@embracingecho: This Epilepsy journey has been mentally and physically taxing. I can’t cure Epilepsy but I was privileged to have doctors who could figure out why I was going into Status Epilepticus so often. This has been a rollercoaster and we found out a lot about of other health conditions while in Utah that we need to have a better handle on. However, this is a great start in the right direction. My PICC line was taken out during this trip and now I have a central tunneled catheter. It’s kind of like a port except that I can’t de-access it which is what is best for me currently. I take 6 medications through it + NS, LR, and TPN daily. This is my 2nd and 3rd blood patch. My first one unfortunately failed. This time I had a wonderful doctor & team performing the procedure who did it right with HIGH volume! The recovery is feeling boring because I feel okay to do things but the blood needs to clot around the leaks. I really want this to work. I want my life back. ❤️🩹 #EpilepsyJourney #StatusEpilepticus #ChronicIllness #HealthAwareness #PICCLine #CentralCatheter
Thank you for the update I’m so glad that the new doctor/s and medical plan is working out
2024-11-17 01:54:59
14
Rosie :
Sending prayers 🙏😊
2024-11-16 01:02:17
1
Robin Needles ONeall :
You are a brave young woman
2025-01-07 10:41:15
1
Dalia :
🤞🤞lots of prays that everything goes well for you. Keep positive and continue staying strong like always 😁
2024-11-17 04:39:14
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stephaniecerp :
Praying for you love! may god continue to look after you, And through Jesus Christ may he completely heal you of epilepsy please Jesus - amen! ♥️♥️♥️
2024-12-13 17:01:02
2
🌛Cat🌜 :
Sending good vibes ✌️💚
2024-11-16 06:23:16
1
TikTok Nana (Lydia) :
Prayers and fingers crossed, mama!
2024-11-18 00:12:03
3
Megan💛 :
Epileptic here as well. So glad I came across your page.
2025-01-07 20:44:30
0
shortkat :
So glad to see you 🫶🏻
2024-11-16 03:00:38
1
Karla 🐄 🚜 :
my daughter has been having seizures, hope they figure hers out too. God bless you and prayers
2025-01-29 23:58:33
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Bailey and Katie :
I’m so proud of you.
2024-11-16 03:49:03
6
Taylor swift lover :
Same girls
2024-12-06 00:51:18
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Everyday Your Custom Design :
you are so strong. I developed mine when I was 7, started with tonic clinics the complex partials, now I have absence. my husband has comple partials. thank you for advocating
2025-09-11 08:13:14
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Kckjk💕 :
Prayers for you to not have as many seizures.My daughter has epilepsy and still lives with me at the age of 26 because she can’t stay stable.Love Echo we are praying for a service dog for my daughter.
2024-11-17 16:15:30
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Stephanie :
was she born with elipisy? she is amazing . and so beautiful
2025-05-27 01:51:59
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Janina Kay :
you are so beautiful
2025-03-01 20:52:14
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Svs :
I wish you all the best on your recovery. Fingers crossed the patches help 🤞 xxx
2024-12-13 16:13:15
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Ivettewillnot :
Sending you love babes🥹🩷
2025-03-11 04:16:28
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Vhyron :
I habe Epilepsie too.
2024-12-02 22:52:37
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Sherry :
So glad you’ve done this update!! And the news sounds very positive 🐾🐾I’ve been worried. You got this!!
2024-11-18 02:51:44
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Златина Сталева :
The day my daughter was born, I had status epilepticus and an emergency cesarean section was necessary. After the surgery, I had a dislocated arm and my daughter was in the incubator for 3 weeks.
2024-12-03 22:12:04
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jungkookscooki :
Hi, I'm really intrigued to know what the connection is between csf leak/epidural blood patches and seizures? I had a spontaneous csf leak a few years ago and wasn't able to get an epb for a couple months and had a severe cognitive decline during that time, but I had no idea about seizures until very recently and think I'm having many focals. I'm wondering if I was having focal seizures back when I had my leak too but I just didn't know what they were. I'd really appreciate any insights into this connection! ty!
2025-12-10 05:52:38
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Vhyron :
But i live my live so good as i can.
2024-12-02 22:54:09
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MADI :
🫂🫂🫂
2024-11-15 23:44:18
1
Έφη Λιάλιου :
😁
2025-10-14 20:47:17
0
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