@cheesesmom: I havent had any health news to share in a while so heres something new happening! #pulmonaryhypertension #lungtransplant #chronicillness #chronicallyill #spoonie #healthcare
Why was I holding my breath w you? I need to call my insurance for my asthma meds lol I need them and it shows but ughhhh
2025-04-12 23:22:55
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~ Amber Lynne ~ :
Make sure you drink plenty of water after you do that inhaler ❤️I used to have powdered inhalers growing up and I didn’t know and got thrush. Hope it helps you though ❤️❤️❤️
2025-04-28 04:12:18
5
Samone :
Does it feel like powder when you inhale?
2025-04-12 19:14:16
32
Ladyphant0mX :
The laugh you did reminded me of daz games in the best way 🖤
2025-04-14 15:47:12
1
sam :
I really hope this helps you out and gives you some relief
2025-04-12 22:18:15
21
annie :
I have PH and am waiting for new lungs too, wishing you the best!
2025-04-16 02:44:58
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Frankie 🦆 :
I haven’t seen your videos in ages, I’m assuming you’re still waiting for transplant?
2025-04-14 21:45:32
8
~ :
The health app on IPhone has a medication reminders feature- it prompts you to take them, and you mark them as taken and the times so you can keep track x
2025-04-18 01:34:11
3
rainbopagn (they/them) :
Oh. Right. I should probably start taking my inhaler regularly again…
2025-04-22 10:01:35
4
💖 Takeabreathwithalexis 💖 :
I’ve been on Tyvaso for a little while and this is lowest my pressure have been in decades. I did have some side effects at the beginning but they most subsided now.
2025-04-12 19:37:51
15
T :
Not me breathing with you🤣 I hope it helps tho! Your amazing!
2025-04-12 19:31:38
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elias.eclipse :
Just yell at your Siri or whatever to set a timer for 4 hours
2025-04-16 01:42:05
2
Caitlin💚💙 :
So what do you feel when you inhale it? Was it scary first time?
2025-04-12 21:29:58
2
chronicallyillmedstudent :
Can I ask what the medication is called? Is it some kind of nitrate?
2025-04-16 15:36:04
2
Jennifer :
I saw people doing this for diabetes so I'm confused. do they make that for all types of illneses
2025-04-15 02:03:45
2
Kimmy 🐌 🍓 :
If you don’t mind me asking Do you know what your levels were ?
2025-04-12 22:42:03
2
Anna Lisabeth :
It’s exciting to see progress - this didn’t exist for me! IV vasodilators for 19 years. I love seeing the more intermediate options ♥️
2025-04-18 21:30:45
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Amanda Pants :
I'm Amanda Jean also!
2025-04-13 03:33:55
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Harry Gadley :
is that new
2025-05-02 05:51:11
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Ry :
not me breathing with you 🤣
2025-04-14 15:32:36
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ℌ𝔞𝔫𝔫𝔞𝔥🎃👻💀 :
Does it have a taste??
2025-04-23 19:31:59
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baby girl/ stitch :
I'm praying for you
2025-04-19 19:41:52
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Julia :
set pre timed alarms!! so no need to reset
2025-05-01 07:11:40
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lotess1997 :
I was holding my breath with you 😂
2025-05-04 22:05:30
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Tracy Transplant 💙💚 :
I was told I have PHT stilll from pulmonologist
2025-04-13 04:33:56
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