@periodicallyilvy: THIS IS NOT MEDICAL ADVICE OR MEANS TO A DIAGNOSIS. IT IS SIMPLY SPREADING INFORMATION ABOUT LESSER KNOWN TESTING METHODS AND MY PERSONAL EXPERIENCE. - the diagnosis methods my team (cardio + long covid clinic, plus nephrology consult) used: - 24 hour blood pressure test - 4 day heart monitor with extensive documentation of my activity during it - "poor mans tilt table" 10 minute standing orthostatic test - clinical assessment of other related symptoms - consult with my therapist to rule out emotional triggers - #pots #dysautonomia #longcovid #posturalorthostatictachycardiasyndrome #syncope #presyncope #convulsivesyncope #chronicillness
My cardiologist said the same thing. He did a “poor man’s tilt table” test on me and diagnosed me right there in the office.
2025-03-11 04:09:58
43
pasttenseofdraw.mp3 :
I was dx without a tilt table, I did it later TO DO OTHER AUTONOMIC TESTING WITH IT bc the autonomic neurologist I wanted to see required it. I tried to get autonomic testing done at Cleveland clinic but they refused and wouldn’t do anything unless I had a tilt table done to rule out orthostatic hypotension. I have hyperadrenergic POTS, my BP rises when I stand 🙄 tilt tables are just more sensitive and will catch more cases, but if you meet the criteria with a poor man’s tilt then you don’t need it
2025-03-12 18:27:16
2
Bunny <3 :
i was diagnosed without one but to get treatment at stanford they required i get one anyways it was AWFUL but they are the only clinic in norcal
2025-03-13 06:09:46
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Rue🌻 :
My tilt table test literally gave me PTSD and I couldn’t leave my house out of fear for months after. I was only 13☠️still get nightmares and flashbacks of it now 5 years later
2025-03-11 18:25:14
5
maddy 🧜🏻♀️ :
My cardiologist did the same thing and diagnosed me through the poor man’s tilt table!!!
2025-03-12 18:18:19
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Freya[♾️🌈] :
This. My doctor was about to diagnose me on the spot until she remembered the tilt table test existed and i was devastated. Now having to come off all my meds in preperation as they dont takeaccount 1
2025-03-11 14:47:55
4
kaycicreates :
tilt table test was the most uberable traumatizing ten minutes of my life and I've broken my collar bone and had two surgeries. They refused to stop when I begged them to.
2025-03-12 20:20:54
1
miya ♿️🌻 :
my heart stopped during my tilt table and my cardiologist asked me to get a second one done because the results were “inconclusive”- mind you i already HAVE A DIAGNOSIS
2025-03-11 23:42:23
10
Casper :
Cardiologist refused to dx me cause i was one number under the threshold, even though i go over it constantly. It’s so frustrating cause they can’t add it to my record and i have to re-explain it.
2025-03-12 21:51:38
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Bri :
omg im in MA looking for good pots specialist. would you say the boston childrens people are good since they dont do the tilt table test? i know neurologists can do autonomic nervous system scans
2025-03-11 17:02:14
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Garfield enthusiast 🐱🍝♿️ :
they did the nasa lean test for me after i failed my tilt table turns out my blood pressure dropped so low that computer couldn’t read it when i did my tilt table. the nasa lean test was pretty difficult but we were able to get my dx from it and i didn’t have to do the whole 10 mins!! just for anyone looking for options
2025-03-11 02:46:07
8
Korbin :
I also went to a hospital in Boston that said the same thing (different one). I got diagnosed without a tilt table
2025-03-13 03:31:50
1
jaz🍒 :
i was diagnosed without a tilt table! i wore a heart monitor for 3 weeks and when i came back they were like yeah u have POTS
2025-03-11 17:57:46
9
Faye defrees :
I just got one done today and I was already diagnosed with orthostatic intolerance when I was a peds patient and the tilt table test said that I didn't have it Idk which to believe
2025-03-11 11:11:10
0
Jay :
my pots was diagnosed by genetics and then confirmed by an event monitor catching tachy with exercise / symptoms! that was it. sometimes refusing some tests is better lol
2025-03-11 02:18:56
4
Maverick The Service Lab🤍 :
Yes! Love to see more Dr’s move to orthostatic stand tests and away from tilt table tests! TTT’s are actual t0rture and stand tests can give the same info
2025-03-13 02:56:51
1
beck♿️♾️🏳️🌈 :
yep i was diagnosed without TT! record EVERYTHING if you have enough evidence there’s literally no need for them to do one
2025-03-11 23:17:52
2
RebdullRin #1 Mystra Hater :
I did autonomic testing in boston and they did use a tilt but only 45 degrees with no interventions and stopped it when I felt awful. It did 0 to change my quality of life and treatment plan.
2025-03-11 02:39:25
3
chronically_emmm :
The techs who did my TTT at Dartmouth told me the same thing! Said they’re inaccurate and my current cardio says so too!
2025-03-11 15:44:49
3
Eowyn 👩⚕️✏️🩺🏳️🌈🍉 :
my cardiologist said "there's no reason to do a tilt table test you clearly have pots"
2025-03-12 20:53:42
1
Hannah Lowe :
I tried so hard for them the diagnose me without the test after 10 years I finally got them to order a tilt table and its costing me 1300
2025-03-12 00:12:21
3
chayse :
THIS! it isn't needed unless there are specific circumstances. there are better ways to test for pots
2025-03-11 11:42:44
3
em 🎱🫧🦇 :
i am so blessed that i just listed my symptoms for my cardiologist and he went uh yeah you have POTS 😭😭
2025-03-12 17:42:17
1
becca :
TikTok why must you show me these comments right before I get mine done 😩
2025-03-13 06:28:56
0
Zypup 🦴🎀 :
I already have my diagnosis but have an order in for the tilt table test that I have been debating getting, especially for evidence regarding SSI. But honestly not sure if I'll end up getting it
2025-03-13 03:53:49
0
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