@ellianas_journey: Slow Saturday morning with my girls ♥️🦋 #EpidermolysisBullosa #hospice #OurJourney #BUTTERFLYBABY #fyp #foryoupage #skindisease #LifeWithEB

ellianarose6
ellianarose6
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Region: US
Saturday 25 January 2025 23:16:37 GMT
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meganvalerie4
Megan Valerie :
The girls holding hands 😍🥰😭❤️so sweet
2025-01-25 23:28:10
298
ajceniceros
alondra :
Her little cries get me every time, so I can’t imagine how you feel as her mom. You are so strong and your babies are both so precious! 🤎
2025-01-25 23:25:48
477
samgmalyy12
samgmalyy🧸 :
Hospice 🥺aw your both strong
2025-02-21 18:10:00
0
carrien3
Carrie N :
Elliana is so sweet. Does she ever try to sit up or roll over or anything like that?
2025-01-25 23:23:46
50
rominaalcalamoran
Romina Alcala Moran :
No podría ver todos los días a mi hijita sufrir así 😞
2025-02-08 03:01:49
233
evidently_emily
evidently_emily :
I know it’s your daily routine, but I am always so amazed by the care you and your family provide for Elliana. There is so much love in every action. And she definitely has an amazing big sister! 🙏
2025-01-25 23:40:24
370
thedivinemissf
Miss FlorenceUpton :
How old was Ellie when you found out she was sick?
2025-01-26 00:41:22
7
alejandraalvez957
alejandraalvez957 :
q le pasó
2025-01-26 04:58:12
5
agata36s
Agata Wilcock :
do you have a PO box or amazon wish list? I so want to gift girls something ❤️
2025-01-25 23:22:40
14
paigelex222
Paige || SAHMx4✨ :
I’m so sorry for you all & sorry your sweet & precious baby has to go through this. I’m crying now writing this. My heart will never understand why babies or kids go through things they shouldn’t have
2025-02-15 17:53:40
6
alythahere
Aly Pamintuan :
She’s absolutely beautiful. It’s my first time seeing Elliana and saying that she moved me is an understatement. I have 2 kids, the youngest is 4mos old.
2025-01-26 05:18:36
5
jullsramirez
jullsramirez :
cuando uno es mamá esto duele 💔
2025-02-07 07:44:30
63
carolinaosorio279
Carolina osorio :
Que fuertes son, yo no podría hacer esto todos los días sin llorar que Dios le de sanidad, la ha bendecido con unos papás increíbles
2025-02-08 13:48:04
30
......sarah......w
Sarah :
How old is she? She is so cute 😍 greetings from Germany
2025-01-25 23:45:03
4
marthitavalerioesparza
Marthita Valerio Esp :
sus uñitas me parte el alma, yo tengo un niño con displasia ectodermica y ahorita tiene sus manos como si estuvieran quemadas😭
2025-02-10 13:54:13
6
delicateorchidstephanie
Delicate Orchid Stephanie :
The hand holding truly got me on this one 🥰🥰
2025-02-13 03:32:08
20
thecraftyaunt
Whitney :
Is she able to do floor play or have any toys? Or would that just make her skin worse?
2025-01-25 23:20:40
6
mapiramossanchez1
mapiramossanchez1 :
que le paso
2025-01-26 17:24:36
0
fp9538
perla Figueroa :
mi corazón me duele de ver está hermosa bebita así 🥹❤️
2025-01-26 04:54:42
355
wolfuk75
Wolfuk75 :
Good bless you angel ❤️❤️❤️❤️❤️❤️❤️❤️
2025-01-25 23:43:31
14
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