@alina_dravetwarrior: Dravet syndrome finally broke me . A seizure type we havent experienced in over a year came back. Alina is more aware & frightened. 😭💔 ##fyp##foru##curedravetsyndrome##cureepilepsy##dravetsyndrome##awareness##seizure##curedravet

Alina_DravetWarrior
Alina_DravetWarrior
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Region: CA
Tuesday 26 November 2024 14:30:11 GMT
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ronawalters678
ronawalters678 :
I had to research it...I'm so sorry that you guys struggle together with this. I wish there were words or something we could do to help
2024-11-27 14:12:31
2913
genxscroller
RetiredGenX :
Watching your child have a seizure is so traumatic . Praying for you both
2024-11-27 00:28:55
1546
joycedufeu1
Joyce Dufeu :
🥺 my heart breaks for the mama and her child sending love and hugs
2024-12-11 15:49:23
0
aimeejs1390
aimeejs :
My heart 😢💔 I’m so sorry yous have to go through this!! Dravet is so cruel 💜💜
2024-11-26 18:05:48
1051
shoman906
shoman :
whats dravet syndrome?😳
2024-11-27 08:20:35
152
marina.gladys1313196
Gladys 76 :
My heart goes to you and your baby angel My daughter has Dravet syndrome I'm so scared of this every day in my mind 😭💔
2024-11-26 21:32:13
2659
ydennmar
ydennmar :
What happened in the video?
2024-11-26 19:52:47
26
greenfarber
Meet the Farbers :
Small advice, my husband had epilepsy his entire childhood and said his mom crying would scare him more...its hard to do as a mama but we need to try to remain calm. I know how hard it is.
2024-11-28 00:05:27
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14vivier
Liv v :
Please Dear Father Jesus Christ Holly Spirit heal this baby and help this strong mother I believe you can and you will heal her baby IN JESUS CHRIST THE SON NAME AMEN!!!!!!❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
2024-11-26 21:54:49
540
tiffanidwemer
𝕥𝕚𝕗𝕗𝕒𝕟𝕚🌾 :
When one mama cries we all cry. Praying for strength for the both of you. 🥺❤️‍🩹
2024-11-26 21:38:47
8950
teridavis32
Teri Davis😘 :
Momma we cry and hurt with you….
2024-11-27 00:46:01
1489
shonie228
Shonie :
My daughter also has Dravet syndrome. I feel your pain so so so so much 💜💜💜💜💜💜
2024-11-27 05:41:55
53
nortic1
nortic1 :
please look into cbd, Dravet is one of the seizures that cbd can stop. praying for you mamma
2024-11-26 22:20:51
18
medicalmumma
Medical Mumma :
Dravet is a monster. I have no words. But I’ll sit with you mumma. 🫂💜
2024-11-27 15:07:33
83
skyeebbyy
Skyeebbyy :
Not me looking at my son so sad 🥺 he doesn’t have Dravet syndrome but him having anything would break me. He’s autistic and sometimes his delays bother me but this I would rather the autism 🥺 I’m so sorry mama we all are here for you 🥺🥺🥺
2024-11-27 03:40:37
52
mariacollins930
maria :
so sorry a mother worst pain full is to see your child suffering and can’t take the pain away please 🙏 God help this family and the baby give it strength
2024-11-26 21:22:50
743
wattfamily_hazel_lgd
ChrissytWatts :
That cry is heartbreaking when one mama hurts we all do! My heart hurts for you hugs!
2024-11-26 21:04:03
3182
1l9l1l7l
1l9l1l7 :
So what happened?
2024-12-04 21:18:56
1
keridaniellewicks
Keri Danielle Andrade :
Oh this hurt my heart so much. I’m praying for you both. 🥺
2024-11-26 21:14:13
436
thefaithfulfam
The FaithfulFam❤️✝️ :
Girl this broke me
2024-11-26 21:40:55
449
wow2ladybugs
elleni :
hi! big sister here, my brother was diagnosed dravet at 6 months, we are here 17 years later, I see you and hear you, I’m sending you and your family love, please be strong
2024-11-30 01:10:42
2
sandragabriel34
Sandra Gabriel :
Lord please place your hands on this sweet angel please bring her healing and peace I ask this in your mighty name Jesus only you know what best Amen
2024-11-27 00:18:42
157
licia.nicoleee
Alicia Nicole :
I felt the pain in your cry watching this. Everyone that said "one mama cries, and we all cry" is absolutely right. Praying for you and your baby, mama ❤️
2024-11-26 23:23:28
338
celnjess
Celina💕 :
😭😭this hurts my heart mama I’m so sorry praying 🙏
2024-11-26 21:37:44
108
rozanneengelbrecht0
rozanne engelbrecht :
i'm so sorry that you have to go through this my youngest brother has Dravet syndrome he had his first seizure at 3 months old and was ons special medication and dieets. i feel you his longest was
2024-12-02 14:36:03
1
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