@lifewithadifference: “When I was diagnosed, there were only eight of us in the world with MDP syndrome.” Dylan Lombard from @Be Yourself Dylan shares the long, uncertain road to a diagnosis, life with MDP syndrome, photography, how a news story changed everything, and how a TikTok seen by @ladygaga helped raise awareness of this incredibly rare condition. “We all have a story to tell, and we shouldn’t be afraid of telling that story.” #RareDiseaseAwareness #MDPSyndrome #VisibleDifference #DylanLombard #DisabilityAdvocate #LifeWithADifference #ChangingFaces #RepresentationMatters #TiktokForChange #AdvocacyWork #LadyGaga #SocialMediaForGood