@mackenzies_eb_journey: Mackenzie is our butterfly baby 🦋 She has recessive dystrophic epidermolysis bullosa, which makes her skin extremely fragile. We are determined to help raise awareness for this cruel disorder, and hope that one day there will be a cure. #epidermolysisbullosa #eb #ebawareness #butterflybaby #medicalmom #medicalmama #babytok #chronicillness #ebwarrior
why are there so many babies affected by this? i feel so sorry for those little angels😭
2025-04-19 07:00:00
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Gretchen Gabehart :
I followed precious Ellie from the start—-then found sweet Darcie—now I have your precious girl and your family in my prayers too. ❤️
2025-04-18 01:33:52
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Queenmisshy :
she so beautiful ❤️xxxx
2026-06-08 12:18:57
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ELLY :
Elli, Darcie, Tova and Mackenzie ❤️My heart is with all children who’s going through this. 🥺
2025-04-18 05:03:04
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@CJ.quik :
Too many of these precious 🦋 babies.
2025-04-17 20:35:12
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daneeecca :
She’s so precious! Ever since I heard of Ellie, more and more of these babies keep coming up. 🥺 I pray for the cure because no babies should go through any pain at such a young age 🤎🤍🤎🤍
2025-04-18 02:05:44
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adriana :
Hi Mackenzie, welcome to TikTok. Here we're going to give you lots of love. You arrived when EB is being seen thanks to little Ellie.🦋🦋
2025-04-18 03:03:38
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Tara Crabtree :
I hope she lives a long happy life
2025-04-18 01:52:56
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Mayely 🩵 :
EB awareness has definitely reached out to me .. first Elliana then Darcie and now Mackenzie … praying for all the babies 🥺❤️
2025-04-18 00:09:40
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CristalCoraima :
Presious Mackenzie 🥰 Babys with EB have tought me there is no room for complaining in life, you momma are super strong and that is also a learning. God bless!
2025-04-17 23:41:24
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Diane harris :
prayers for this sweet baby
2025-04-18 21:42:58
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Vintage Vic :
hello from Connecticut! Mackenzie is so full of light!! ❤️❤️❤️💯
2025-04-18 00:46:04
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Cherish Lour955 :
I pray for a complete healing in the name of Jesus Christ Amen
2025-04-18 02:08:58
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Brittany Hoerchler :
Fun fact: liking and replying to comments boosts more! also referencing popular things like chapell roan and taylor swift puts this video to the fyp of ppl that have watched relate content
2025-04-20 01:29:16
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*Zajarism* :
why do so many precious little souls keep popping up with this. 🥺
2025-04-18 21:11:31
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meganvanderhorst6 :
She is precious!! Prayers and love to your little Mackenzie. 🦋
2025-04-18 01:40:18
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ARIELL💋 :
Estoy decidida a seguir a todas l@s hermos@s mariposas, tal vez sea un aporte que ayude en algo.. oro por una pronta cura 🙏🏻
2025-04-18 14:06:20
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rgarcia🧿🕉 :
She is so beautiful!! May God bless her and they find a cure for her and all theses children that suffer with this disease. 🙏Healing Prayers!!
2025-04-17 23:25:31
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Marlys Januari :
Hello sweetbaby.. kiss n hug from Indonesia, be healed in the name of Jesus
2025-04-18 03:18:14
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🩵🦋ashwight🦋🩵 :
She’s beautiful momma!!. 🦋
2025-04-17 23:16:37
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Carragh83🏴 :
She is so beautiful 😊❤️
2025-04-18 17:37:44
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Holly Mcguirk :
she's gorgeous 🦋
2025-04-18 21:23:43
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sweetblessing46 :
Oh baby, you don’t deserve this 😩❤️
2026-06-20 22:58:00
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Kylie :
hello beautiful girl ❤️🦋
2025-04-18 06:30:39
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not.your.typical.momof3 :
😩💙💙 She's soo precious, mama! Learning about EB has really opened my eyes. I can't believe what these babies and their families endure. I love how she smiles through it all though🦋
2025-04-17 23:15:53
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