@kimievieee: Waking up most mornings STUCK in an uncomfortable position… hip joint locked up/out. ugh. #rarediseaseawareness #arthrochalasiaehlersdanlossyndrome #ehlersdanlos
i feel u my ribs subluxate when i take a deep breath 😭
2025-01-28 11:14:04
16
a.le.z :
I need to figure out what happens to my ankles in my sleep because i don't move much in my sleep but when i wake up it feels like someone braided the nerves in them and that hurts
2025-01-29 23:59:03
3
Ashley Hughes :
Are your SI joints or your femoral head moving? I have both and it is absolute bullshit. Usually the right side until the left gets jealous.
2025-01-29 22:59:13
0
Emy :
I wake up with a dislocated every morning & it’s literally just normal to me 💀😭
2025-01-28 07:10:18
2
Bri :
i love the hat btw so cute
2025-01-28 11:49:28
1
miya ♿️🌻 :
oh my god i feel this 😭 my hip hasn’t been in place in almost 4 days
2025-01-28 20:01:19
1
Hannah “Twitch” :
Real. (I have a COL1A1 mutation)
2025-01-29 03:08:29
1
🍉🍋🍒🍊 :
Waking up with my collarbone fully dislocated from a violent nightmare the day after surgery and having my dislocation hurt worse try than my 4 surgical incisions 😂 live laugh EDS 🙃
2025-01-28 18:54:53
2
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