@darcies_story: This is Darcies story on her diagnosis of a rare genetic skin disorder called Junctional Epidermolysis Bullosa Severe. This is a cruel disease with no cure💔 hopefully we can raise awareness and find a cure one day. #junctionalepidermolysisbullosa #butterflyskin #EB #greatormondstreethospital #debra

Darcie’s Story🦋
Darcie’s Story🦋
Open In TikTok:
Region: GB
Tuesday 11 February 2025 15:24:02 GMT
2905003
78343
1283
1198

Music

Download

Comments

beachcoma12
beachcoma :
I am following Ellie who has the same...so sorry for little Darcie so dam unfair 😇💜
2025-02-18 07:52:30
306
philippe.de.almei
Philippe de Almeida :
Dieu faite q’un jour y aura un traitement pour que ce ptit ange Darcie pour qu’elle puisse vivre heureuse comme tout les enfants 🙏🙏🙏🙏❤️❤️❤️❤️❤️
2025-03-24 00:01:03
29
k8rob
katepararob :
A former student of mine has Junctional EB. They told his family 2 years as well. I tutored him at home when he would miss school a bunch for medical care so I got to see first hand what he went through. It’s an evil disease. However… He just graduated from high school last year. 😊
2025-12-31 00:13:03
2184
nannaisbanana
Anna 86 :
Heavenly Father, We lift up Darcie and her precious family into Your loving and ever-present care. You are the God who sees, who knows every detail, and who holds each of us tenderly in Your hands. Lord, You know the journey Darcie walks, and we ask that Your healing presence surround her each day. Bring comfort to her body, strength to her spirit, and peace to her heart. Where there is pain, bring relief; where there is weariness, bring renewal; where there is fear, bring Your perfect peace. We pray for her family, Lord—cover them with unity, patience, and deep wells of hope. Give them wisdom for each decision, endurance for each challenge, and moments of joy that remind them of Your goodness. May their home be filled with love, grace, and the reassurance that they are never alone. As this coming year unfolds, we ask for blessings upon blessings. Go before them in every step, surround them with compassionate caregivers and supportive friends, and let Your light shine brightly through their lives. May they feel Your nearness, Your comfort, and Your unfailing love today and always. Amen.
2026-01-06 23:21:44
333
lalastemm
lalastemm :
My little brother had EB. It wasn’t severe but he would get blisters on mainly his legs, feet and hands. He amazingly outgrew it!! Just one day the blisters went away 🥹 sending prayers your way
2025-03-10 04:45:39
878
mikewardisdaboss
mikeward🔥🔥 🥊 :
I came to the first video to say rip darcie
2026-08-02 22:58:34
8
morgsmedicalmom
🦋Morgan&Brooklyn JEB Journey :
My girl has JEB as well. She’s 20 months old!
2025-02-12 04:05:43
534
maxileon22
Maxi Léon :
i was here since day 1 i'm really devasted my angel Darcie you are in heaven now 💔💔💔💔
2026-08-04 00:49:29
7
ellianas_journey
ellianarose6 :
She is so beautiful ♥️🦋
2025-02-18 17:41:49
385
jessicariojas27gmail.com
Mrs Jesssica Riojas :
Heavenly Father I ask that you PLEASE Anoint sweet, sweet Darcie with your healing touch and Father please bless her parents with strength and peace. In Jesus mighty name Amen... God bless you princess🩷💐🎀🩷💐🎀🩷💐🎀🩷💐🎀🩷💐🎀🙏🙏🙏🙏
2026-01-19 10:56:47
10
tota.has
🐞🐞 :
Is it the same type that Eliana had?
2025-04-18 01:51:18
45
user400204342
BAMA GRIL 🏈 :
I followed a little 4 year old named Tucker he has this disease aswell it’s so sad to see little kids suffer with this cruel disease praying 🙏🏻 for Darcie and for you guys 🦋 she’s so precious and happy little girl
2026-03-12 04:54:10
0
petrawillyam3
Chance the BaBy :
God bless you sweet girl ❤️
2026-01-07 13:37:59
22
laurenep1
laurenep1 :
my aunt had the same condition. she was not suppose to make it to be very old. she ended up living into her late 50s. as a child she was constantly wrapped in bandages.
2025-08-13 02:40:38
89
chelsea61117
chelsea61117 :
I know a little boy named Boone with this. He just turned 5 and everyday is a miracle. He’s a thriving boy who loves swimming and cuddles 💕
2025-03-10 23:25:45
161
k.trammel0522
Kailee: Аліна :
My friend is in her 20’s with this and her son who also has it is 3 years old as of Christmas, there is hope! deep breaths and advocate for her!
2025-02-14 00:50:20
90
inaettaana
InaEttaAna :
What a little angel!
2026-01-14 20:24:57
6
leighbullock6
LeighBullock :
God bless you baby girl 🙏🏻❤️xx
2026-01-13 09:22:25
7
_alona_3874
Альонка :
Сил вам та терпіння.Молитимусь за вас та Вашу Дарсі ,щоб винайшли ліки,або щоб їй знайшли яке полегшення🫶💪💐
2026-05-09 19:16:20
5
kellymiller132
Kelly Miller :
shes so beautiful
2025-08-14 01:51:17
14
dankmother1971
Geets Vargs :
She’s so beautiful❤
2026-01-13 19:46:09
6
phil.w1999
Phil.w :
No child should have to go through this trauma and even more their parents should have to watch their child suffer in this way my heart breaks for you
2025-02-19 20:29:30
51
_shinigamimind
shinigamimind :
god bless you all 🙏🏽❤️
2026-05-25 13:25:35
8
amazingbaby89
meri :
you can do it girl 💪
2025-02-23 13:36:53
9
userpw1xs24oxk
userpw1xs24oxk :
Darcie is beautiful. Hugs and prayers from Ireland
2026-01-03 23:31:42
23
To see more videos from user @darcies_story, please go to the Tikwm homepage.

Other Videos


About