@mackenzies_eb_journey: Mackenzie has a few new oral blisters that popped up this afternoon- a couple on her gums, one on her lower lip and one on the tip of her tongue. Thankfully they’re all small and haven’t kept her from eating. Lancing the blisters in her mouth is my least favorite thing that I have to manage for her EB, it’s heartbreaking. These oral blisters are a part of Mackenzie’s EB that happen way too often. #epidermolysisbullosa #ebawareness #findacure #chronicillness #butterflybaby #medicalmom #babytok #fyp

Mackenzie’s EB Journey 🦋
Mackenzie’s EB Journey 🦋
Open In TikTok:
Region: US
Sunday 04 May 2025 01:29:38 GMT
509103
13989
397
141

Music

Download

Comments

cw.illingworth
Catherine W. Illingworth :
Why is it that the EB babies are like top tier absolutely gorgeous?!
2025-05-04 04:46:19
654
bluegreen492
user212414942358 :
May god heal this child. Amen
2025-05-04 04:46:15
77
kristintaylor026
Kristintaylor026 :
Lord, please heal this precious baby in Jesus name ❤️✝️💕
2025-05-05 05:33:02
137
kasiana450
kasiana :
this must be painful. sending love princess
2025-05-04 02:36:49
7
theblueyedfox4
🦋ApREAL🦊 :
hi sweet MacKenzie 💙 always praying for you and your comfort. praying for a cure.
2025-05-04 20:50:07
14
opkata469
Orbán Kata :
Mackenzie is beautiful. It’s incredible how strong and warrior-like she is, even as a baby🦋💕
2025-05-04 01:36:15
93
user3817063203460
girlygirl :
This disease breaks my heart 💔🙏
2025-05-05 01:54:30
20
sallymazzola19
Sally Mazzola :
I can’t even imagine her pain .. you are an amazing Mom who had to become a nurse you are so lucky to have each other 💜
2025-05-04 01:43:02
52
desireejeanene
PurpleBug4 :
EB babies are the strongest!
2025-05-04 16:53:25
6
slk_1987
SLK :
Poor sweet babe 🦋💙
2025-05-04 18:30:33
8
lovetearaxo
Tearaxo 🧚🏼‍♂️ :
What a cruel world we live in. Sweet innocent babies should never know this type of torture 😢.
2025-05-04 04:55:27
393
mariejeffrey24
Angel-Marie💟 :
She’s so beautiful, praying for comfort for dear Mackenzie 🦋💗
2025-05-04 02:28:23
9
yarrowjeanie222
user2718847542973 :
Her beautiful smile 🥰
2025-05-04 12:23:52
19
mckittykat1
McKittyKat🫵🏼F♥️E🫵🏼 :
Beautiful sweet baby, lord let the world be kind to her 🥺🙏❤️
2025-05-05 01:59:45
13
janyelica21
JANYELICA👑🌸🫦❤️‍🔥 :
My beautiful girl Makenzie is so precious. I hope she's much better in the morning. 🙏♥️🦋
2025-05-04 02:22:41
18
indi_lopez_portilla
Indira López Portilla :
Mackenzie deseo de todo corazón que pronto mejores, que nuestras oraciones sean escuchadas por papá Dios, sé que para Dios nada es imposible, eres una guerrera y un bello ángel💗
2025-05-04 03:31:02
22
clau_moreno__
Clauu :
Bendito Dios porque hacerlos sufrir. Acepto todo dolor por estas criaturas . Perdoname que sé que tengo hijs y niet pero no lo soporta mí alma. 💔💔💔💔😢
2025-05-04 12:07:27
30
deni_urrutia
Denisse Urrutia :
Dios mío que no sufra dolor está hermosa pequeña, ruego por su sanación
2025-05-04 03:39:07
22
volatileabyss
ᴀʙʏꜱꜱ :
She has the most beautiful, innocent and dreamt eyes 🥺💞 she’s such a strong girl and just makes me so happy seeing her smile
2025-05-04 02:26:41
31
pdadj_
addcute_21 :
oh no her eyes same with ellie 🥺✨
2025-05-05 18:41:38
8
marypower177
marypower177 :
heart chain 🙏🙏🙏♥️♥️♥️
2025-05-04 14:40:23
7
riaxxuaqdtm
Ria :
Shes so cute and reminds me so much of another little girl on here with EB called darcie 🦋 they have the same beautiful smile 💗💗
2025-05-04 20:06:50
5
gutierrezali6
🌿🌻 Gutiérrez 🌻🌿 :
Diosito , por favor q ella mejore en el nombre de Dios amado🦋🦋🦋
2025-05-04 03:10:25
4
vtwin_addicted
vtwinaddicted :
you are a great momma😁❤️
2025-05-04 02:31:55
4
jenichka701
Yevheniia Honcharuk :
серденько❤️я так хочу щоб всі вилікувалися від цеі хвороби назавжди
2025-05-04 11:30:21
1
To see more videos from user @mackenzies_eb_journey, please go to the Tikwm homepage.

Other Videos


About