@mackenzies_eb_journey: Mackenzie has a few new oral blisters that popped up this afternoon- a couple on her gums, one on her lower lip and one on the tip of her tongue. Thankfully they’re all small and haven’t kept her from eating. Lancing the blisters in her mouth is my least favorite thing that I have to manage for her EB, it’s heartbreaking. These oral blisters are a part of Mackenzie’s EB that happen way too often. #epidermolysisbullosa #ebawareness #findacure #chronicillness #butterflybaby #medicalmom #babytok #fyp
Why is it that the EB babies are like top tier absolutely gorgeous?!
2025-05-04 04:46:19
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user212414942358 :
May god heal this child. Amen
2025-05-04 04:46:15
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Kristintaylor026 :
Lord, please heal this precious baby in Jesus name ❤️✝️💕
2025-05-05 05:33:02
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kasiana :
this must be painful. sending love princess
2025-05-04 02:36:49
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🦋ApREAL🦊 :
hi sweet MacKenzie 💙 always praying for you and your comfort. praying for a cure.
2025-05-04 20:50:07
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Orbán Kata :
Mackenzie is beautiful. It’s incredible how strong and warrior-like she is, even as a baby🦋💕
2025-05-04 01:36:15
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girlygirl :
This disease breaks my heart 💔🙏
2025-05-05 01:54:30
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Sally Mazzola :
I can’t even imagine her pain .. you are an amazing Mom who had to become a nurse you are so lucky to have each other 💜
2025-05-04 01:43:02
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PurpleBug4 :
EB babies are the strongest!
2025-05-04 16:53:25
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SLK :
Poor sweet babe 🦋💙
2025-05-04 18:30:33
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Tearaxo 🧚🏼♂️ :
What a cruel world we live in. Sweet innocent babies should never know this type of torture 😢.
2025-05-04 04:55:27
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Angel-Marie💟 :
She’s so beautiful, praying for comfort for dear Mackenzie 🦋💗
2025-05-04 02:28:23
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user2718847542973 :
Her beautiful smile 🥰
2025-05-04 12:23:52
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McKittyKat🫵🏼F♥️E🫵🏼 :
Beautiful sweet baby, lord let the world be kind to her 🥺🙏❤️
2025-05-05 01:59:45
13
JANYELICA👑🌸🫦❤️🔥 :
My beautiful girl Makenzie is so precious. I hope she's much better in the morning. 🙏♥️🦋
2025-05-04 02:22:41
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Indira López Portilla :
Mackenzie deseo de todo corazón que pronto mejores, que nuestras oraciones sean escuchadas por papá Dios, sé que para Dios nada es imposible, eres una guerrera y un bello ángel💗
2025-05-04 03:31:02
22
Clauu :
Bendito Dios porque hacerlos sufrir. Acepto todo dolor por estas criaturas . Perdoname que sé que tengo hijs y niet pero no lo soporta mí alma. 💔💔💔💔😢
2025-05-04 12:07:27
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Denisse Urrutia :
Dios mío que no sufra dolor está hermosa pequeña, ruego por su sanación
2025-05-04 03:39:07
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ᴀʙʏꜱꜱ :
She has the most beautiful, innocent and dreamt eyes 🥺💞 she’s such a strong girl and just makes me so happy seeing her smile
2025-05-04 02:26:41
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addcute_21 :
oh no her eyes same with ellie 🥺✨
2025-05-05 18:41:38
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marypower177 :
heart chain 🙏🙏🙏♥️♥️♥️
2025-05-04 14:40:23
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Ria :
Shes so cute and reminds me so much of another little girl on here with EB called darcie 🦋 they have the same beautiful smile 💗💗
2025-05-04 20:06:50
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🌿🌻 Gutiérrez 🌻🌿 :
Diosito , por favor q ella mejore en el nombre de Dios amado🦋🦋🦋
2025-05-04 03:10:25
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vtwinaddicted :
you are a great momma😁❤️
2025-05-04 02:31:55
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Yevheniia Honcharuk :
серденько❤️я так хочу щоб всі вилікувалися від цеі хвороби назавжди
2025-05-04 11:30:21
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