paulatalkscrypto
Region: GB
Wednesday 26 March 2025 16:56:46 GMT
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davy :
Yes everyone even my family expect me to carry on like before I can’t anymore
2025-03-26 16:59:49
12
aileencolaluca :
Definitely no one understands I get judged all the time it needs to be a documentary on tv so people actually understand what it is and how to help people loved ones going through it I’d be happy to
2025-03-26 17:18:33
6
k cat :
Yes I pretend I don’t have it 😩but when everything hurts it’s hard
2025-03-26 17:09:25
5
Fibro Warrior 🏴 :
It’s very isolating having Fibromyalgia 💔
2025-04-17 17:15:11
2
pattieg7 :
Yes kind of a support group would be nice 🙏
2025-03-26 18:41:07
3
silviasilva782 :
I wish I did have a supportive network, but I don’t. I listen to Doctors who say to exercise walk but the fibromyalgia is getting worse for me. The bottom of my feet hurt now.
2025-03-27 07:34:42
2
tazmin.m :
yes struggling with life.. feel like people look at me and think there nothing wrong with you even though I'm in so much pain.. feel like none understands you 😕 x
2025-03-26 19:21:36
2
Kate :
Yes, all the time. I think as it’s an invisible illness, people don’t believe you’re suffering.
2025-03-27 05:44:59
2
Toe :
I have more bad days than good I struggle every day I just don’t have fibromyalgia I have arthritis spondylitis bowl problems liver problems and everyone thinks there is nothing wrong with me 😡
2025-03-27 08:36:57
2
bessiegeorgiou :
I do especially with my fatigue and brain fog but at work people don't understand why I don't always remember things and I feel stupid
2025-03-26 17:19:28
2
Paul Mccloskey :
Yes all the time, I made plans for today, woke up and pain unbearable. Had to let people down and on sofa
2025-03-26 17:16:47
2
MeetB :
Definitely when pains take over your body and all you do it’s cry 😢
2025-03-26 17:12:00
2
Lisa Staley846 :
I feel so alone 10 years of this it's hard for family to understand the awful pain my shoulders are so painful everyday. just don't know what to do it's awful I feel I can't do this anymore 😭
2025-03-27 13:54:47
2
We learn every day . :
A lonely life.
2025-03-27 17:01:38
1
silviasilva782 :
I haven’t been able to come to terms with this. I haven’t been able to accept this, and I don’t know how to accept this illness. I don’t know how to say it’s fine to have fibromyalgia.😭
2025-03-27 07:35:51
1
silviasilva782 :
I am not able to walk as much. I can’t even sit up straight. My head hurts, touching my hair hurts. My stomach hurts. I have swelling in different parts of my body.
2025-03-27 07:35:21
1
Paula 💗💗💗 :
yes ❤️❤️❤️
2025-03-26 17:01:14
1
gsaunders91 :
Got diagnosed with crps brought me to the point of crisis felt like i was always complaining took a while to accept it
2025-03-28 23:13:44
1
user5649544142677 :
Totally the same Iam struggling to deal with my pain Iam just learning to listen to my body but it’s so hard 😔. ❤️
2025-03-26 23:34:13
1
Mandy Collins :
i do. I've been so lonely and no one understands me. my family say it a word because dr can't be bothered to deal with me. I have no one.
2025-03-26 21:24:47
1
queen in dubow :
🖐🖐🖐🖐
2025-03-26 21:06:45
1
Hazel :
only people who are suffering with it understand! I have tried to explain to so many people but they won't fully know which is human. I felt very lonely left to deal with it.
2025-04-16 21:08:40
1
Shazza :
Yep !!
2025-03-26 17:31:56
1
Clairebelieve :
Yes fit me extra stair rail affected my walking friends thought had just
2025-03-26 17:41:24
1
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