Sarah Nicole
Region: US
Monday 13 January 2025 22:14:38 GMT
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🌸 Andi 🌸 :
Many people with pots don’t tolerate SSRIs well. Dysautonomia International is a good website for information including doctors in your area.
2025-01-26 12:00:57
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Shelley Wilson :
I haven’t been diagnosed with POTS but I do have diagnoses of Lupus, Fibromyalgia & Sjogrens. My journey began 30 years ago & I have countless stories similar to yours. I hate feeling like a
2025-01-26 22:07:29
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Betty Bailey :
Thanks! Think I might have it. I sure have all the signs.
2025-01-17 00:16:31
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Autumn 🌿 :
My symptoms get so much worse the week before my period. Do you notice if that is the same for you? I’ve been trying to figure out what’s wrong since Nov 23 no luck and lots of doc bills..
2025-01-16 11:51:26
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Alondra ♡🇲🇽 :
So we all have the same story!? 🤔
2025-01-14 03:09:29
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Omartinez :
Which antibiotics please. Thanks
2025-01-14 03:42:22
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Hannah :
So does pots affect the eyes
2025-01-14 02:24:22
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Hannah Holmes :
Have you ever explored Ehlers Danlos syndrome? POTS, neck issues, headaches, and optic nerve swelling are both super commonly related to it
2025-01-14 15:23:01
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lauriebee27 :
Random question. Was the antibiotic ciproflaxin?
2025-01-14 00:49:28
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kywee :
I had a really awful UTI in Dec 2023, and got it treated thought I was good. Then I randomly got dizzy, started having migraines etc. all tests are normal and my CT/MRI/MRA are clear. I truly believe—
2025-01-15 00:20:46
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ashley_christensen :
Potsie here. Diagnosed August 22nd 2024. My peak hr noted on the zio monitor was 178. A low of 52. in a day! My cardiologist spotted it right away and sent me for a tilt test. Bombed that test!!
2025-01-14 17:12:33
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Samantha Miller :
Going to my cardiologist today for my check up, I stopped taking the medication she put me on because it was a medication for heart failure, and I didn’t like the way it made me feel. I’d rather take
2025-01-15 15:49:57
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Kelsey Koenig :
All of my pots symptoms started after a course of antibiotics for a sinus infection, took 4 years to get disgnosed. Also originally thought MS and had brain MRI plus multiple other tests first
2025-01-15 04:13:40
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Vertige Adaptive :
Wow this was such a crazy story, I’m glad you got answers! As a girl who has had pots for over 13 years, my unsolicited advice is to stay off meds as long as you can! I’m on so many and the more
2025-01-14 17:47:53
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Sarah Nicole :
Sorry this one is long but I hope it is helpful for you all 🩵🩵
2025-01-13 22:26:47
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ρяιscιℓℓα zнαηε :
Wait one time I collapsed, had slurred speech, and twitching in my face. That could’ve been a nonepileptic seizure? 🤔
2025-01-14 00:56:52
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Matilyn :
Have you found any supplements that helped you?
2025-01-14 00:03:51
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Michelleintheoc :
Did you get pots from Long Covid? thank you so much for this.🥰
2025-01-13 22:55:21
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hhhhh :
Only one place here does tilt table????
2025-01-13 22:58:46
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Jill H. :
I’m in the same situation. Been to so many different drs and tests but all “normal”. But I can’t get a dr to say “you have pots”.
2025-01-16 21:24:52
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bethselle8 :
I'm also in Minnesota. where is the tilt table test done?
2025-01-15 04:16:43
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Sammie Sellers :
that's how our hospital is... they found that I have POTS and my story is sooo similar to yours.
2025-01-13 23:15:07
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Braeden Tyma :
Wow I didn’t realize how similar our stories are, down to the back to back antibiotics. I would love to talk with you a little
2025-01-14 03:13:05
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Dee :
Mines started after antibiotic use. I had a uti then I was having a bad reaction so they gave me a new one… then boom, pots now suspected lupus
2025-01-14 03:08:27
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ChronicallyCarly73 :
I just can’t believe your story sounds exactly like me ! Even the 3rd window in your ear . 😱
2025-01-14 05:46:07
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