@mackenzies_eb_journey: Here’s a glimpse into a morning with Mackenzie. She has multiple medical appointments each week, and frequently struggles to eat like she did this morning. This is a little view into what our life looks like these days! #ebawareness #eb #epidermolysisbullosa #butterflybaby #ebwarrior #medicalmom #medicalmama #babytok #genetics #fyp

Mackenzie’s EB Journey 🦋
Mackenzie’s EB Journey 🦋
Open In TikTok:
Region: US
Tuesday 22 April 2025 23:48:14 GMT
129248
6373
191
91

Music

Download

Comments

itchelchelle
🌙 :
💔😭 another baby w/ EB ! Why ?😭Ellie Darcie and Mackenzie
2025-04-23 15:08:58
87
mjganongansuyayen
Mj Su :
Mckenzie, the cleanest EB baby I saw in tiktok, well done mommy
2025-04-26 01:28:44
21
sophiethelou
Dasha&Emeryck 🦋🦋🦋 :
so much prep in getting littles ready to go with EB. she's beautiful and you're doing amazing ❤️🦋 from a fellow mama to two with jeb
2025-04-23 00:09:44
46
animallover85
animallover85 :
I’m new here. When you say you “lanced her wounds” what does that mean?
2025-04-27 04:09:58
6
kmhfelix
Krystal :
EB parents are warriors like their little butterfly babes 🦋 I didn’t even consider the public diaper change situation for an EB baby. Sending you all well wishes 🙏🏻♥️
2025-04-23 16:24:40
33
deedeek88
Deedee k :
I don't think Parents with healthy children can really understand how hard it is to sit through an appointment when you're told about what your child's life may or will be like 😔 😢
2025-04-29 00:23:10
6
suzmohn
suzmohn :
such a cutie. praying for a miracle 🙏
2025-04-23 03:45:30
9
fennyogollah
fennyogollah :
Praying for you little one.
2025-04-24 04:34:41
2
karinna187
Karinna pope :
Poor baby. You are such an awesome mom. 🥰
2025-04-23 07:49:59
6
theblueyedfox4
🦋ApREAL🦊 :
we are here with yall fighting EB. I'm so sorry yall are going through this. please reach out to some of the other EB mama's if you haven't 🙏 they are all so sweet 💙
2025-04-23 04:35:51
9
kyle56703
kyle56703 :
She a Doll !!
2025-04-23 03:00:19
2
sevannad
sevannad :
She’s so cute ! Awe - very tough news. Giving strength to your family.
2025-04-23 00:19:36
3
donna.taneyhill
Donna Taneyhill :
Thoughts, Prayers and love for Mackenzie and Mom and dad! You are doing a wonderful job with all you are dealing with! ❤️🙏🙏🙏🙏🙏🙏
2025-04-23 03:31:43
0
scarlettezradaisy
SUSAN MAC :
Put liquid meds down the inner cheeks. Prevents aspiration
2025-04-28 10:04:05
3
livlexy2
livv :
Thank you for sharing your day! I pray for strength and mackenzie’s recovery ❤️‍🩹 🙏🙏
2025-04-23 04:43:37
2
elisavmaglio
Elisa Maglio :
oh mary. thinking of you always.
2025-04-23 02:20:43
1
rubygyrl3
💛Renie🌻Marie🩵 :
She is beautiful 🥰🥰 your doing amazing job Mama 🙏🦋
2025-04-23 00:25:46
3
pameti29
pame :
nueva seguidora bendiciones para esa familia bello, mi mackenzie robo mi corazon 😍 Dios ara un milagro en ella amen🙏
2025-04-23 03:46:15
1
elviuri845
ELVI Uri :
God is with you💞
2025-04-23 12:06:35
2
itsmemaricar.27
Maricar Paningbatan :
Praying for your baby🙏🏻
2025-04-24 03:55:52
1
user1676836121743
user1676836121743 :
God bless you sweete ❤️🙏🌺
2025-06-03 21:31:59
0
ruthie0590
Ruthie :
God bless you darling girl. so sorry for your troubles. What a dreadful thing for your baby and you t o deal with. Thank goodness for t he medications to help her a bit. xxxxxxx
2025-06-23 20:55:38
0
molly.macca6
Molly Macca :
I'm so sorry
2025-06-21 13:01:40
0
seidelhouse
Moe's mom :
You are amazing.
2025-06-17 15:32:08
0
kaywales568
kaywales568 :
mommy well done you r the best 💕 poor baby 💓
2025-08-15 20:21:43
0
To see more videos from user @mackenzies_eb_journey, please go to the Tikwm homepage.

Other Videos


About