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Detail
@svetlana_ruchiy:
user76852417702
Open In TikTok:
Region: EG
Wednesday 09 April 2025 02:25:09 GMT
1889
323
52
10
Music
Download
No Watermark .mp4 (
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Music .mp3
Comments
خالد الدولي :
Beautiful my love
2025-04-25 22:52:50
1
Emad torke🔥 :
🥰
2026-06-27 02:26:16
0
خالد الدولي :
🥰🥰🥰🥰🥰
2025-04-25 22:52:37
1
Ali Ben :
🔥🔥
2025-04-14 10:01:15
0
Dinko :
😈
2026-07-28 19:20:00
0
adnanjirjawi6 :
linda ❤️
2025-06-05 14:55:27
0
Özcan Irgil :
😇💝😇
2025-05-16 18:49:25
0
Mr 🥰RAYEEAN🇮🇳🇳🇵🇸🇦🫶 :
🥰🥰
2025-05-17 06:34:06
0
{☠️.jouvany.☠️} :
🦋🦋🦋
2025-05-17 13:29:31
0
مؤيد ابو زيد :
🔥🔥🔥🔥🔥🔥🔥
2025-05-20 14:23:15
0
Dr. Khamis 🇪🇬 :
❤
2025-05-22 11:58:45
0
منير تطاوين :
😻😻😻
2025-05-29 11:25:13
0
Ali Al Iraqi :
🥰🥰🥰🥰🥰
2025-05-30 11:31:28
0
Janko :
🥰
2025-06-02 14:22:12
0
احمد ابن العراق@ Ahmad :
❤️❤️❤️
2025-06-04 03:28:38
0
george george :
🥰
2025-06-05 05:04:10
0
george george :
🌹
2025-06-05 05:04:54
0
george george :
🥰
2025-06-05 05:04:55
0
george george :
🥰🌹🥰🌹🌹
2025-06-05 05:04:58
0
Bo B :
🥰
2025-05-14 19:55:15
0
5 :
❤️❤️❤️
2025-06-05 20:42:33
0
aslan Can :
❤
2025-06-06 13:04:29
0
كان يوم حلو :
🥰🥰🥰🥰
2025-06-14 21:52:41
0
Ahmet Yılmazgil :
🌹
2025-09-29 12:35:15
0
Ikram Ullah Shah :
😍
2025-10-17 13:26:39
0
BACHA007 :
💕
2025-12-04 17:36:40
0
aydın :
holla❤️❤️
2026-02-13 07:32:54
0
aydın :
how are you❤️❤️
2026-02-13 07:33:04
0
Ameer Hamza :
oi
2025-04-26 03:02:52
0
Helmy saed Ghoniem :
I am from Egypt and I want to get to know you. If you agree, send me a private message.
2025-04-10 02:21:48
0
ربيع الديب :
❤❤❤
2025-04-11 13:28:47
0
Б М :
💋
2025-04-13 08:01:03
0
Б М :
👍
2025-04-13 08:01:07
0
Kiriakos Salonica :
🥰
2025-04-14 06:30:00
0
جوزاء كينج بوس :
🥰🥰🥰
2025-04-14 09:46:44
0
Minaa Saad :
💋💋💋
2025-04-15 19:23:47
0
mohamedfawzy abo shaltot :
❤️❤️❤️
2025-04-15 20:01:26
0
Mohamed Samir :
🔥🔥
2025-04-24 18:08:11
0
Ameer Hamza :
hi
2025-04-26 03:02:49
1
Hamdey Medo :
You are more precious than gold
2025-05-16 07:11:33
0
Furman Imre :
♥️
2025-04-27 00:42:09
0
فراق صعب 💔 :
💋❤️
2025-04-29 18:12:57
0
Ahmed Elbasa :
🥰🥰🤩
2025-04-30 06:06:40
0
Dr Emara :
🥰
2025-04-30 08:52:20
0
باشا مصر :
🇪🇬I am from Egypt and I admire you very much
2025-05-03 08:02:40
0
TRADING EMPIRE :
🥰
2025-05-09 10:08:45
0
TRADING EMPIRE :
💋💋💋💋💋
2025-05-09 10:08:54
0
tolga :
❣️❣️❣️❣️❣️
2025-05-09 19:41:23
0
Haitham atef :
👍
2025-05-10 14:31:54
0
Haitham atef :
👍💯🥰💋
2025-05-10 14:32:02
0
To see more videos from user @svetlana_ruchiy, please go to the Tikwm homepage.
Other Videos
Ha💫 ساڈے دا انتظار کرو😁🥀❤️🩹#unfrezzmyaccount #منڈی_بہاؤالدین_آلے_✌🏻❣️ #shoaibakram
বন্ধু রেডি তো আমাদের সৈয়দপুর সরকারি কলেজ নতুন মডেল আসতেছে 🫡#tik_tok #viralvideo #foryou #video #সৈয়পুরের_ছেলে রাবিব
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The natural history of children with CLN2 Batten Disease shows that by the age of 6 they will be completely dependent on others for all their needs. They will suffer from uncontrollable seizures and movement disorders. Vision loss, loss of mobility, loss of speech and swallow all occurs before the age of 6. Quality of life will sadly be very poor and life expectancy is just 6 - 12 years 💔 Life for children on Brineura (enzyme replacement therapy) is very different. Amelia age 12 is able to sit, move around and stand independently. She walks with assistance. She is able to speak in short sentences in context and with meaning. She eats and drinks orally. Is able to use the toilet as needed and has only ever experienced two seizures in 12 years. She attends full time education, is able to access after school activities such as gymnastics with her friends and is able to express her feelings and emotions. There is not yet enough long term data to say what the life expectancy of a child on Brineura will be but we already know many are exceeding 12 years alongside experiencing a good quality of life. We are well aware that this treatment is not a cure but is giving us as a family the gift of time. A child’s life should not come down to value of money it is unfair and inhumane. STAND WITH US @Biomarin @NHS UK @This Morning #battendisease #battendiseaseawareness #olliesarmy #olliesarmybattlingagainstbattens #ameliasarmy #becauseofbrineura #standwithus #mumblog
#onthisday alaye said he used three pos shop bought benz😳…hmmm🤣. #pos #😳 #🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣 #🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣
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