Hope
Region: US
Wednesday 20 November 2024 13:58:54 GMT
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🌸Mango Loco Monster Mercy🌸 :
Ive had symptoms since 2013, when there was NOTHING online about it. Before having certain condtions was a trend.
2024-11-20 19:39:19
1205
Kat lu :
I definitely had it before, Covid just brought it on faster.
2024-11-20 19:55:01
572
LIV🫶🏻 :
Would love to chat if your opened to it! I’ve never met anyone else who had it before Covid! I had it since I was 5
2025-01-13 15:42:08
1
m :
Heavy on the caffeine bc I get such bad migraines and that’s what helps me
2024-11-20 19:31:04
225
Taylor Fewell :
Same girl been having pots symptoms since 2017
2024-11-20 19:33:31
97
Danielle Russell :
If you don't want to pay LMNT prices - i take 1/2tsp of salt in a shot of water every few hours. works just as well
2024-11-20 16:56:38
12
morgue 💌 :
thank you for mentioning the caffeine thing because i am unfortunately addicted to coffee 😭💞
2024-11-20 18:52:43
140
Jessie Kate :
i have beta blockers for flares, and currently getting gaslit by the doctor👍🏼😂
2025-01-08 02:43:44
0
Misti Phillips :
im a 7 year potsie too!! seeing all these long covid posties pop up the last few years wasn't crazy! my daughter is one of them.
2024-11-24 09:23:40
0
notyourlex_ :
my doctor said “ah, you probably have POTS but there are only 3 doctors in the state who can diagnose you and one doesn’t take any new patients” haha okay thanks
2024-11-25 19:59:59
182
Nick :
I had very mild symptoms forming before COVID but most doctors assumed it was anemia but after covid it got 2x worse and is continuing to get worse not better
2024-11-20 20:38:40
236
Monica510 :
water doesn't have electrolyte
2025-01-07 17:41:14
0
Bethany :
Wait sorry I’m like desperate bc I am diagnosed with pots and my hr goes up to 180 when I walk but my doctor said because it goes back down it’s not like serious enough to like go on a medicine. What-
2024-11-20 20:29:45
0
CuriosityKilledKate :
I don’t have healthcare rn I need all the help I can get. If I drink water w/o electrolytes will it make things worse? I keep chugging water it doesn’t make me feel any better
2024-11-20 19:51:31
8
Kitt__katt__ :
Having kids made mine 1000000x worse 😵💫😫
2024-12-15 13:18:03
0
Erin Beth :
Is lmnt better than liquid iv ? I need to get my daughter compression socks. Recently diagnosed
2024-12-16 00:03:31
1
Miss Potato Head 🍘 :
I had iron deficiency and Pots like symptoms as a child and now I have full blown POTS spells and I’m still anemic. DOUBLE WHAMMY 🥹
2024-11-22 09:30:07
1
K🌙 :
11 years for me with POTS. seeing it become more commonly diagnosed has been bitter/sweet. It’s so sad to see people struggling as well but it’s less lonely. Drs becoming familiar is also good and bad
2024-11-21 03:10:11
33
PrettyHippie :
why compression socks?
2024-11-21 03:20:42
0
(*´꒳`*)✌︎ :
They’re calling it “long covid/dysautonomia” because my tilt table was negative (I didn’t faint) even tho I was feeling like it, told me to treat it like POTS anyways 🙃
2024-11-20 23:04:57
0
vannah :
okay so help, i just got a full gi check i have so many bed riddening symptoms and there saying im perfectly fine and all of my different test come back normal. all of my symptoms worsened by 10 when i got covid could it really be that??
2024-11-20 20:14:51
1
Nicole :
I love caffeine for my pots bc it raises my blood pressure🙈
2024-11-20 22:10:45
1
Genevieve :) :
Can you link your compression socks? I’m looking for good ones!
2024-11-21 03:47:45
1
yebut :
need the caffiene for the fatigue but I've found taking an L-theanine supplement or matcha (which naturally contains l-theanine) helps with the spikes
2024-11-23 00:29:07
45
g 🫧 :
is there a way to get tested or anything bc my doctor doesn’t believe me
2024-12-15 03:01:20
0
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