@mackenzies_eb_journey: We’re on vacation for a family wedding, but caring for Mackenzie’s EB is a constant part of our trip. We always have to be ready to take care of her skin and address her pain. #ebwarrior #epidermolysisbullosa #medicallycomplex #medicalmom #fyp #travel #babytok #woundcare #wedding
you two are doing an amazing job loving and taking care of Mckenzie ♥😁
2025-05-23 20:13:30
4
Daniellad :
One of my best friends all the way through school had severe EB, he brought a very special love light and happiness to this world for 23 years, I see the same twinkle in your little ones eyes 🥲
2025-05-24 14:19:34
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tavera :
Every momma needs to hear but you are doing great!!! 🥰🦋
2025-05-23 01:52:21
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Dasha&Emeryck 🦋🦋🦋 :
i know this EB journey isn't easy but you're doing absolutely amazing with her. you can see how happy and well taken care of she is. this road isn't easy but it is so worth it. always here if you need a friend who fully gets this road
2025-05-23 01:41:26
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danielle :
you both are doing such a great job. ❤️
2025-05-23 03:32:06
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Laura Rae :
This breaks my heart for all of you.
2025-05-23 01:55:50
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laylandkirby :
poor princess no child deserve this 😢
2025-05-24 19:27:06
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Krystal :
You are the perfect mom for Mackenzie and your girls 🩷 I hope you give yourself the credit you deserve ☺️
2025-05-23 04:45:22
9
Kasey Wallentine :
Wow, you’re doing an absolutely incredible job. ❤️I know this must have been so stressful to be everything/ and everywhere at once.
2025-05-23 15:14:02
34
Courtney || SAHM :
You’re doing amazing mama! I know it’s not easy but y’all are doing amazing! 💗🦋🙏
2025-05-23 03:01:56
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Kylene | Boots and Balayage :
Sweat Mackenzie you are so loved
2025-05-23 04:56:08
9
JANYELICA👑🌸🫦❤️🔥 :
Mom, you do it amazing, always prepared🥺🦋
2025-05-23 03:53:33
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suzmohn :
you are really doing an amazing job. hope for a miracle 🙏
2025-05-23 03:40:55
4
Chiquinquira Guzman🪬 :
Mamá eres simplemente increíble!🦋🙏🏻
2025-05-23 03:14:36
2
AppochaDaddy :
You are amazing parents and doing great!
2025-05-23 04:04:23
5
veken_do_it :
I'm so sorry 😭 what a hard journey for all of you 😔
2025-05-23 06:47:04
5
💛Renie 🦋🐚Marie🩵 :
Beautiful Mackenzie 🥰 Mama your doing an amazing job ❤️
2025-05-23 02:10:27
3
Halloweengirl👻🎃👻🎃 :
poor baby
2025-05-24 02:14:46
4
Dena_SC GEN ❌ :
May God lay his hands on this family and give Mackenzie some relief, if not the new trial but by his grace! What a beautiful family and how they acknowledge & include her! She is beautiful! God bless you all!
2025-05-26 09:21:22
5
Merly Teran :
Dios la bendiga hermosa princesa
2025-05-23 01:42:28
1
Anne/Heroes for Hallie Grace :
You’re doing amazing!! ❤️
2025-05-23 01:51:46
1
magz :
Poor baby 💔🦋
2025-05-23 18:26:38
1
Sam_The_Cheese :
Good job momma and dada. Life keeps going and she is ready for the ride! 🌸💜
2025-05-23 05:55:47
1
Chub :
You're doing awesome Mom and Dad! Keep up the good work!
2025-05-23 13:19:18
1
Katie Marie Nelson :
Hugs and prayers mama. You’re so wonderful 🥰
2025-05-24 02:02:33
1
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