jackiebaby___
Region: US
Friday 16 May 2025 21:37:43 GMT
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autumn.naramore :
Dental hygienist (also being evaluated for EDS) here, I know how frustrating it can be having a body constantly working against you. Just keep doing the best that you can 🖤 If you feel like your dentist/hygienist isn’t giving you tips to try to help combat the decay or they aren’t being understanding of the EDS, don’t be afraid to reach out!
2025-07-15 13:43:24
1
bootycaaaaaake :
Tell them to put in your file the refusal for a diagnosis.
2025-05-16 21:43:24
72
Ashley :
i’m pretty sure i have this lol i have almost every symptom. i got veneers earlier this year bc my teeth were literally chipping & breaking from my TMJ
2025-07-17 22:38:58
1
Avalon :
im 40 I brush and floss as told . my teeth are crumbling in my head. I wake up some mornings feeling like im chewing on sand. I second ypur cry for a cure . i don't want this for my daughters.
2025-05-16 21:56:26
104
Chris :
do you also feel that your teeth are loose all the time? and get random pain that, when brought up to the dentist, you're told "there's nothing there"??
2025-05-17 17:29:59
15
Ghostie Girlie 👻🤍🏳️⚧️ :
39 yrs old w/ hEDS here and I haven’t been able to chew since March 2023 bc of the intense decay. I have to get full mouth extraction and implants. EDS can’t tolerate dentures because of our soft tissues and bones. It’s also an elective surgery with high risk bc🩷
2025-05-17 18:28:38
1
Madison LeMaster :
I have EDS and lately I’ve been gargling saltwater 1x day and using baking soda paste on the teeth I can feel decay in like 2-3x week and flossing with actual floss and it’s helped a lot. I know you’ve probably tried these and I’m so sorry you’re dealing with this
2025-06-13 07:22:23
1
funkmaster111 :
WHAT this is why
2025-07-01 02:14:46
1
Gabriel :
Sorry love
2025-06-10 20:55:37
1
lanell.creates :
Girl, me too right now!
2025-05-30 17:47:44
1
julie 🦅 :
it’s crazy piecing together all the different problems I deal with to one condition 😭 like my tmj, joint issues, pin and needles, restless leg, tinnitus, POTS, etc… I was the #1 patient at my doctors office b4 we figured it out 🤣🤣
2025-05-17 22:53:02
6
Sibby :
I had braces but my teeth keep shifting. And after pregnancy, my teeth going bad fast forwarded. Lol
2025-05-20 11:59:41
3
Xiongkittens :
I just got half of my teeth extracted on Monday for this reason, but they started breaking. I’ll get the other half removed in a few weeks then dentures. 27 and EDS and Gastroparesis has taken a lot from me
2025-05-17 03:55:07
23
KBerg :
Prescription toothpaste has been a sudden game changer in my life but I had to ask for it specifically even tho I was getting fillings every year. I can feel my teeth are better already.
2025-05-17 12:19:29
25
millamoon :
I have also hEDS and have had problems with cavities too.. I did the 6 months xylitol protocol and haven’t had new cavities after that. You basically use one back of 100% xylitol bubblegum a day. Xylitol destroys the bacteria that causes cavities.
2025-05-17 16:50:00
1
Absurd.Arts :
It’s the gums, you need to use coconut oil after brushing and flossing, since coconut oil take away bad bacteria and leaving the good ones behind so the teeth is naturally strengthen by your saliva. This helped me with cavities
2025-05-17 13:00:55
5
Celestie :
Mixed connective tissue disorder here: my teeth problems stopped once I started wearing invisible aligners with the prescribed foam- no more pain/no more cavities
2025-05-17 03:03:58
3
ren 💋 :
so sorry you're going through this 💔 i feel seen by how you're feeling - ty for sharing. i finally found a dentist who was helpful for me, she suggested oil pulling & clove oil. does not fix the core sadly with the hyper mobility but it has deeply improved my quality of life with the pain & the falling apart sensitivity 💔
2025-05-27 23:15:08
2
Elissa Crowe :
With Eds, people can also be more likely to have sleep disorder breathing/ apnea/mouth breathing/tongue tie. Look into a myo functional therapist?
2025-05-29 05:15:04
1
saane :
I saw a dentist on here say that she actually found that women have a different ph in their saliva so that’s usually why women seem to suffer more from cavities but I’m not an expert
2025-05-17 02:36:53
12
Bea Minor :
My teeth!!! I all of a sudden was diagnosed with 8+ cavities and they aren't your normal cavities. They are weird like the bottom point of my front k9?? What!?
2025-05-18 08:00:50
1
Taylor♉ :
Hi! I've dealt with bad teeth my whole life, I have at least one filling in just about every tooth in my mouth. I have a crown. Sometimes genetics isn't on our side and that's ok. I know it's frustrating but it's not your fault
2025-05-16 23:56:00
65
Kim 4 minions in tow :
My teeth are a mess due to EDS
2025-05-18 00:14:27
1
Kristin (wedding photographer) :
What products do you use because most of them won’t help
2025-05-19 21:49:31
1
maddiemanfio :
xylitol gum throughout the day helps me a lot it kills the bacteria that cause cavities :) also rx toothpaste helps
2025-06-20 19:47:03
1
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