@mackenzies_eb_journey: We’re on vacation for a family wedding, but caring for Mackenzie’s EB is a constant part of our trip. We always have to be ready to take care of her skin and address her pain. #ebwarrior #epidermolysisbullosa #medicallycomplex #medicalmom #fyp #travel #babytok #woundcare #wedding

Mackenzie’s EB Journey 🦋
Mackenzie’s EB Journey 🦋
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Region: US
Friday 23 May 2025 01:33:14 GMT
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vtwin_addicted
vtwinaddicted :
you two are doing an amazing job loving and taking care of Mckenzie ♥😁
2025-05-23 20:13:30
4
daniellad2002
Daniellad :
One of my best friends all the way through school had severe EB, he brought a very special love light and happiness to this world for 23 years, I see the same twinkle in your little ones eyes 🥲
2025-05-24 14:19:34
0
taverap21
tavera :
Every momma needs to hear but you are doing great!!! 🥰🦋
2025-05-23 01:52:21
736
sophiethelou
Dasha&Emeryck 🦋🦋🦋 :
i know this EB journey isn't easy but you're doing absolutely amazing with her. you can see how happy and well taken care of she is. this road isn't easy but it is so worth it. always here if you need a friend who fully gets this road
2025-05-23 01:41:26
537
mamamarine8
danielle :
you both are doing such a great job. ❤️
2025-05-23 03:32:06
129
goefamgoe
Laura Rae :
This breaks my heart for all of you.
2025-05-23 01:55:50
67
laylandkirby
laylandkirby :
poor princess no child deserve this 😢
2025-05-24 19:27:06
39
kmhfelix
Krystal :
You are the perfect mom for Mackenzie and your girls 🩷 I hope you give yourself the credit you deserve ☺️
2025-05-23 04:45:22
9
mini_queso0
Kasey Wallentine :
Wow, you’re doing an absolutely incredible job. ❤️I know this must have been so stressful to be everything/ and everywhere at once.
2025-05-23 15:14:02
34
oilfield_wifeyof4
Courtney || SAHM :
You’re doing amazing mama! I know it’s not easy but y’all are doing amazing! 💗🦋🙏
2025-05-23 03:01:56
27
bootsandbalayage
Kylene | Boots and Balayage :
Sweat Mackenzie you are so loved
2025-05-23 04:56:08
9
janyelica21
JANYELICA👑🌸🫦❤️‍🔥 :
Mom, you do it amazing, always prepared🥺🦋
2025-05-23 03:53:33
48
suzmohn
suzmohn :
you are really doing an amazing job. hope for a miracle 🙏
2025-05-23 03:40:55
4
chiquinquiraguzma
Chiquinquira Guzman🪬 :
Mamá eres simplemente increíble!🦋🙏🏻
2025-05-23 03:14:36
2
appochadaddy
AppochaDaddy :
You are amazing parents and doing great!
2025-05-23 04:04:23
5
veken_do_it
veken_do_it :
I'm so sorry 😭 what a hard journey for all of you 😔
2025-05-23 06:47:04
5
rubygyrl3
💛Renie 🦋🐚Marie🩵 :
Beautiful Mackenzie 🥰 Mama your doing an amazing job ❤️
2025-05-23 02:10:27
3
kayloveandrea
Halloweengirl👻🎃👻🎃 :
poor baby
2025-05-24 02:14:46
4
dena_sc
Dena_SC GEN ❌ :
May God lay his hands on this family and give Mackenzie some relief, if not the new trial but by his grace! What a beautiful family and how they acknowledge & include her! She is beautiful! God bless you all!
2025-05-26 09:21:22
5
merlyligdijhon
Merly Teran :
Dios la bendiga hermosa princesa
2025-05-23 01:42:28
1
hallieflies
Anne/Heroes for Hallie Grace :
You’re doing amazing!! ❤️
2025-05-23 01:51:46
1
maggiehudson6
magz :
Poor baby 💔🦋
2025-05-23 18:26:38
1
sam_colby_cheese
Sam_The_Cheese :
Good job momma and dada. Life keeps going and she is ready for the ride! 🌸💜
2025-05-23 05:55:47
1
chub9132
Chub :
You're doing awesome Mom and Dad! Keep up the good work!
2025-05-23 13:19:18
1
katiemarienelson164
Katie Marie Nelson :
Hugs and prayers mama. You’re so wonderful 🥰
2025-05-24 02:02:33
1
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