Char | allthings_womenshealth
Region: GB
Thursday 29 May 2025 07:54:46 GMT
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Nellenorx :
Not to mention the only real difference between endo and cancer is that endo strangles surrounding healthy cells and cancer just out right destroys them (same effect diff method) and you know diagnosis time for endo is like 10 years
2025-05-29 16:50:30
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Jade 🏴♿️ :
My auntie died from it. She'd had deep-infiltrating endo in her large bowel and her uterus was stuck to her bowel. They didn't listen to her for years when she complained of her symptoms, then once she was diagnosed, they didn't listen to her when she asked for a hysterectomy. Said she "might want more kids" even though she knew she didn't and her husband had, had the snip. Her husband had to advocate for her and argue with all these specialists until they finally agreed to give her a hysterectomy and that's when they discovered her uterus was stuck to her bowel. When trying to separate them, they made a mistake and nicked her bowel, leaving her with a stoma for the next 20 years. She was still bedridden from pain, the operation didn't help her much unfortunately. Then, in 2019, she was rushed to hospital because her stoma wasn't working anymore. Endo and surgery adhesions had blocked her small bowel as well. Again, this was AFTER a hysterectomy, which, at the time she was diagnosed, a hysterectomy was thought to be a cure. It obviously is not, we know that now. But it was thought to be back then. They said there was nothing more they could do for her after her small bowel blockage and just let her die. Endo is so much more than a bad period. I knew I had endo as well at the time that my auntie died but no doctors were listening to me either and it was so scary to watch her die whilst at the same time knowing I might be headed down that same path. After she died, I had such a bad flareup that summer and I remember I was laying in bed crying one day not knowing what to do bc my gynaecologist wasn't listening to me and I closed my eyes briefly and when I opened them again there was a white feather resting on my arm. I had no windows or doors open, nothing. I choose to believe that was my auntie telling me to fight. And I did and I ended up getting my diagnostic laparoscopy later that year, and got diagnosed with endometriosis 30th Dec 2019. I still miss my auntie everyday and wish she was here to talk to, but I hope that wherever she is she at least doesn't have to suffer this god awful pain anymore. 💛
2025-05-30 19:18:11
429
Brianna Faith Staffo :
Seeing that most of my symptoms match up. How do I go about actually getting checked ?
2025-06-24 04:31:02
1
SamBam :
Endo has taken 3 organs from me.
2025-05-31 03:53:36
247
katlinnotjenner :
“But your labs look normal..” 😭🫠
2025-05-31 03:31:10
678
vicckyG's Life 📸🌙 :
What we all need to do is file to get disability employment so they can take us seriously! & do some research
2025-05-31 00:50:44
533
No name :
be more specific endo isn't deadly complications from it can be it's rare
2025-05-31 02:51:14
12
Dani Banani :
Can reaaaaally be fatal in the 13th reason kind of way too.
2025-05-31 04:52:45
977
user4649175519541 :
my anxiety is up now reading everything. the doc i use to see said it was rare forit to go up higher.
2025-07-12 21:05:19
1
faithfawcettauthor :
I said this to my doctor yesterday and she said “your fertility is more important though”
2025-05-30 14:53:24
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Sherri Marie Kelley :
can endometriosis masses form after a hysterectomy?
2025-06-01 02:40:26
1
kiersten :
just had surgery for stage 4 endometriosis yesterday. had to take my appendix, right ovary, and right fallopian tube.
2025-06-01 01:47:01
126
Amberlina :
Also the blood loss almost killed me. IT CAN BE FATAL
2025-05-31 23:44:10
123
Cassie {SAHM} :
yall my healthy anxiety ain’t liking this
2025-06-03 21:44:59
250
maryjenniferestrada :
Idk why but I feel like the more it’s lasered off the more it grows into other organs where it hasn’t been lasered
2025-05-31 20:12:57
10
Amy💛Endo Advocate :
I almost died in March. I had endo removed from my diaphragm / lungs and liver and a week later was rushed to the ER for a PE. Would have never happened if my endo didn’t get to the point it did. Endo can absolutely be fatal!
2025-06-01 03:55:15
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Skele 🫧🪼💙 :
last time I said this I got dog piled on here for "spreading misinformation " but I'm right tho
2025-05-29 18:13:39
116
️kae :
my grandma was pretty much vomiting her feces.. she had a hysterectomy asap. still going strong today literally my best friend
2025-06-01 19:00:21
5
SouthernCanadian905🇨🇦 :
Endo is not fatal! Some complications can be but it very rare.
2025-07-20 17:54:35
1
Amber :
im worried it's gonna take mine. mines invasive. i hit rock bottom 4 years ago. I went to a specialist. but they don't take my insurance and I can't afford the surgery.... I've run out of options. I've given up cause no one seems to care to help anymore.
2025-05-31 03:46:12
2
Laura Nichole :
I have endometriosis it sucks
2025-07-21 02:01:11
2
Natalie | Endometriosis :
This 💛 The narrative really needs to change, whilst for the majority Endo will never be fatal, for a minority this is a very real and scary part of reality - and no one knows how to properly treat or prevent it. 🤯😵💫💛
2025-05-29 09:09:10
181
AshleyMo86 :
Whyyy do the majority of doctors not take this seriously! 😭
2025-06-01 21:14:56
5
Olyvia Deolim :
wow this makes me question if endo killed my mom 🤔 autopsy inclonclusive read "abdominal bleeding of unknown origin"
2025-06-03 01:49:08
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