@darcies_story: Darcie was born with a rare genetic skin disorder called junctional epidermolysis bullosa. This makes her skin very fragile and is prone to blistering. Many people may know this as butterfly skin. Most babies with this type of EB won’t make their 2nd birthday. Sadly there’s no cure. We want to raise as much awareness for this horrible disease. #junctionalepidermolysisbullosa #EB #fyp #butterflyskin #DEBRA #skindisorder

Darcie’s Story🦋
Darcie’s Story🦋
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Region: GB
Thursday 13 February 2025 14:17:54 GMT
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chescaa12_
Chesca :
ellianas_journey I’ve been following for a while, it’s heartbreaking the pain these precious souls have to go through! Definitely take a look at her page💕
2025-02-13 16:41:30
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eldriiii
Eldri :
I went to HS with a girl that has EB! She’s now in her late 20’s raising her beautiful boy 💚 have faith!
2025-02-18 19:07:41
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rach_leann
🦋Rachel LeAnn🦋 :
Oh Darcie 🥺 I follow baby Ellie and it absolutely breaks my mama heart! Darcie your about to have a whole lot of TikTok aunties sending you loves and prayer ❤️
2025-02-16 01:46:01
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elysiaroemer
Elysia Roemer :
I work as a social worker and there’s someone on my coworkers case load that has this and she’s in college working on her bachelors degree 💛
2025-02-19 11:39:46
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dylmnday
Dmday :
She is so adorable 😭
2025-02-13 22:20:01
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wambugulucy47
Lucy🥰 :
what God can not do does not exist have faith in God their is hope in Jesus Darcie will have long life in Jesus might name Amen
2025-04-21 14:19:21
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teejayy369
TJ369 :
We will see her turn 2 and make it past that age. She will achieve all of her milestones. Praying for your baby girl ❤️🙏
2025-02-21 12:46:56
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heidi.bower1
Heidi Bower :
Is Darcie still with us? How's she doing today?
2025-04-18 23:30:13
2
jessundecided95
Jess :
It’s so unfair because otherwise they are perfectly healthy babies… it’s heartbreaking what they have to go through and what those who love them have to go through. ❤️❤️❤️
2025-02-18 14:57:52
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netsanettesfaye192
netsanettesfaye192 :
heart chain
2025-02-14 20:32:44
11
gabrielle1025ar
Gabby :
RIP Josiah Robinson. My best friend's son passed in 2018 from Junctional EB Herlitz. He is forever 2 months old. I'm praying for this sweet girl.
2025-02-18 05:55:59
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linedancermom
user1984030591220 :
Beautiful
2025-02-22 01:23:21
2
bgnd94
🌸✨ilea✨🌸 :
Oh my gosh. Those eyes🥹 She’s a perfect little thing
2025-02-21 17:33:24
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nana63311
Nana :
Sending prayers and hugs!!🙏🙏🙏❤❤❤
2025-02-26 02:56:53
4
kingcay28
KingCay :
my sweet friend lived till 22 with epidermolysis bullosa. they are the strongest humans.
2025-02-17 17:53:53
133
erdbeer.ems
꩜∘˚𝐞𝐦𝐬˚∘✰ :
My childhood friend has the same condition, he's 17 now and currently doing his apprenticeship. There's hope 💗
2025-02-22 07:27:35
2
_meganlucyx
Meg :
My nieces both have severe simplex EB, whilst not as devastating as JEB, I understand how awful it is to watch them in pain. She’s beautiful xxx
2025-02-13 21:21:36
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cesar_buchar
cesar buchar :
yo no aguantaría dos años con el ser más hermoso del mundo ese que te enseño tu mejor versión y después perderlo 🥺🥺😫😫😫 me volvería loco para no recordar
2025-02-18 09:25:27
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milless91
Miles𓆩♡𓆪 :
Praying for her 🙏🏼
2025-02-13 15:38:16
19
andreanewberry7123
andrea newberry :
Prayers
2025-02-21 03:47:21
3
jaidahilton
𝒿𝒶𝒾𝒹𝒶💗 :
i am so so sorry. i absolutely can’t imagine KNOWING that i only have a very limited time with her. she is so beautiful and with you as her mother, will change many lives so ready awareness!
2025-03-06 02:36:27
0
m.oxana3
Oxana✨♒️ :
Don't give up, mama! Your girl is a fighter. She will make it ✨. May God heal her
2025-02-21 21:56:14
2
ambersmith825
ambersmith825 :
She is so precious 💞
2025-02-20 22:27:07
2
sheilou2490
sheilou2490 :
im still hurting for ellie and cant help myself from crying..now there you are baby darcie.. my heart is aching again.
2025-04-11 14:59:39
4
rgliss3
cath :
🫶🫶🫶
2025-02-16 21:25:26
1
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