Ty Ford
Region: US
Wednesday 30 April 2025 19:46:07 GMT
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user2416411987065 :
Hi I got diagnosed with cervical dystonia in January horrible condition
2025-05-20 15:19:13
5
titlesharon :
How did the Dr diagnose cervical dystonia vs tics or tardive dyskenesia or myoclonic seizures?
2025-05-03 22:47:28
5
Mina :
Lyrica helped me a lot as well as vitamin b6 and magnesium glycinate. still have symptoms, but less often. I also get botox.
2026-05-20 07:54:52
2
Pammy :
Have they checked if it's autoimmune related? Sending lots of prayers and healing energy my friend🙏✨️NEVER stop searching for answers I had too for my chronic illness plus many years of physio ♥️🤗💪
2025-04-30 23:26:07
1
gbyhnri :
do muscle relaxers help?
2026-01-28 05:54:31
0
MadeSimple with Barbara :
just say the name of Jesus and He will heal you
2025-06-09 03:36:20
11
Jill Price :
I also suffer from dystonia! I just had DBS surgery in Mar! It’s a hard walk/journey but I am still having faith that it will help once they figure out the right setting… ❤️❤️❤️praying for you fellow dystonia warrior! It’s a lonely and painful road
2026-08-16 01:08:35
1
daniaysantos :
This had me in tears.I am trying to watch videos of what other people go through with dystonia and kind of educate myself some on it. I had a car accident in March and 2 weeks after the symptoms started and finally diagnosed a month ago. My neurologist is doing EEG on me soon as certain eye movements trigger the tremors and spasms and vocal box. It is very frustrating and messes with your mental health. Stay strong and I hope you can find some type of relief.
2025-07-22 14:52:44
1
Tammy Madden 🇨🇦 :
I was diagnosed 13 years ago. It has ended my teaching career. Every day is a battle. I get 130 injections of Botox every 3 months. One day at a time my friend. You are not alone ❤️
2025-05-11 22:55:00
5
thistrippyhippie • evie meg :
always here for you 💜
2025-04-30 21:26:37
8
𝑅❁𝓈𝑒𝓁𝒶𝒹𝓎A𝓅𝓇𝒾𝓁 🌹 :
I understand. I hate it. I also get Botox. I am so self conscious about it. It is really annoying. Prayers…
2025-06-29 14:34:55
12
lyndzee.r.n :
this just started for me a week ago. I am really habing a hard time with adjusting to a new norm for me. at times I feel like I can't go on.
2025-05-05 11:08:34
6
tabithabrooks46 :
Do u do pain management?
2025-04-30 20:47:28
1
12429458mj :
sorry i had the condition for 6 years i got botox and tetrabenazine it helps a little but i went for herbal treatment I'm okay now
2025-05-22 09:03:20
1
🌟Andrea🇨🇦🌟 :
I can totally understand, and it is painful, I’ve had dystonia for many years, I get spasms everywhere, but my neck is the worst, i’ve been leaning to the right for a long time 😬🥰
2025-04-30 23:01:07
7
Bama :
Tyler: I’m sending you all my thoughts and prayers for you to improve. I know what you’re going through right now so hold tight to your faith and remember to keep all options open. God bless you my friend!
2025-04-30 23:11:57
3
Italian_Princess :
This is exactly what I think I have. I’ve done everything it’s been going on for 2 1/2 months waiting for an MRI.
2025-07-18 00:11:20
3
Consolata Nganga❤️ :
I'm so sorry,my heart aches for you ,you are in my prayers
2025-05-02 09:12:28
8
🌙 Lori ☀️✨ :
Have you posted a video of you after the Botox starts to work ? I’d like to see how it improves your symptoms. If you ever feel like doing one. Ty my friend stay strong. 💪🏼 💕🌸
2025-05-06 15:41:31
1
LynneK 🎀 :
did u ever have any concussions ?
2025-05-01 15:44:49
2
Kim Greene :
Omg Hugs wow and I thought my neck issues were bad. I'm so so so sorry. 🤗🤗🤗
2025-05-27 21:12:06
1
Jessica :
I would really look into testing for bartonella. You have these symptoms for a reason and it’s likely liked to tickborne. Vibrant wellness or MDL testing
2025-05-13 00:45:46
2
official mar :
How are you now ? I was just diagnosed with this a couple days ago. Mine seems early I’m just having neck pain and slightest tilt to the right.
2026-01-28 16:05:37
4
Fernandopavaojr :
como vc está hoje ? e qual tratamento está fazendo?
2025-12-31 03:43:11
0
Liz :
my eyes also want to close
2025-05-11 03:45:05
1
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