@darcies_story: Darcies story on life with us, every day is a blessing🥰🦋❤️ #darciesstory #blessed #junctionalepidermolysisbullosa #skindisease #butterflybaby #pallativecare #babytok #fyp

Darcie’s Story🦋
Darcie’s Story🦋
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Region: GB
Sunday 02 March 2025 19:51:17 GMT
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nataliejayne2012
Darcies Nannie 🦋🦋 :
We are so honoured to have you as our granddaughter Darcie 🦋🥰xx
2025-03-02 21:05:02
34
annie.sullivan77
Annie Sullivan :
I’m a children’s nurse and EB is very new to me, can I ask why a skin condition makes them palliative please? What organs does it affect? Thank you and she is beautiful x
2025-03-03 22:46:21
7
dionnasys
dionnasys :
I cried watching this. she will never know anything but love ❤️
2025-03-03 02:24:37
10
caitbdw
caitbdw :
This made me sob 😭 thinking of you all ❤️
2025-03-03 12:45:12
3
amyy4470
Amy :
gorgeous girl❤️🦋
2025-03-03 00:39:33
2
nos1894
nos :
this little soul picked this body to enhabit our realm, its to be with you and your family, enjoy the time and memories. its hard but your souls were meant to have this journey to get through together
2025-04-04 20:11:18
3
claire_flo
Claire & Flo | Medical Life :
Sending you so much love! keep the faith xxx
2025-03-03 16:17:56
4
faridehjohnson_
Farideh-Faye Johnson :
I couldn’t even imagine💔 sending you and your family love❤️
2025-03-03 22:49:39
3
xxjennyxx89
xxjennyxx89 :
she is so beautiful and has such amazing parents xx
2025-03-03 20:55:19
2
sanniazam
sanniaazam :
Sending Darcie much love ❤️
2025-03-02 20:35:39
2
alexandraymila
Alexandra :
Little princess 🩷
2025-03-02 20:32:33
2
karen.game5
Karen Game :
You are so loved darcie and think the world of you xx 🩷🩷🩷
2025-03-03 13:04:01
2
sue_caley
Caley Gallimore :
Keep smiling Darcie! We’re rooting for you in Kansas!
2025-03-04 00:46:14
1
itsjustme1693
Itsjustme1693 :
If you could please elaborate more to why she was given a life expectancy of 2 years? Trying to understand. Is it bc her skin will be growing quickly leading to more spots, infection, etc? ♥️
2025-03-21 17:26:43
0
theblueyedfox4
🦋ApREAL🦊 :
Darcie,you and your parents are so strong
2025-04-07 04:55:22
1
isabelle_gri
Belle :
heart chain ❤️
2025-03-03 22:03:11
1
wambugulucy47
Lucy🥰 :
there is nothing impossible with God please God have mercy on this baby in Jesus might name Amen
2025-04-17 05:45:13
1
anarios724
anarios9171 :
praying for you dear Darcie❤️❤️❤️🥰🥰🥰🥰 I Love you
2025-03-02 22:18:53
1
mama.to.a.zebra.warrior
Mama to a zebra warrior 🦓 :
Precious girl ❤️😭
2025-03-02 20:23:56
1
susan.allen017
Susan Allen :
Darcie is a beautiful baby ♥♥♥🦋🦋🦋
2025-04-16 11:16:27
0
allisonearly95
allisonearly95 :
I had an eb patient today. These kiddos are so strong and resilient. Love Darcie! She’s a beautiful girl and your family is amazing. 🦋❤️
2025-05-22 16:14:04
0
nicole.webb28
Nicole Webb :
Lord Jesus please take care of this baby praying for healing and protection Thank you Heavenly Father amen 🙏🏽 ❤️
2025-04-19 17:00:28
0
user5046167237610
GrannyOrNan :
May The Lord Bless You and Give You Strength ❤️🙏
2025-04-10 22:48:11
0
user7433261611723
sue :
Bless this child lord
2025-04-11 00:26:53
0
sass309
sw :
beautiful girl xx
2025-03-04 20:18:34
0
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