@ashleymariethornt1: It is with a very heavy heart to introduce you to my son’s journey. This is Ezra he has an extremely rare genetic disorder. This video explains his disorder. #geneticdisorder #genetics #gm1gangliosidosis #GM1 #gangliosidosis #rare #raregeneticdisorder #raregeneticmutation #AFO #MRI #EEG #EKG #support #lookingforsupport #youarenotalone
Sending so many prayers! What a sweet little boy 💙
2026-07-10 12:09:03
1
Karleigh Walsh :
When one mama cries, we all cry 💔 praying hard for Ezra and the whole family 🙏
2025-01-22 10:57:55
5
Advocating for Aidan :
I wish this was a club no one had to be a part of but we are here for you 🤍
2025-01-23 05:33:54
1
Cathy Smith :
On a side note- I have those same bowls and they look just the same!!😂😂
2025-01-22 12:58:51
1
AnastasiaLA :
Have a wonderful birthday Ezra
2025-01-22 15:01:00
2
fenderfairy :
thank you for sharing his story you are such an amazing woman
2025-01-22 06:29:11
2
Samantha Stevenson :
this is absolutely beautiful how you let him help you!🥰
2025-01-22 15:23:15
1
Caitlin | NC :
I'm so sorry on 1/19/2018, my son was diagnosed with heart failure and our surgical team(s) told us his heart was inoperable. So proud of you for sharing Ezra's story.
2025-01-22 14:59:35
1
Rissa91 :
I send lots of hugs and love 🫶🫶
2025-01-22 06:36:35
2
Shannon :
Praying for you 🥰🥰😭 But I will happily follow your journey and pray for a miracle
2025-01-22 14:54:28
1
jaime :
Aw, my heart broke when you were crying. Hugs mama. You’re doing such a great job!The smile on his face and you were mixing the cookies was so sweet.
2025-01-22 14:49:16
1
CuriousOfTheUnknown :
I reposted for you to hopefully get his story out to more people. Your family is in my family’s thoughts and prayers!🥰
2025-01-22 07:53:00
1
IamSadie :
Awe he is perfect. What a beautiful boy. You are a good momma. So patient. Much love to you❤️
2025-01-22 07:30:00
1
Tattooed Girl Mom <3 :
That is an absolutely handsome baker you have there Mama!❤️I shared to get his story out there.
2025-01-22 13:39:02
1
Ash🤘 :
he has such a good mama ❤ praying for you and little ezra.
2025-01-22 14:13:18
1
❌️Jessica Webb❌️ :
praying for your family! God is still in the Is miracle business every day!
2025-01-22 13:04:23
1
ratzcatzcreations :
I am so sorry! doing all the things for that sweet boy 💙
2025-01-24 01:02:40
1
Megan 🧿👽🛸 :
💜💜💜
2025-01-22 15:13:16
1
Keri Mcclendon :
That sweet smile when y'all started the mixer
2025-01-22 15:11:21
1
Katie Flams :
following his journey
2025-01-22 09:09:26
1
sonia :
Thank God that everything is okay now and I'm doing well, My hospital doctor has also confirmed that I am now HERPES Negative, Thank you so much@Dr_owo 💯💯
2025-01-22 14:46:31
0
sonia :
Thank God that everything is okay now and I'm doing well, My hospital doctor has also confirmed that I am now HERPES Negative, Thank you so much@Dr_owo
2025-01-22 14:25:05
0
To see more videos from user @ashleymariethornt1, please go to the Tikwm
homepage.