Unseen & Believed
Region: US
Thursday 22 May 2025 00:20:40 GMT
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HighHopes :
I was 33 when I finally got a diagnosis! And honestly getting treatment has been just as hard as getting the diagnosis 😬
2025-05-22 07:12:51
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Mary C :
100% true my Daughter kept coming home from Drs appointments after being told it was anxiety, finallybage 24 thisnyears she got the hEDS diagnosis but now nobody cares or will help 😏
2025-05-22 13:48:12
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Cris :
I’m not diagnosed yet but thankfully my new neurologist believe me and send the genetics to rule out the others types, but he is sure i have HEDS
2025-05-22 06:00:33
2
Toadally autistic | disabled🦓 :
I was diagnosed about three years ago and have no management for it in my country. I'm in a wheelchair now
2025-05-22 12:06:33
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happycat 🇸🇪 :
I wasn't diagnosed until last year. I had numerous pt say it was probably heds but Drs didn't care. I would regularly take breaks between Drs bc it was so draining. I'm getting a wheelchair in a few weeks bc of the care delay
2025-05-22 08:36:57
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