Hannah Merton
Region: US
Tuesday 11 March 2025 20:56:08 GMT
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ahnaka :
my syndrome is one letter off from my last name too!! I have Ehlers Danlos Syndrome and my last name is Ehlert!!
2025-03-12 21:45:51
113
iamkml550 :
Kid 3 has Ehlers Danlos syndrome. She has the joint hyper mobility form but some people have issues with heart valves. We had her get an echo as how could we know what was her normal unless we had a
2025-03-11 22:23:43
13
ItsACaliThing :
How do you find out these things? X
2025-03-14 06:19:07
0
healdz66 :
What made them test you if you have no symptoms and it’s so rare?
2025-03-11 21:05:30
68
Sarah Kay Cooper :
How'd they find this!? 🫂
2025-03-11 23:15:38
4
crystalerickson40 :
I have Scleroderma plus a few other autoimmune diseases. But I'm curious how you found out. Especially if you did genetic testing.🥰
2025-03-12 01:37:29
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VioletsAreBlue 🇦🇺 :
Wow. Sorry to hear. That’s unbelievably rare. Does that make you the 11th recorded person in the world to have if?
2025-03-14 22:34:57
1
lsfhw6 :
Guilty of the nervous exam room foot shake too 🙋♀️glad you're getting checked out asap 🙂
2025-03-12 09:47:14
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mrs__raines :
My father carries a super rare mutation (30 cases in literature) and is the 2nd reported case to date with zero symptoms! It’s crazy how genetics work.
2025-03-12 00:32:32
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Hannah Wedemeyer :
I have Ehlers Danlos Syndrome, waiting to see a cardiologist & genetics team.
2025-03-14 18:03:24
1
sgaitan5 :
🙏🙏🙏 My son also has a rare genetic disorder
2025-03-11 21:03:18
3
Kim Smith 1102 :
Prayers 🙏
2025-03-12 10:29:28
1
Ashley McKee690 :
My daughter was diagnosed with a rare disease in 2019. She was #6 in the world with her specific diagnosis. She has since been given a total of 3 rare diseases.
2025-03-12 17:15:47
1
Kkoruption97 :
So do your kids have this as well? Hopefully you can keep on top of this!
2025-03-13 17:06:20
0
James Swanner :
😂
2025-03-15 03:37:02
0
clayclay 🍉🍉 :
😭
2025-03-14 20:47:51
0
Logan :
😂😂😂
2025-03-14 19:18:55
0
Lelethu Hlumkeza :
🥺
2025-03-14 17:49:02
0
Maren Johnson :
🥰
2025-03-14 17:06:42
0
Jess.4 :
🤔
2025-03-14 12:38:08
0
Danica :
😁
2025-03-14 03:26:23
0
Ditte Daniella :
🥰🥰🥰🥰🥰🥰
2025-03-13 18:23:26
0
Laurence🧚♀️ :
💓
2025-03-13 11:49:55
0
deletedd2024 :
🙏🏻
2025-03-13 04:22:14
0
Meghan Cleary :
Singleton Merten? The quints said, no, Multiples Mert(o)n!
2025-03-13 02:10:26
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