@ellianas_journey: Behind the smiles and bravery, there’s a world most don’t see. This is the side of EB we face every day. 💙 #OurJourney #RareDiseaseAwareness #ButterflySkin #momtok #skindisease #ebwarrior #epidermolysisbullosa #BUTTERFLYBABY
I hope and pray that one day there will be a cure. It pains me to see a baby endure this. You are an amazing mother!
2024-11-26 04:49:44
113
Megan :
It takes a immense amount of strength and courage to see your baby go through this. I can see your love, dedication and determination for her. 🥰
2024-11-19 15:37:58
33
momofthemomsog :
This makes me so sad 🥺, she’s so loved ❤️
2024-12-19 22:01:11
31
mummypel :
God knows I would be teary every day if I had to go through this, I have been crying since I learnt of her passing, and I haven't stopped going through every one of her videos over and over. you are such a strong mom.
2025-04-11 20:04:08
11
Liz :
She’s such a strong little girl, praying for you and your family 💕
2024-11-19 02:39:05
13
Little One :
My momma heart hurts. I'm so sorry that little one has to go through this. Thank you for sharing, I never knew such a thing existed.
2025-04-05 19:27:00
6
ThePerfectBrow :
I am so sorry. I can't even imagine 🥺
2024-11-19 07:00:19
43
cayceswartz :
Breaks my heart that your beautiful baby has this!! Lots of prayers and love for her and your family 💜
2025-01-18 02:28:56
1
Leighanne Connelly :
I just want to take her pain away 😔 I’m so sorry that she was dealt this in life it’s unfair! I hope you and your husband are holding up mamma 💜💜 Your children are beautiful! And Ellie is so brave
2025-02-14 14:54:17
3
LIZ AMÉLIE :
Lord, send your protection and healing upon this precious little girl in the most powerful name of your son Jesus Christ...
2024-11-26 17:28:56
11
Larean :
I love this child so much. I ask God to heal her and be happy with her recovery
2024-12-24 00:11:53
1
Bev | Digital Organisation :
Poor baby, I can’t imagine what she is going through and I know you do everything you can to keep her comfortable xx
2025-02-16 00:55:57
1
haileyperkins :
I pray for her often!! Jesus lay your healing hands on this sweet baby!! 🩷 You are so strong Mama & so is she.
2024-11-19 21:23:54
3
theresa Pixtun :
hay Dios 🥺🥺 sana a la beba
2024-12-10 18:44:32
9
Jo :
My heart aches with you ! Everyday ! You are doing great momma!
2025-02-19 07:50:23
3
dayanapof :
🥺Diosito la cuide y bendiga siempre y que ocurra el milagro más grande 🙏🏻 se merece vivir es tan hermosa 😞
2025-01-24 12:30:43
10
𝙼𝚊𝚛í𝚊 🌙 :
no debería ser asi🥺
2025-03-05 04:31:39
2
Yamisol. 🧜🏽♀️ :
Ay pobre princesa dios te la sabe muy pronto para que ya no siga sufriendo de esa manera😔 que duro como padres ah de ser ver a tus hija así 💔
2024-12-12 07:07:12
2
Mom_Reset_Coach :
Oh mama!!! Please, please make sure you are taking care of you also! I know it may seem impossible and selfish but it is so important for this journey your family is on 🩷.
2024-11-20 13:59:20
6
Dawn T Jester :
bless her heart. prayers for her and tor whole family.
2025-01-17 06:30:33
1
Taylor Nicole 🦋🦋🦋 :
Poor baby 🥺
2024-11-18 21:10:59
1
Karlita Nove :
Dios bendiga a esta familia y le de mucha fuerza tanto a los padres como a ese hermoso ángel. mi corazón llora
2025-02-21 05:34:24
1
Amy Nelson :
Prayers for your sweet baby 🙏❤️
2025-06-30 23:27:22
0
Ewe8808 :
Thank you for sharing those most painfull parts, most of the people have no idea (including myself) she was so strong! I can only admire her and you.
2025-04-17 20:47:53
0
Cora Zimmer :
Sweet girl! I pray for her everyday ❤️
2024-11-22 03:24:50
0
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