consistently every day. Most aren’t even Rx.
2024-11-15 03:26:01
6
g ✮ :
im just extremely lucky to have coworkers who care. i hope every other potsie can get that someday too
2024-11-15 20:20:24
13
Rylan 🫧🩷🩹 :
I have endometriosis and suspected pots and I don’t work anymore. Between the pain in my abdomen and back and joints, with fatigue and blacking out I just don’t anymore it was physically impossible
2024-11-15 17:30:01
4
Morgan K :
desk job. I lay on the floor in my office if I'm really dizzy
2024-11-14 20:35:45
12
AJ :
I don’t 😂. They say I’m a hazard
2024-11-15 13:10:08
41
AquaticFinch's Art :
Everyone has different symptoms and different levels of support. Try not to be down on yourself ❤️
2024-11-15 02:43:30
8
Ellie :
Hybrid job, but honestly it depends on the person and their symptoms my jobs just aware I may occasionally have bad flares lol
2024-11-15 02:32:34
11
evie 🌞🥭 :
i can't work😭 disability is my only income (this is hell)
2024-11-15 18:57:51
5
emma❦ :
sounds cliche but i stay wearing compression socks, lots of salt and lots of hydration. but then i come home and crash for hours 😅
2024-11-15 15:17:59
20
Lily :
idk i’m just PRN at a nursing home so i get to pick the hours and days i want to work
2024-11-15 21:32:21
6
lyss🦊🦋🪩 :
i kinda just got used to feeling like that 24/7 😭
2024-11-16 00:08:31
7
🫠 :
I have an office job so it’s not too bad thankfully. But when I first got pots it was baddddd
2024-11-15 18:23:37
6
kbaby ❦ :
taking 1.5 or doubling my midodrine on the bad days per doctors orders, also caffeine helps my pots a little bit no idea why but i work full time
2024-11-15 21:38:42
7
Tamika Brettell :
I’m in Australia, I work 38 hours a week currently (diagnosed in March) I’ve realised I’ve been getting through it using brute force and crashing on afternoons and weekends. I’m realising very rapidly how unsustainable it’s becoming and the depression it’s causing. I’m going to see my GP this week to see what I need to do to get some form of support so I can maybe only work part time
2026-07-05 09:12:34
1
mtndrxxl :
develop a crippling fear of failure and an inability to accept not being in control at work and it acts as a fun chronic illness override
2024-11-15 20:22:30
3
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