sunsstillshininggg
Region: US
Wednesday 04 June 2025 13:24:58 GMT
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Ray & Stormi 🏳️🌈| dog nerd :
I found out I was having focal seizures when they did an eeg for something else, they also said I probably have them in my sleep. I just thought it was pre syncope
2025-06-04 22:25:56
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*Etherealzebra* :
My daughter has partial focal seizures
2025-06-04 15:40:15
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InsightTiger :
chat im beginning to think that panic attacks or anxiety attacks as a primary diagnosis don't actually exist
2025-06-05 22:45:18
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Karisa Nicole Karste :
Please check out this article “The complex path to intracranial hypertension and CSF leak in those with hyper mobility and dysautonamia; the theory of spiky leaky syndrome” it’s so interesting how CCI dominos into so many problems!! I’m living it also it’s wild
2025-06-05 05:02:41
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G A R B Y :
I found out my yawning fits were seizures. The yawns are deep and NO air flow. I'm just doing the action. Sometimes I have up to 100 yawns in these fits.
2025-07-05 22:45:39
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Fiona :
Does anyone get a weird sensation over the back of there head
2025-07-05 07:59:33
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dodie :
OH YES I had a friend who connected with me over depersonalisation because they had seizures near the temporal lobe?!? Or something
2025-07-05 21:28:39
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Izzy Swan 🦢 :
I have this and was gas light for years until I found out through my medical records that I tested positive for occipital lobe focal epilepsy. No one told me. Was just told that it was syncope
2025-06-05 00:04:31
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Saryna | 🇨🇦 :
My daughter has focal seizures, the doctors doubted me until I captured a video of her face twitching while she went absent. They did a brain MRI but spinal is next.
2025-07-05 01:14:52
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blemishbaddie :
Can you make a video more on your symptoms? I have severe derealization as well
2025-06-05 15:50:19
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liblaw11 :
yes! seizures are more than just grand mals, i wad lucky a librarian caught my focals in elementary school bc she had them too. later progressed to include grand, mycolonics as well.
2025-06-05 07:29:07
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alena cassel-nowak :
hi! EDS girly here. i finally saw a neurologist on monday. how did you get them to take CCI seriously? i have every symptom but she didn't really seem to be worried about my neck at all.
2025-06-05 17:12:20
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🄶🅁🄰🄲🄴 🔪 :
do brain zaps count as seizures?
2025-06-05 20:14:55
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hazie :
Do you ever have ones that look like the room is tilting back and forth and your head feels funny and it makes you freak out? It looks like the room is set on top of a teeter totter, rocking up and down, dramatically. It’s over in like 30 secs but so scary :(
2025-06-06 10:18:40
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via :
seizures can come in so many different forms it's so "interesting". i had a seizure once where i blacked out and started just walking out of a room that a lesson was held at. i gained consciousness while i was walking and was being screamed at to come back but i could not for the life of me stop my actions 🫠 i heard what was said to me and felt what i was doing but could not stop mid-act
2025-07-06 01:44:04
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elle ☮︎︎ :
this is exactly what happened to me!!! i had no idea they were from my neck for so long
2025-06-16 20:04:53
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Pamela Mars :
I had these weird looping day dream episodes where I’d feel really sick afterwards since I was a kid. No one could tell me what they were, well, I only found out those were seizures like 2yrs ago. We’re so undereducated on seizures & epilepsy.
2025-07-06 19:43:14
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Noel✋️🧿🆘️🦋 :
This will flabbergast you for a while, you'll have something trigger a memory and then be like damn that was not that I thought it was...and then you'll realize how much you brush off as a TR to chronic illnesses
2025-06-05 15:29:46
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🐛ucy :
This is very common, lots of people don't realise they're having focal aware seizures for years until they have a tonic clonic. My daughter developed epilepsy after covid she gets VIVID déja vu, impending doom, stomach rising, vomiting/gagging etc
2025-07-09 14:39:28
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VM :
I have cci and I always say I feel like I've just had a "seizure" but its not a typical seizure where you shake on the floor. its a feeling I really can't explain. going to push my neurologist for an eeg now.
2025-06-05 16:45:43
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Kayleigh :
I found out I had been having seizures most likely throughout my childhood without knowing after having my first Grand Mal. What a whirlwind of emotions and events to go through.
2025-06-05 02:15:12
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Gabrielle :
Scared now becuz i was only ever told i have vasovagal syncope 😬 but my dad has seizures and i hope i didn’t inherit them 😬😬😬
2025-06-06 03:39:14
5
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