nouseracavailable :
Hi👋🏼, I just wanted to say you are truly inspiring. My boyfriend was born with HHLS too, and seeing you share your life gives me so much hope. He’s 27 and currently in the process of getting a transplant. He is also stage 4 with liver disease.
When I first learned about his condition, it was really hard for me to understand, and everything felt overwhelming. But over time, I’ve seen how strong and beautiful people like you are, living with this every day.
Meeting his cardiac team at UCLA and being part of his journey has brought so much love and support into my life. My boyfriend has never let this break him he stays positive and keeps pushing forward. He once told me, ‘I used to think nothing was possible, but in my 27 years of living, all I can do is keep going and make things possible every day. No bad thoughts only good ones.’ He’s my best friend, and honestly, an inspiration to me. So when I see you, I see that same strength. I truly believe in you you’re going to get through this. Keep fighting, you’ve got this.
2026-03-20 23:01:45